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Symptoms Worse After Going gluten-free

gluten free gluten allergy gluten symptoms

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#1 GlutenNoob

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Posted 06 July 2014 - 06:09 PM

Good evening everybody! 

 

As I said in a previous post, I was recently diagnosed with Celiac Disease and my doctor said that a gluten-free diet is imperative. I was diagnosed with Crohn's about 9 years ago, so pre-gluten diagnosis, I often got sick from various foods I ate. However, I've noticed that since going gluten-free, I actually am getting MORE sick than I was before when I ate certain foods. Did any of you have that experience after going gluten-free? My best guess is that now that I've been eating gluten-free for a few weeks, my body is even more sensitive to gluten than before which means it definitely was a gluten allergy after all. I just find it odd that pre-diagnosis, I would get sick a lot after eating certain foods. And post-diagnosis, since eating gluten-free, if I eat something wrong or that contains gluten, it goes through me almost immediately and I get even more sick than I used to. Just looking for some more reassurance because it's been one heck of a ride - physically and especially emotionally. Thanks!


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#2 beth01

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Posted 07 July 2014 - 03:52 PM

I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?


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Diagnosed at age 37 after a lifetime of symptoms and other diseases: migraines, joint pain, muscle aches, nerve pain, IBS, chronic constipation, chronic ear infections/strep throat, weight fluctuations ( most weight lost >150 pounds), acid reflux, stomach pain, nausea/vomiting, inactive gallbladder, stool impacted appendix, multiple miscarriages, premature births, depression, anxiety, OCD, arthritis of the spine, Grave's disease(treated with radioactive iodine)- hypothyroid, multiple drug and environmental allergies, numbness in the hands and feet, possible multiple TIA's, brain fog, dyslexia, extreme thirst, bouts of insomnia rotated by extreme fatigue, multiple vitamin deficiencies, chronic UTI's and vaginal infections, Fibromyalgia, and I'm sure there are more I am forgetting.

Diagnosed April 7th, 2014 by EGD and tTg IgA.  Marsh IIIb and 35.7 respectively, Starting what seems to be a very long recovery process.

11 year old daughter diagnosed a month later by a tTg IgA of >100 and a positive EMA.  Nine year old son has since tested negative, only had tTg IgA drawn,  Will have a full panel drawn in two years unless symptoms present. 


#3 GF Lover

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Posted 07 July 2014 - 04:03 PM

Are you combining the Chron's Diet and the gluten-free diet.  Stick to Whole foods, no processed items.  Start taking a good probiotic.  You may feel more severe symptoms if your getting gluten.  Some times the symptoms will evolve to different symptoms.

 

Have you read the Newbie 101 thread under the Coping Section.  It is a must to get a handle on this diet.  Be sure to read all the links too.

 

Good Luck

 

Colleen


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#4 Daisy1010

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Posted 08 July 2014 - 05:45 AM

I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?

My husband has had similar problems, and we keep cutting out foods, but he still has digestive issues with almost any grain, rice, bean, oat etc. I found this site today, and she has been to Columbia University where new research is coming out about this, she lists the supplements she is taking to heal her gut, not just stay away from problem foods. I am going to try my husband one of these at a time and see if we have good results. This is a journey, we are gluten free, dairy, soy, nut, and most oil free as well right now. Good luck and don't lose hope, there are many out there that are on this journey. You just have to find what you are sensitive to, and find supplements that might help you heal!  http://www.theceliac...and-still-sick/


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