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Glutened By Gluten-Free Tostitos?


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#1 Kias4

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Posted 08 July 2014 - 02:59 AM

I have been glutened the last three days, and the only common item I can think of is the chips I've been eating. They are Tostitos brand, and the bag says gluten-free.  I've ready elsewhere that other celiacs claim to have been glutened by Tostitos even thought they're marked gluten-free.  Has anyone else experienced this?  And any other tortilla chip recommendations?  I prefer thin and crispy.


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#2 skullgrl

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Posted 08 July 2014 - 04:02 AM

They may be gluten free but if I remember correctly the Tostitos are made on a shared line (at least they are in Canada). The whole new law for gluten free labeling in the U.S. (I'm not sure where you are located) is not in effect until August 2nd, meaning the term gluten free on foods don't really carry much weight.


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#3 kareng

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Posted 08 July 2014 - 04:16 AM

US list.  As you can see, any that are marked gluten-free are tested for gluten.  

 

 

http://www.fritolay....ngredients.html


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#4 GF Lover

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Posted 08 July 2014 - 04:29 AM

Also you said "glutened the last three days".  It may have been something else you ate on Day one since gluten reactions can last for up to a month.  Of course, this is only if you have Celiac.  I am not sure of length of reactions due to NCGI.

 

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#5 user001

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Posted 08 July 2014 - 05:34 AM

Maybe it is what you are dipping it in? Maybe its the soybean oil or whatever other ingredients there are in the chips. Maybe you had a problem with corn?


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#6 IrishHeart

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Posted 08 July 2014 - 05:35 AM

I have eaten them without issues.  Could be something else causing this reaction perhaps?


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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#7 Kias4

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Posted 08 July 2014 - 05:41 AM

Thanks everyone.  I've been dipping them in homemade salsa that is for sure gluten free.  I do have celiac disease.  And typically my acute symptoms from a glutening (severe GI distress) only last a day (other symptoms may last longer), but this has been three days long.  Good to know others don't get sick from them.  I'll have to look into what else could be causing it.


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#8 Kias4

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Posted 08 July 2014 - 05:49 AM

Or, perhaps I'm just more sensitive to gluten than the 20ppm required for the gluten-free label.  (Frito-Lay does say they follow the 20ppm rule for their gluten-free chips, to which Tostitos belongs.)  I'm still figuring out my sensitivity level.  I got diagnosed with celiac disease by blood test after being on a somewhat diligent gluten-free diet for three years, so apparently my body just really hates gluten.  I'll have to try to stick to certified gluten-free chips.


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#9 IrishHeart

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Posted 08 July 2014 - 05:58 AM

Or, perhaps I'm just more sensitive to gluten than the 20ppm required for the gluten-free label.  (Frito-Lay does say they follow the 20ppm rule for their gluten-free chips, to which Tostitos belongs.)  I'm still figuring out my sensitivity level.  I got diagnosed with celiac disease by blood test after being on a somewhat diligent gluten-free diet for three years, so apparently my body just really hates gluten.  I'll have to try to stick to certified gluten-free chips.

 

I subscribe to Gluten Free watchdog testing reports

.

I can't post the entire report about the chips because it is breaking all kinds of user agreement rules but I think i  can tell you this part: 

 

TCC3 BB 21 MAY 13 < 5 ppm gluten < 5 ppm gluten < 5 ppm gluten 
 
It's highly unlikely it is the chips. but, then again, who knows?

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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#10 user001

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Posted 08 July 2014 - 06:01 AM

Everything that is in salsa is stuff that can cause a person with celiac to have a problem. You may have developed an allergy to tomatoes or onions or spicy food. I know it might sound crazy, but I drank coffee for years without a problem but then recently started having a problem with it.


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Beef and pork free due to intolerance since 2005, Gluten free since March 2014, Coffee free due to a developed intolerance June 2014, Egg free due to a developed intolerance August 2014
Misdiagnosed since 2000 with chronic fatigue syndrome, major depression and anxiety disorder.
Requested doc test for Celiac disease in April 2014.
Blood test positive for  Celiac disease May 2014.

Celiac Dx confirmed via small intestine biopsy 6/26/14
Fatigue,.depression, anxiety, daily headaches, and a laundry list of other symptoms have diminished slowly since I stopped eating gluten.

Who knows how much longer I would have suffered if I continued to rely on doctors to think of testing me for celiac disease.

BE AN ADVOCATE FOR YOUR OWN HEALTH!


#11 kareng

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Posted 08 July 2014 - 06:18 AM

Salsa ingredients can be harsh for a lot of people - has nothing to do with Celiac. I eat salsa most days fine. Coffee is acidic to the stomach, too. A little dairy in it helps a lot of people with that acid in the stomach. I bet that dairy cheese with salsa probably helps that, too.

A little explanation about testing for gluten - a test for less than 20 ppm does not mean a product has 19 ppm. It could have 0 or 6. It does not mean a company then adds gluten to get it up to 19 1/2 ppm. That's another odd misconception I have seen. :)

The labelling law is " official" in August - that's a couple of weeks away. A big company like Frito Lay is not going to label things gluten-free and have to take them off the shelves in 2 weeks because they made up a corporate definition of gluten-free that doesn't meet the new laws. That is the reason for the year to come into compliance.


Maybe try the salsa on celery or salad and skip corn chips for a few days. See if that takes care of it. Or maybe skip both chips and salsa for a couple of days until,you get your gut under control?
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#12 IrishHeart

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Posted 08 July 2014 - 08:17 AM

I have an intolerance for tomatoes, but it really isn't a problem for the vast majority of celiacs.

 

I always suggest to people before they start thinking "it's gluten" to just remove the food item in question for a few weeks, then add it back in.

 

I can't tell you how many times people think it's trace gluten but then find out it was the acid in tomatoes or coffee or vinegar.or, or, or (sorry, I know that sounds dire, but it's really not!) we all manage to figure out what else may be at play. (I have a list of no-no's myself)  <_<

 

This really can occur in anyone's GI tract, not just celiacs. My hubs cannot eat melon or cukes, for example....nothing to do with celiac. My friend can't have lemons. etc. 

 

It's hard sometimes at the beginning because your gut is still wonky and you really do start to think everything is a gluten CC thing.

 

Honestly, it isn't.  :)


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#13 CajunChic

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Posted 08 July 2014 - 08:31 AM

I thought gluten was getting me, all the time. I found it was corn. It didnt make sense to me because I'd have it one day and be fine. On the second day I'd be in bed with an upset stomach. I can tolerate very small amounts of corn at one time, then I have to wait at least a week before eating it again. Same with tomatoes and bellpeppers for me.

Chips and salsa was a fav for me, unfortunately I have to have it sparingly now. I like to switch it up with a bean dip or hummus with gluten-free crackers or occasionally a potato chip. I can't tolerate much oil, neither.

Hope you find what works for you!
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#14 notme!

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Posted 08 July 2014 - 08:34 AM

if you really want to have a better idea of what is bothering you, try food journaling and elimination :)  


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#15 IrishHeart

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Posted 08 July 2014 - 08:46 AM

or occasionally a potato chip. 

 

^_^

I can't have those darn things in the house. Absolutely zero self-control with those. Seriously, what IS IT with potato chips?? 


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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif



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