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Newly Diagnosed
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I was diagnosed a couple weeks ago with Celiac so I'm starting my journey with this new life :D.  My test results were :

 

IgA,Tissue Transglutaminase Ab, S  32.2  >10 being positive

 

IgG,Gliadin(Deamidated) Ab, S 66.5  >30 positive

 

IgG,Tissue Transglutaminase Ab,S 17.6  >9 positive

 

IgA,Gliadin(Deamidated) Ab, S  23.5  with <20 being positive

 

my biopsy was also positive and I have the genetic pairs so it's a pretty sure thing I guess.

 

So, I go back to the doctor at the end of the month to meet with the GI Celiac team and was told to not stop Gluten until I see them...so, I'm eating all the stuff I love that I won't be able to eat :D.  I'm here to just absorb information and learn about this new way of life.  I bought my first real gluten free food today to try-it was on sale at the grocery store!

 

So, hello to all and I look forward to getting to know everyone here!

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That question is high on my list of questions to ask when I go back.  Everyone here talks about being "glutened" and having reactions right away, will that happen to me, who is fairly symptom free other then bathroom issues, but, after I totally cut out gluten, will the reactions come harder???  I'm also looking forward to the holiday season and if I have a cookie or two after being gluten-free until then, what happens? I am sure everyone is different but I don't run to the bathroom now every time I eat something with gluten so who knows :D.

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Hello!

And Welcome!

Take a look around and let us know how we can help your transition :)

Here is a great start:

http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/

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Welcome to the Silly Yak Club!  Usually with a solid celiac diagnosis, which it seems like you have, they tell you to go gluten-free right away.  Better to follow what was told to you in case they want to do further testing, though.  You can take this time to learn and ease into the gluten-free lifestyle, and once you get the order, it is strictly gluten-free from then on!  We have a great bunch of people here with a lot of helpful ideas, so please feel free to ask anything!  If you read a post that has whether or not something is gluten-free on it, pay attention to the date because this forum has been around a long time,and products can change over time.

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Welcome to the Silly Yak Club!  Usually with a solid celiac diagnosis, which it seems like you have, they tell you to go gluten-free right away.  Better to follow what was told to you in case they want to do further testing, though.  You can take this time to learn and ease into the gluten-free lifestyle, and once you get the order, it is strictly gluten-free from then on!  We have a great bunch of people here with a lot of helpful ideas, so please feel free to ask anything!  If you read a post that has whether or not something is gluten-free on it, pay attention to the date because this forum has been around a long time,and products can change over time.

 

I think they wanted me to wait because there is one doctor doing a study and maybe some further tests???  He is doing a genetic study I think and I was originally tested because I have a relative with Celiac and had a few symptoms, mainly fatigue and bathroom issues :D.  I haven't met with the GI team yet either so some of that scheduling was due to my schedule too.  I have a few other things going on that they are looking at as well and I'm on a restricted calorie diet so that pretty much eliminates a lot of Gluten products, breads, pasta, etc., because of the calorie count.

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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