Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Celiac Blood Testing

4 posts in this topic

Hi All,

I am new to the forum.  I have 2 children with GI issues and I myself have had IBS type symptoms most my life.   We've had blood work celiac panels run on both of my children and told they were negative with no need for genetic testing.  My dd also had an endoscopy done at Mayo Clinic in Rochester and from all those results, I see they did not do any separate biopsies for celiac.  When I talked to the nurse about it later because dd was still having symptoms, I was told that since there was no sign of inflammation or damage, they did not need to do the biospies for celiac.   Not sure what I think about that.  My gut tells me they can not see that well to know for sure, but wanted the groups advice on all of this.     OK, so my dd's GI history is MSPI as a baby, then reflux and regurgitation of foods possibly related to histamine intolerances, and also possible fructose malabsorption. She's also has constipation issues since she was a baby.   Recently diagnosed with SIBO at age 8 but since the methane gasses were higher toward the end of the breath test, doc thought it was being caused by her constipation.    Her vitamin B-12 was over 1500.   No exact number was given, just over 1500.     DD has aversion to almost all fruits and veggies.   She'll eat strawberries, green beans, some lettuce and cooked carrots.   Sometimes some applesauce or fresh apples but we are pealing the skins to make easier to digest. .  She also has texture issues but is very smart, top of her class.   Was not growing at one time around age 2, but now is growing and gaining weight but on the lower end of the curve for her age but looks healthy.    So  here are my dd's blood test results.  She was almost 7 years at the time.   Immunoglobulin A Serum =101  ( range is 33-200);

Gliadin Peptide Antibody, IgA  = 2  (range 0-19); tTG Antibody, IgA  =4  (range 0-19).      Also, my son's Celiac results were almost identical to my daughters and the same testing panel was done on him.   Both tests were completed by ARUP labs out of Salt Lake City, UT.      

   Any advise on these test results would be appreciated.   Specific questions being do you all think ARUP's panel is complete or a good one.  Do those blood test results look questionable at all for possible celiac disease or do they looked strongly negative.   Just trying to put this to rest as FP doc keeps telling us to avoid the wheat, but don't want to take her off it, if more testing should be completed.      


Share this post

Link to post
Share on other sites

Ads by Google:

First thought.

Have you been properly tested for celiac disease?

Other thoughts:

It is difficult sometimes kids take longer to test positive and do agree that samples should have been taken and sent to the lab during the endoscopy...sadly not many doctors want to move forward with celiac diagnosis once blood is negative.

Did either child have a DGP-IgG?


Share this post

Link to post
Share on other sites

Thanks Gottaski,  No, I have not been tested myself for Celiac.    I've never had an endoscopy.  Years ago I had a sigmoidoscopy, BE series and upper GI Barium study but that was it. I was told all was fine with these tests and  I was told I had IBS with no advice. Just avoid gassy foods.       Neither kids have had the DGP-IgG test done.   Do you know which lab runs that test in the US.   All the hospitals in our city use ARUP out of Salt Lake City.    Not sure if ARUP does that test.    It seems like the GI docs in our town don't do celiac biospies very often.  I've just heard stories of people having endoscopies and no biopsies for celiac being done.    That's why we went to Mayo with my daughter.  They are supposed to be the best and then they didn't even do the biopsies.     What are your thoughts on the results I listed??   I don't even know what the Immuglobulin A test is for?   Is that to show if a person if IGG or IGA deficient???   No one explained any of the blood test results to me.   Just that the kids were negative.   Don't get to talk to doctor about results.   The nurses always just call back and say they are negative and then they don't know the specifics about the tests.   Very frustrating....  


Share this post

Link to post
Share on other sites

Oh goodness.

Yes, the Immuglobulin A is often referred to as "Total Serum IgA" and is a control test to see if one is IgA deficient. If deficient then some docs will order the IgG based celiac antibody tests.

Here's one problem....some, especially young kids can be positive on one of any antibody tests or all of them. I always recommend kids with obvious symptoms &/or family history of celiac disease be tested with the complete celiac antibody panel.

I'll add the complete list when I get back to my laptop....on mobile version just now.

Hang in there...keep reading.

I would suggest you get a complete antibody panel yourself. Your primary can order it.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • It really can be anywhere or any random source, Few tips, as mentioned eat whole foods only nothing processed, Use Freezer paper on your prep surfaces to fix your foods, perhaps gloves in case your touching something else (door to fridge, pantry, computer keyboard, etc) that might have trace gluten residue. Have dedicated gluten-free cooking utensils, pots, and pans. Check your soaps, shampoos, make up and other hygiene products, these might also contain gluten that could be cross contaminating.  I personally had this exact issue and broke down sold everything I had and started new in a new apartment, new appliances, new everything since I was getting sick at least twice a week and could not hold a job. I will link you to the list of gluten ingredients to look out for. Hopefully you can find the cause and not have to go as radical as I did to get relief. It might be something as simple as a spice, or a random product in you house.
    • Thanks for your replies...!  Thanks for all the tips, I am indeed on a caveman diet and trying to figure out what works best. I had rice on Friday and unfortunately did get a reaction (bloating/nervousness), which for now makes carbs a thing of the past. I do indeed do very well on protein and am becoming picky about the ingredients in foods as well. For example I had asparagus the other day but they were packed in citric acid. Little did I know citric acid had sugar. Suffered a severe reaction. All-natural indeed is the only way to go when it comes to curing this thing..  Well, it's a valuable lesson. I never drank enough during my childhood but I'm trying to drink at least a bottle nowadays. It probably contributed to my gut issues.  I'll do my best and see how it goes.  Thanks again, Ken
    • I was in Zambia, Zimbabwe, Botswana & South Africa this summer, with very few problems.  I brought a ton of Kind bars, Justin's peanut butter packets and Costco beef jerky just in case!  I get the Kind Bars and Justin's on Amazon Prime.  Africans eat a lot of meat (try the Kudu, it's awesome!) and veggies.  Stay away from sauces.  I don't recommend eating the Mopane tree worms, even though they are gluten-free.  I tried to get out of it, but my tour leader said they were gluten-free and I had to try it as part of the experience....ewwwww!  lol  gluten-free is quite popular in South Africa...they call in the Banting diet.  Maybe they know it up north as well?  I would definitely stay away from chips because you have no idea what else has been in the same fryer oil.  One chicken nugget and you're toast.  I've never had a problem with rice.  Have a great trip...Africa is amazing!  
    • Hi Jan, Have you had any allergy testing? Could be you are allergic to something else. My daughter is Celiac and was still getting ill & feeling awful after going gluten-free. Found out through several blood tests that she is allergic to shrimp, wheat, yeast & sesame seeds. Many GlutenFree foods contain the things she is allergic too so her food choices just had to change. But she was recently diagnosed with EoE from her lastest endoscopy after being  sick with horrible acid.  Go have more testing with a GI doctor that is current with celiac disease and it's many different symptoms. Knowledge is a powerful weapon and you need to try and stay positive. You have many people who you can turn to and a big Celiac family that is always ready to listen & help where they can! Welcome to the forum 👍🏻
    • Hi Janst, It might help to simplify your diet.  Eliminate possibilities of gluten sneaking into your diet.  It's pretty easy to make mistakes with your diet when transitioning to gluten-free eating.  I suggest eating only whole foods for a 6 month period until you get used to things.  Cross contamination is another thing to look out for.  Shared peanut butter, butter, or other condiments can spread gluten in small amounts and make us sick.  Sometimes medicines or vitamins can have gluten, even teas and spices are possibilities.  Kissing a person who has eaten gluten recently can cause problems too. Keep trying because every time you make a mistake you learn something. You might want to try stopping all dairy for a while to see if that helps also. And welcome to the forum
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member