Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Symptoms Worse After Going gluten-free
0

4 posts in this topic

Good evening everybody! 

 

As I said in a previous post, I was recently diagnosed with Celiac Disease and my doctor said that a gluten-free diet is imperative. I was diagnosed with Crohn's about 9 years ago, so pre-gluten diagnosis, I often got sick from various foods I ate. However, I've noticed that since going gluten-free, I actually am getting MORE sick than I was before when I ate certain foods. Did any of you have that experience after going gluten-free? My best guess is that now that I've been eating gluten-free for a few weeks, my body is even more sensitive to gluten than before which means it definitely was a gluten allergy after all. I just find it odd that pre-diagnosis, I would get sick a lot after eating certain foods. And post-diagnosis, since eating gluten-free, if I eat something wrong or that contains gluten, it goes through me almost immediately and I get even more sick than I used to. Just looking for some more reassurance because it's been one heck of a ride - physically and especially emotionally. Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?

0

Share this post


Link to post
Share on other sites

Are you combining the Chron's Diet and the gluten-free diet.  Stick to Whole foods, no processed items.  Start taking a good probiotic.  You may feel more severe symptoms if your getting gluten.  Some times the symptoms will evolve to different symptoms.

 

Have you read the Newbie 101 thread under the Coping Section.  It is a must to get a handle on this diet.  Be sure to read all the links too.

 

Good Luck

 

Colleen

0

Share this post


Link to post
Share on other sites

I have noticed since my diagnosis ( three months ago today) that is seems like every food bothers me at some point in time.  I can eat corn today and feel fine but I eat corn tomorrow and get sick.  Right now our bellies are so sore and inflamed from all the gluten damage, it's going to take time.  I was all worried that I have a ton of food intolerances but I just need to let my guts heal and go from there.

 

I try to limit the variety of foods I eat in a day.  I limit my meals to three ingredients( not counting seasonings), this has helped me a lot.  I also noticed that if I eat 5 smaller meals rather than three regular meals, my belly is a lot happier.  I try not to eat too much of one thing either, I have noticed that a lot of sugar can bother me ( gluteny symptoms ) or a lot of foods that are harder to digest.  I am also trying to stay away from processed foods, condiments are pretty much all I eat that is processed right now.  It is really hard to find a balance but the only way for me to learn right now is the hard way, so if I find a balance that works, I stick to it.  I have noticed that some things are bothering me and I don't need an elimination diet to figure it out.  Garlic hates me!  I really hope I can get that one back later, I really love garlic.  I can't eat too much soy in a day either so I really watch what it's in. A little is ok, a lot is not.

 

I think we just notice more now how crappy food makes us feel because we know that is our problem.  I was eating only Ramen noodles before my diagnosis, I thought they were the only thing I could eat without projectile puking.  Lol, how dumb was I?

My husband has had similar problems, and we keep cutting out foods, but he still has digestive issues with almost any grain, rice, bean, oat etc. I found this site today, and she has been to Columbia University where new research is coming out about this, she lists the supplements she is taking to heal her gut, not just stay away from problem foods. I am going to try my husband one of these at a time and see if we have good results. This is a journey, we are gluten free, dairy, soy, nut, and most oil free as well right now. Good luck and don't lose hope, there are many out there that are on this journey. You just have to find what you are sensitive to, and find supplements that might help you heal!  http://www.theceliacdiva.com/im-gluten-free-and-still-sick/

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,675
    • Total Posts
      921,694
  • Topics

  • Posts

    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
    • Celiac disease sufferers or those who embrace a life without gluten can check out Canada's Gluten-Free Market when it makes stops in London and ... View the full article
    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,670
    • Most Online
      3,093

    Newest Member
    jelefr
    Joined