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What Tests Do I Need
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3 posts in this topic

Hello,

 

I think I have a problem with gluten.  I had a baby in February.  Shortly after his birth I started having sulfer burps that would start between 6 to 9 pm followed by diarrhea until 10 am the next day.  At first I thought I caught some stomach bug but after a few times noticed a pattern.  This problem has gotten more frequent and now I'm experiencing bloating and pain when eating and drinking.  I found a thread about nocturnal diarrhea on this site one night.  As I read the posts I almost started to cry.  I could have written any of them.  I decided to cut out gluten the next day.  All my symptoms went away within a few days.  Then I read that you need to eat gluten for the tests to come out accurate.  I began eating gluten again.  That is when I started having a lot of pain when eating anything with gluten.  It actually took about 3 days for the symptoms to come back.  I don't know what tests my doctor will order but I stopped eating gluten again because it hurts so much and I can't take very good care of my children with the symptoms.  I also passed a kidney stone about a week ago and have another still there.  I don't know if this could be related or not.

 

What I need to know is this:

 

How long before testing do I need to eat gluten?

 

What tests are important to have?

 

Is there any way to eat gluten and calm the symptoms of gas, pain and diarrhea so I can function well enough to care for my children?

 

Is there a problem with nursing a baby with Celiac Disease?

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Welcome to the board. :)

 

 

Hello,

 

I think I have a problem with gluten.  I had a baby in February.  Shortly after his birth I started having sulfer burps that would start between 6 to 9 pm followed by diarrhea until 10 am the next day.  At first I thought I caught some stomach bug but after a few times noticed a pattern.  This problem has gotten more frequent and now I'm experiencing bloating and pain when eating and drinking.  I found a thread about nocturnal diarrhea on this site one night.  As I read the posts I almost started to cry.  I could have written any of them.  I decided to cut out gluten the next day.  All my symptoms went away within a few days.  Then I read that you need to eat gluten for the tests to come out accurate.  I began eating gluten again.  That is when I started having a lot of pain when eating anything with gluten.  It actually took about 3 days for the symptoms to come back.  I don't know what tests my doctor will order but I stopped eating gluten again because it hurts so much and I can't take very good care of my children with the symptoms.  I also passed a kidney stone about a week ago and have another still there.  I don't know if this could be related or not.

 

What I need to know is this:

 

How long before testing do I need to eat gluten?

 

What tests are important to have?

 

Is there any way to eat gluten and calm the symptoms of gas, pain and diarrhea so I can function well enough to care for my children?

 

Is there a problem with nursing a baby with Celiac Disease?

 

Congratulations on your little one. Many celiacs find their disease is kicked off by a traumatic or major health event - pregnancy and childbirth has done that for more than one person around here. :(

 

To answer your questions:

For the most accurate tests, you need to be eating gluten (equivalent of 1-2 slices of bread per day) in the 8-12 weeks prior to blood tests, or the 2-4 weeks prior to an endoscopic biopsy.  Since you have mostly been mostly eating gluten, get tested immediately.  As you have found, it can be difficult to next to impossible to reintroduce gluten after being gluten-free for a time. Get tested now.

 

The available tests are:

tTG IgA and tTG IgG - most common tests

DGP IgA and DGP IgG - newer tests

EMA IgA - detects more advanced disease

total serum IgA - a control test

AGA IgA and AGA IgG - older and less reliable test

Endoscopic biopsy

 

To calm symptoms, do not overdo the gluten. 1-2 slices of bread is all you need - that could be half a sanwich, a muffin, or a small serving of pasta.  Some find eating gluten at night is helpful as it doesn't wreck your day... just your night.  :( A gluten challenge is needed to make you sick so the tests will detect celiac disease, if you are well they won't work... It's a bad system.

 

There is no problem nursing a baby with celiac disease, as far as I know.  Babies who have celiac disease may have issues with breast milk (gluten) if the mother is consuming gluten though.  Be aware that celiac disease is genetic and if you have it your little one has about a 1 in 10 chance of getting celiac disease. If she is consuming gluten, you will need to test her every couple of years or immediately if she shows symptoms.  Young children are harder to get an accurate test from so if tests are negative, and you see signs of celiac disease, she might have the disease in spite of what the tests say.

 

Here is some good reading:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

http://subscribe.imngmedicalmedia.com/onecount/validate_server/getCookie.php?return=http%3A%2F%2Fwww.jfponline.com%2Findex.php%3Fid%3D22143%26tx_ttnews%5Btt_news%5D%3D172034

http://pediatrics.aappublications.org/content/early/2014/01/07/peds.2012-3765.full.pdf

http://gut.bmj.com/content/early/2014/06/10/gutjnl-2013-306578.long#T2

 

Best wishes.

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Thank you.  I see my doctor tomorrow.  I'm going to ask for the tests you suggested and for a referral to a GI doctor.  I'm sure I'll be back here to learn more.  I'm about to look at the links you posted.  I appreciate you responding so quickly.  The information you gave is very helpful. 

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    • Hi, I am 20yrs old and have had this weird stomach pains on and off for 2 years. They started by just having pains on my left side when I sucked in or pressed on my tummy. In the last 3 months they have gotten really bad, with a lot of bloating and used to occur almost every time just before bed I would get bloated, and feel constipated like I just needed a hole in my stomach to release the pressure. I have had tests for lactose and gluten, and they both came back negative. I was not having any gluten at the time of the test which I have read can affect the results. I had little help from my doctor so I went gluten free which was working really well and I would only have pain once every two weeks. The last three nights were awful, I was in so much pain I struggled to walk, and again they would go away in the morning. I looked like I was pregnant and relief was only through passing wind (sorry for the detail!). I was wondering if anyone has had similar experience, or could point me in a direction to help me. The weird thing is that I did have gluten one day and that didn't seem to affect me at all. Then I will have something like vegemite (I'm from Australia) and this is the only thing that I can think off that would set me off (it contains wheat). So I don't really know what do to or where to go, these stomach pains have been heightened since I had a horrible gastro for a week, and went to hospital. Could it be possible that my gut lining has been damaged? I have become really stuck on what I should do next, as tonight my stomach is fine, I actually feel hungry (previously I have felt super full as a result of being bloated), so I have no idea what triggered that horrible episodes before I went to bed for the last few nights. Any thoughts or suggestions would be amazing, thank heaps
    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
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