I am new to the forum. I have 2 children with GI issues and I myself have had IBS type symptoms most my life. We've had blood work celiac panels run on both of my children and told they were negative with no need for genetic testing. My dd also had an endoscopy done at Mayo Clinic in Rochester and from all those results, I see they did not do any separate biopsies for celiac. When I talked to the nurse about it later because dd was still having symptoms, I was told that since there was no sign of inflammation or damage, they did not need to do the biospies for celiac. Not sure what I think about that. My gut tells me they can not see that well to know for sure, but wanted the groups advice on all of this. OK, so my dd's GI history is MSPI as a baby, then reflux and regurgitation of foods possibly related to histamine intolerances, and also possible fructose malabsorption. She's also has constipation issues since she was a baby. Recently diagnosed with SIBO at age 8 but since the methane gasses were higher toward the end of the breath test, doc thought it was being caused by her constipation. Her vitamin B-12 was over 1500. No exact number was given, just over 1500. DD has aversion to almost all fruits and veggies. She'll eat strawberries, green beans, some lettuce and cooked carrots. Sometimes some applesauce or fresh apples but we are pealing the skins to make easier to digest. . She also has texture issues but is very smart, top of her class. Was not growing at one time around age 2, but now is growing and gaining weight but on the lower end of the curve for her age but looks healthy. So here are my dd's blood test results. She was almost 7 years at the time. Immunoglobulin A Serum =101 ( range is 33-200);
Gliadin Peptide Antibody, IgA = 2 (range 0-19); tTG Antibody, IgA =4 (range 0-19). Also, my son's Celiac results were almost identical to my daughters and the same testing panel was done on him. Both tests were completed by ARUP labs out of Salt Lake City, UT.
Any advise on these test results would be appreciated. Specific questions being do you all think ARUP's panel is complete or a good one. Do those blood test results look questionable at all for possible celiac disease or do they looked strongly negative. Just trying to put this to rest as FP doc keeps telling us to avoid the wheat, but don't want to take her off it, if more testing should be completed.