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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Candida?
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5 posts in this topic

Hi all!

I'm a newbie here but not a newbie to coeliac disease. I'm a 25 year old girl, on a glutenfree diet for 5 years now. Though a lot better than before the diet, I'm still exhausted. Too exhausted to have a life, too exhausted to study, too exhausted for almost everything.

That's why I'm going to have a bloodanalysis for candida.

Has anyone here any experience (good or bad) with a candida treatment? Did it improve things or not?

Many greetings, Flurriewurrie.

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Hi. Yes before I went gluten free I went on a candida diet. I had good results with it. The die-off stinks but is well worth it. I went on a year cleansing program using antifungals. It is tough it really is but I needed to clean my body out which I did. I have been bad again and into the sugar but need to change all of that. THere is a wonderful website that has a message board and tons of help that you can go by and sells products. I've used their products and can say that they definitely work. If you have any quesitons dont hesitate to contact me. I'm not sure if we can post links on here or not otherwise I would give you the website.

But if you are interested you can email me and I will gladly help you out in any way I can. bikerblue@yahoo.com

Tami

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Flurrywurrie, who is doing your candida test? Many doctors are skeptical about this which is not to say that it does not exist.

I suspect other grains besides gluten may cause fatigue--the book Dangerous Grains is interesting on this point.

I assume you've had a full workup--thyroid (full panel, not just TSH), Iron, Folate, B12, other deficiencies?

How about a viral or bacterial infection (as opposed to fungal)?

I mention these things just to be thorough.

Best wishes!

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Here something pertinent from: http://jnnp.bmjjournals.com/cgi/content/full/72/5/560

"But my patient has not responded to a gluten free diet"

Reports in the literature of the effect of the gluten-free diet on neurological dysfunction are conflicting. Almost all patients reported in the literature have the diagnosis of celiac disease before the development of neurological dysfunction. They may represent a different group of patients from those presenting with neurological dysfunction without bowel involvement. Additionally, improvement of gastrointestinal symptoms and improvement of the histological abnormalities on repeat small bowel biopsy often were the measures used to assess the response to the diet. Serological evidence of response (for example, sustained elimination of antigliadin antibodies) has rarely been used as confirmation of strict adherence to the gluten-free diet. Incomplete elimination of gluten from the diet may be enough to abolish gastrointestinal symptoms with recovery of the small bowel mucosa but is insufficient to arrest the state of heightened immunological responsiveness resulting in neuronal injury. There is a group of patients with celiac disease "resistant" to gluten-free diet. This may reflect hypersensitivity to the minute amounts of gluten present in most "gluten-free" products. An analogous situation may exist in cases of gluten ataxia or gluten related neuropathy. The monitoring of neurological improvement in such cases is made difficult by the slow and sometimes incomplete regeneration of the nervous system. In cases of gluten ataxia where the underlying pathology is loss of Purkinje cells, one may only expect the stabilisation of the disease without any definite clinical improvement. This is in marked contrast to the response seen in patients with florid gastrointestinal symptoms who notice almost immediate improvement after the introduction of a gluten-free diet.

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Hi!

Tami, thanks a lot for the hope you gave me! So, I don't have to be so skeptical about it? And yes, I would very much like to contact you further on that topic, you may expect an e-mail from me, thanks a lot!!!

YankeeDB, also thanks for your reply! I've just had my bloodwork done, I'm waiting for the results. My blood will be analysed for deficiencies (iron, folate en B12, and no matter what the results of the B12 will be, I'll be getting 8 injections with a high dosage of it.), for Pfeiffers disease (wich I' ve also had a couple of years ago), for glucose and for thyroid disease (unfortunately only TSH, my doctor didn't want to test the others)

For the candida, I'll be seeing an alternative doctor who has a good reputation so fingers crossed...

About the other grains, I also have to avoid fructose (lactose too, by the way) so I can't have corn anyway.

And with me,rice always causes the same symptoms as do gluten. Do you avoid grains completely? I don't have any problems with buckwheat, quinoa and amaranth. But those aren't grains, are they?

Unfortunately, I'm one of those sensitive persons: I can't have the smallest dosage of glutenfree wheat or dextrose made out of wheat. Contamination is also a serious problem with me.

But I refuse to except this fatigue! So: fingers crossed for the results of my bloodwork, the results of the B12 injections and the results of a candida treatment...

Anyway, thanks a lot for your replies!!!

Greetings to you all, Flurriewurrie.

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    • celiac disease is psychosomatic
      I was diagnosed a couple years ago and started gluten-free diet then. Test also showed damage to my small intestine. I explained to this doctor how I was barely able to get out of bed when I ate gluten in the pastand my intestines are still recovering from the damage. I only discussed this briefly. I consulted with this doctor concerning my dizziness explaining that I get dizzy/migraines when I eat gluten due to my celiac disease. I further explained that my dizziness has been cut in half since I went on a gluten-free diet so I am better able to get out of bed. The consult was about taking tests to figure out if something in my brain was causing my dizziness or this doctor specialized in testing the brain for impairments. In her summary, she stated that my memory impairments were probably due to being precoccupied with thinking about my psychosomatic symptoms. However, I only though about the test when I took it. And I only think about whatever task I am trying to remember when I try to remember it! I feel my symptoms rather than think about them all day long.
    • celiac disease is psychosomatic
      If you don't get the diagnosis you are happy with go to another doc.  Try to find a Celiac Friendly doc.  OR you can do what i did and give up and just go gluten free.  I didn't need a doctor to confirm that if my gas, bloating, migraines, depression, joint pain, rash, dry skin and brittle nails went away when i went gluten free that i must have celiac.  AND 6 months after i went gluten free on my own i had some blood tests repeated that i had done when they were trying to figure out what was causing my severe rash, all the things that were "wrong" with me or abnormal in the the first blood tests, went to normal on the second test.  INCLUDING MY THYROID LEVELS! Oh, i didn't mention that during this time they diagnosed me with early hashimotos.. 6 months later i was miraculously cured from this progressive thyroid disorder according to the blood test results.  I didn't have hashimotos to put it bluntly.   I am almost 10 years gluten free with no positive Celiac diagnosis.  But let me tell you this,  My daughter's neurologist did a DNA test on her 1 year after she too went gluten free and it came back positive for Celiac.  so.  js.     That's my story..  in short.
    • celiac disease is psychosomatic
      Were you officially diagnosed with Celiac Disease at the time she wrote that?  And, if so, for how long were you diagnosed & gluten-free but still complaining of those symptoms?
    • Weird Reaction
      Hi Richie By the sounds of it you could have gluten sneaking in somewhere, or maybe blood sugar issues,  or just plain anxiety, but it would be good to know for sure so you know what to do next. I think maybe the best course of action would be to see your GP and  tell him/her all your symptoms.   I dread seeing my own GP because as lovely as she is she is very fond of sending me for blood tests (which always seem to include liver function, thyroid and full blood count) which for someone with health anxiety isn't the recipe for a peaceful night's sleep!  But she is right, those particular blood tests, and others, can hold important clues when one has a lot of vague symptoms.   Celiac testing is of course another set of tests, which Flowerqueen has described well above.    If you do have all these tests and anxiety continues to be a problem, whether caused by celiac disease, another medical condition or it just turns out to be a stand alone problem, one book that I would recommend that really helped me understand anxiety is 'At Last a Life' by  Paul David. I found it an immensely helpful tool in my recovery.   There is also a website. http://anxietynomore.co.uk/   Keep us posted Cristiana      
    • celiac disease is psychosomatic
      Unfortunately I feel this may be common.  For 6 years I was told I was fine.  Lungs fine, chest fine, just anxiety.  It was not until I pressed the anemia issue that I got a blood test.  Now I am a bit of a squeaky wheel to my doctor.  She referred me to Mayo Clinic in Rochester MN which has a celiac center.  I will meet with Dr. Murray (who is a leader in celiac research) next Friday.  If nothing else, you could always come to Mayo Clinic.
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