Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

My Nd Tested Me For These -- Are These Right?
0

6 posts in this topic

Hi All

 

I'm still in the waiting timeframe -- it will be 4 weeks this Friday so I'm hoping I'll find out my results soon. 

 

After having my blood work done at the Naturopath, I followed up asking what was tested and she said these:

 

Tissue Transglutaminase

IgE Wheat

IgG Gliadin

IgA Gliadin

 

I've looked around online to see if these are accurate tests to have done, but thought I would ask here too since they look different than the other tests people have.

 

Also, I've been following the SCD as a trial to see how I feel and when I "slip up" I have my normal IBS stuff, sadness, low energy, but I've also now noticed a low down kidney ache... I think I've always had this feeling, but never paid attention. Now that I'm having really really good days, this ache is quite noticable when I do eat something with gluten. Could this be from something else? My MD ruled out gluten sensitiviy/celiac because "You don't look skinny enough for celiac" so I've been hesitant to go back about all of this (I just need a new MD actually!)

 

I'd love any input anyone has about either of these topics. 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi All

 

I'm still in the waiting timeframe -- it will be 4 weeks this Friday so I'm hoping I'll find out my results soon. 

 

After having my blood work done at the Naturopath, I followed up asking what was tested and she said these:

 

Tissue Transglutaminase

IgE Wheat

IgG Gliadin

IgA Gliadin

 

I've looked around online to see if these are accurate tests to have done, but thought I would ask here too since they look different than the other tests people have.

 

Also, I've been following the SCD as a trial to see how I feel and when I "slip up" I have my normal IBS stuff, sadness, low energy, but I've also now noticed a low down kidney ache... I think I've always had this feeling, but never paid attention. Now that I'm having really really good days, this ache is quite noticable when I do eat something with gluten. Could this be from something else? My MD ruled out gluten sensitiviy/celiac because "You don't look skinny enough for celiac" so I've been hesitant to go back about all of this (I just need a new MD actually!)

 

I'd love any input anyone has about either of these topics. 

 

Here are the testing guidelines.  

 

http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets3_Antibody.pdf

 

There can always be multiple issues at work.  And yes, a new MD is definitely in order.

 

Colleen

0

Share this post


Link to post
Share on other sites

Have you been eating gluten free?  That can mess up the actual medical tests for Celiac that Colleen linked to.

0

Share this post


Link to post
Share on other sites

Have you been eating gluten free?  That can mess up the actual medical tests for Celiac that Colleen linked to.

Thanks Colleen.

 

And yes, for the past 2 years I've been limiting gluten, but have never been symptom free because I kept slipping up, or ignoring it, or feeling defeated and eating chips or something. I am worried that my spotty gluten-free eating will affect the test but my ND knows all of this so we can have a more in depth conversation once we have some numbers back. After she took my blood sample that's when I started the SCD. it's been just over 3 weeks now and while my symptoms aren't gone, they're improving and my energy is coming back some days. My bowels aren't yet happy though :/

 

I haven't seen the exact tests I was given  listed anywhere which is why I'm curious. Would I have gotten the Anti-Tissue Transglutaminase? She didn't say "Anti" but perhaps that's the only test there is? 

 

Thanks!

0

Share this post


Link to post
Share on other sites

Perhaps you should get a new MD who will test you for Celiac disease?  But, if you have been basically gluten-free (just a small slip occasionally) the tests might be negative.  You have to be eating gluten to make enough antibodies to show up on the tests.  

 

I can't really comment on any tests that an ND does as they are usually not the ones that are medically accepted for testing for Celiac.  Yours could be the exception.

0

Share this post


Link to post
Share on other sites




My labs listed the tTG test as tissue transglutaminase too.

 

My guess for interpreting your labs is you had the AGA IgA and AGA IgG (anti-gliadin antibodies in both IgA and IgG), as well as the tTG IgA.  The AGA tests are older tests that are not very reliable (low sensitivity and specificity) but some doctors believe that a positive AGA can indicate  celiac disease or non-celiac gluten sensitivity (NCGS) - not everyone agrees with that though.

 

Good luck with a new doctor.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,315
  • Topics

  • Posts

    • i hope you tipped that waitress well????
    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined