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So I Have A Rash Now
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9 posts in this topic

I don't know if it's DH or not, I can post pics later.  It's all over the front of my thighs and some on the back of my thighs. There's a little bit on my forearms, palmside. I don't think it's folliculitis, I read this only appears in areas where there's hair, and there's no hair on that area of my forearms. The rash looks like little bumps/pimples and it's very itchy. :(   Can't figure out what it is, there's been no new skincare products/perfumes/body sprays/ no new meds or foods except I've had 2 hamburger buns that had wheat and rye in it. I'm not completely gluten-free but have never had a reaction like this when eating gluten. My dh thinks it can be a chlorine rash but i read that this particular rash looks like chicken pox, and mine doesn't look like that, and I"ve been out of the pool for 5 days and this rash isn't going away. Does it sound like it could be DH?

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Maybe check out the Photo's on the DH thread.  It's very difficult to diagnose DH.

 

Colleen

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 Thanks! I"ll check out those pics. I posted in this forum because the dh forum doesn't seem to be very active.

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All of us Moderators and other Advanced members check all the threads.  Yours will be seen, I promise  :)

 

Colleen

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If you are strictly gluten-free, I am not sure why you would trigger DH now. The blisters are active or form when gluten is consumed.

 

EDITED TO SAY; OKAY, SORRY

 

I just re-read your post and I see you are NOT gluten-free...so you should probably get tested. 

 

i HAVE SEEN YOU ON THE FORUM FOR A WHILE, SO I THOUGHT YOU WERE gluten-free ALREADY. 

My mistake...

 

Just know that not all rashes are DH. For example, I get rashes and I do not have DH.

 

DH is extremely itchy and the sores ooze. I have seen a few bad cases of it up close and it's pretty bad.  :(

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DH can take many different forms. My DS's DH starts off like little itchy bump/pimples on his forearms and legs. 

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I wasn't completely gluten free when my iron levels started dropping so I   wanted to test for celiac again because of my iron issues.The lab would only test TtG IgG and DGP I gG and those were negative. I"m still eating gluten because i want to see what my iron levels will be at my appt. next month, and if my doc feels I need a biopsy, I won't have to wait. :)

 

sorry it took so long to get these pics up. Even if it isn't dh, then I hope someone has had this type of rash before or has seen it and knows what it is! Here's the link,  http://s1371.photobucket.com/user/starbuxgal/library/?sort=3&page=1 

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rash isn't as itchy today. Hopefully, this means it will be going away!

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Hopefully i'ts not DH at all.  Very many rashes are common with AI Diseases.  Heck they're common in every one...lol.  Good luck on your Challenge!

 

Colleen

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    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
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