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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

My Nd Tested Me For These -- Are These Right?
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6 posts in this topic

Hi All

 

I'm still in the waiting timeframe -- it will be 4 weeks this Friday so I'm hoping I'll find out my results soon. 

 

After having my blood work done at the Naturopath, I followed up asking what was tested and she said these:

 

Tissue Transglutaminase

IgE Wheat

IgG Gliadin

IgA Gliadin

 

I've looked around online to see if these are accurate tests to have done, but thought I would ask here too since they look different than the other tests people have.

 

Also, I've been following the SCD as a trial to see how I feel and when I "slip up" I have my normal IBS stuff, sadness, low energy, but I've also now noticed a low down kidney ache... I think I've always had this feeling, but never paid attention. Now that I'm having really really good days, this ache is quite noticable when I do eat something with gluten. Could this be from something else? My MD ruled out gluten sensitiviy/celiac because "You don't look skinny enough for celiac" so I've been hesitant to go back about all of this (I just need a new MD actually!)

 

I'd love any input anyone has about either of these topics. 

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Hi All

 

I'm still in the waiting timeframe -- it will be 4 weeks this Friday so I'm hoping I'll find out my results soon. 

 

After having my blood work done at the Naturopath, I followed up asking what was tested and she said these:

 

Tissue Transglutaminase

IgE Wheat

IgG Gliadin

IgA Gliadin

 

I've looked around online to see if these are accurate tests to have done, but thought I would ask here too since they look different than the other tests people have.

 

Also, I've been following the SCD as a trial to see how I feel and when I "slip up" I have my normal IBS stuff, sadness, low energy, but I've also now noticed a low down kidney ache... I think I've always had this feeling, but never paid attention. Now that I'm having really really good days, this ache is quite noticable when I do eat something with gluten. Could this be from something else? My MD ruled out gluten sensitiviy/celiac because "You don't look skinny enough for celiac" so I've been hesitant to go back about all of this (I just need a new MD actually!)

 

I'd love any input anyone has about either of these topics. 

 

Here are the testing guidelines.  

 

http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets3_Antibody.pdf

 

There can always be multiple issues at work.  And yes, a new MD is definitely in order.

 

Colleen

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Have you been eating gluten free?  That can mess up the actual medical tests for Celiac that Colleen linked to.

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Have you been eating gluten free?  That can mess up the actual medical tests for Celiac that Colleen linked to.

Thanks Colleen.

 

And yes, for the past 2 years I've been limiting gluten, but have never been symptom free because I kept slipping up, or ignoring it, or feeling defeated and eating chips or something. I am worried that my spotty gluten-free eating will affect the test but my ND knows all of this so we can have a more in depth conversation once we have some numbers back. After she took my blood sample that's when I started the SCD. it's been just over 3 weeks now and while my symptoms aren't gone, they're improving and my energy is coming back some days. My bowels aren't yet happy though :/

 

I haven't seen the exact tests I was given  listed anywhere which is why I'm curious. Would I have gotten the Anti-Tissue Transglutaminase? She didn't say "Anti" but perhaps that's the only test there is? 

 

Thanks!

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Perhaps you should get a new MD who will test you for Celiac disease?  But, if you have been basically gluten-free (just a small slip occasionally) the tests might be negative.  You have to be eating gluten to make enough antibodies to show up on the tests.  

 

I can't really comment on any tests that an ND does as they are usually not the ones that are medically accepted for testing for Celiac.  Yours could be the exception.

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My labs listed the tTG test as tissue transglutaminase too.

 

My guess for interpreting your labs is you had the AGA IgA and AGA IgG (anti-gliadin antibodies in both IgA and IgG), as well as the tTG IgA.  The AGA tests are older tests that are not very reliable (low sensitivity and specificity) but some doctors believe that a positive AGA can indicate  celiac disease or non-celiac gluten sensitivity (NCGS) - not everyone agrees with that though.

 

Good luck with a new doctor.

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