Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Should I Cheat On My Gf Diet?


Kateteich

Recommended Posts

Kateteich Newbie

Ok, like I said earlier today, I'm 9 days gluten-free.  I feel better honestly, but I'm wondering if I need to go "cold turkey" gluten-free, or if I can "ease into this eating thing"

 

What I'm really asking is "Can I cheat on this diet, and how sorry will I be when I do?"

 

I almost caved the other day when my co-workers were all eating pizza and cookies.... I know I will break down at some point.

 

How much wheat is too much?  After all, I ate wheat products for 50 years, and I have only been sick for 10 years....

 

- Any advice?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Don't cheat. Even if you do not have obvious symptoms when you accidentally encounter gluten during these early days, intentionally ingesting gluten will delay healing and can cause more problems down the road.

Celiac centers recommend those with celiac disease ingest less than 20ppm.

Edited to add...above is if you have celiac disease.

Also...we all eat yummy pizza, baked goods etc...ours our simply not destroying our small intestine :D

Link to comment
Share on other sites
LauraTX Rising Star

Have you been diagnosed with Celiac disease, or are you eating gluten free for another reason?

 

With Celiac and Non-Celiac Gluten Intolerance (NCGI for short), the gluten-free diet needs 100% commitment.  There are great gluten-free alternatives to things like cookies... it is just a matter of getting through the transition.

Link to comment
Share on other sites
kareng Grand Master

If you are just doing the diet for fun or something... Cheat all you want. I would just appreciate it if you wouldn't go to restaurants and say you need the gluten free meal and then eat the non- gluten-free bread or dessert. That just makes it harder for us Celiacs that need a restaurant to take us seriously.

If you have Celiac disease, then cheating is bad....really bad. I would think feeling sick for 10 years would be enough? You would be tired if it?

Open Original Shared Link

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve.

Link to comment
Share on other sites
IrishHeart Veteran

I just cut to the chase on this "should I cheat?" question:

 

 

NO!

Link to comment
Share on other sites
Kateteich Newbie

Ok, like I said earlier today, I'm 9 days gluten-free.  I feel better honestly, but I'm wondering if I need to go "cold turkey" gluten-free, or if I can "ease into this eating thing"

 

What I'm really asking is "Can I cheat on this diet, and how sorry will I be when I do?"

 

I almost caved the other day when my co-workers were all eating pizza and cookies.... I know I will break down at some point.

 

How much wheat is too much?  After all, I ate wheat products for 50 years, and I have only been sick for 10 years....

 

- Any advice?

Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago.

Anyway, I'm going to try my best, and thank you all for the wonderful advice!

Link to comment
Share on other sites
nvsmom Community Regular

Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago.

Anyway, I'm going to try my best, and thank you all for the wonderful advice!

Those first weeks are the hardest, plus some people have a withdrawal (from the sugars or starches... I don't know) which makes one feel worse with extra fatigue headaches and such. Add to that the fact that you probably are not feeling a whole bumch better yet, and the first month is tough.

 

Stay gluten-free. You'll be happier in the long run.  Best wishes.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



user001 Contributor

I actually agree with Karen about the eating out thing.

 

If you think you have celiac disease then go back on gluten and get tested, get the endoscopy. See what 50 years of gluten has done to your gut. That really brought it home for me. If you don't have celiac disease then cheat all you want, I suppose? But I wouldn't until you know your status. If people think this disease is a breeze, it's not. So get diagnosed so you know if you have to commit for life. 

 

I really eat quite a bit of delicious foods, but only in my safe, gluten free apartment. Going out is usually a nightmare, but cheating sets me back too much.

Link to comment
Share on other sites
IrishHeart Veteran

I actually agree with Karen about the eating out thing.

 

If you think you have celiac disease then go back on gluten and get tested, get the endoscopy. See what 50 years of gluten has done to your gut. That really brought it home for me. If you don't have celiac disease then cheat all you want, I suppose? But I wouldn't until you know your status. If people think this disease is a breeze, it's not. So get diagnosed so you know if you have to commit for life. 

 

I really eat quite a bit of delicious foods, but only in my safe, gluten free apartment. Going out is usually a nightmare, but cheating sets me back too much.

 

 

She had already said she has diagnosed celiac (see above) 

 

"Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a 

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago. "

Link to comment
Share on other sites
luvs2eat Collaborator

I'm with the others... cheating is never a good thing. When I was diagnosed 2 years before, and had the occasion to eat a huge hunk of (real) bread  it was a no-brainer... keep the kids safe!! 

Link to comment
Share on other sites
user001 Contributor

Was it endoscopy or blood or both? I feel that the endoscopy really made it real for me, because the doc could tell how bad it was.

Link to comment
Share on other sites
IrishHeart Veteran

Was it endoscopy or blood or both? I feel that the endoscopy really made it real for me, because the doc could tell how bad it was.

 

 

? I do not know why it should  matter. She has a celiac DX and she should not cheat. Period. 

Link to comment
Share on other sites
user001 Contributor

? I do not know why it should  matter. She has a celiac DX and she should not cheat. Period. 

oh ok, because that was why my doctor urged me to have the endoscopy even though my antibodies were off the charts. I just assumed it was standard procedure.

Link to comment
Share on other sites
LauraTX Rising Star

Good to hear you have a solid diagnosis.  If you feel like you are getting a bit of a knee jerk reaction, it is because the people here feel very passionately about making sure everyone has the info that can make them the most healthy  :wub:  Some have even converted from the dark cheater side after they kept getting sick!  But there are no off limits questions :)  

 

I was a huge carb addict and when I first had to go gluten-free I had the worst time ever.  Before diagnosis all I ate was pasta, bread, breaded stuff... it was terrible.  Eventually, everyone's timeframe is different, but you will just wake up and realize you are over the hump of terribleness.  And although it may take a good while to heal up, there WILL be a revelation point at some time in your future where you feel better, and it will all be worth it! :)   You can make your own awesome gluten-free cookies, we can give you recipes :D Just hang in there  B)

Link to comment
Share on other sites
Serielda Enthusiast

Maybe it's because I am still learning. But if you was diagnosed with  celiacs, you need to be gluten free and please for the love of all that is holy say no. I know what that first few days and weeks are like quite vividly. It really wasn't that long ago and I am still in early months of this.  My answer would be oh dear god no, do not do it at all. It can take a small amount and you are ill for  weeks to months stacking toward years  trying to heal from it.  However from what I hear few years ago things was beyond depressing on trying to  work around this nightmare but things have gotten better.  I understand one can feel deprived and hate feeling left out. I have a friend with ADHD, his dr.'s have requested for him to make lifestyle changes, that makes him feel alienated by not taking part in some things.Our peers and fitting in and approval can be a real joy squealing about how awesome things are that we can't do. My friend always does fall off the wagon and his work performance still suffers. With myself I know better as I do not like what feeling glutened feels like. It feels bizarre and well freaks me out by how horrible I feel.  I am not trying to enable anyone, but I will state this. If I did not have to do this and be so critical on everything I eat or drink or how clean the items are ( yes improperly washed items in kitchens can nail you too) .  For myself after diagnosis it wasn't just going on a diet, because diets allow for cheating and do complete a life cycle on how long you are on it. For one who is  gluten intolerant or has celiacs its not a diet but a whole lifestyle change. 

Ok, like I said earlier today, I'm 9 days gluten-free.  I feel better honestly, but I'm wondering if I need to go "cold turkey" gluten-free, or if I can "ease into this eating thing"

 

What I'm really asking is "Can I cheat on this diet, and how sorry will I be when I do?"

 

I almost caved the other day when my co-workers were all eating pizza and cookies.... I know I will break down at some point.

 

How much wheat is too much?  After all, I ate wheat products for 50 years, and I have only been sick for 10 years....

 

- Any advice?

Link to comment
Share on other sites
user001 Contributor

Good to hear you have a solid diagnosis.  If you feel like you are getting a bit of a knee jerk reaction, it is because the people here feel very passionately about making sure everyone has the info that can make them the most healthy  :wub:  Some have even converted from the dark cheater side after they kept getting sick!  But there are no off limits questions :)

 

I was a huge carb addict and when I first had to go gluten-free I had the worst time ever.  Before diagnosis all I ate was pasta, bread, breaded stuff... it was terrible.  Eventually, everyone's timeframe is different, but you will just wake up and realize you are over the hump of terribleness.  And although it may take a good while to heal up, there WILL be a revelation point at some time in your future where you feel better, and it will all be worth it! :)   You can make your own awesome gluten-free cookies, we can give you recipes :D Just hang in there  B)

I have the most amazing brownie recipe that im fine tuning if you like that sort of thing. also coconut macaroons.

Link to comment
Share on other sites
GottaSki Mentor

Thanks again, and I' m sorry if that question offended some, but I am sure I am not the only person that wonders these things, No this isn't a Fad diet for me. I have probably had this disease for 10 + years! but I was only diagnosed 9 days ago. I finally got so bad that I went to a

Gastrointerologist, and he had me tested for celiac's, the tests came back positive 9 days ago.

Anyway, I'm going to try my best, and thank you all for the wonderful advice!

 

In my opinion you owe no one an apology.  You asked an honest question that has a simple answer.  Since you are diagnosed with Celiac Disease you must do everything you can to avoid gluten in this gluten filled world.  Once you learn, the world doesn't seem gluten filled...but the learning curve is tough.

 

Hang in there :)

Link to comment
Share on other sites
Serielda Enthusiast

Could you send me the recipe for the macaroons?  I love them and honestly the ones I do get that are gluten-free are a bit pricey at the grocery I go to by my house for a tiny tiny little bag of them. Thanks in advance.

I have the most amazing brownie recipe that im fine tuning if you like that sort of thing. also coconut macaroons.

Link to comment
Share on other sites
BlessedMommy Rising Star

It will get a lot easier in time. Hang in there!

 

Others have given you great advice, the only part I would like to add to the original part is that celiac has a lot of disorders that go with it. You honestly never know what direction your symptoms can go. I never dreamed that I would have a mini-stroke on gluten!

 

These days honestly I can look at other people eating cake and it has no effect on me. None. In fact I'm glad that I have a medical excuse not to eat dessert at most places, it's probably what's kept me from gaining weight. LOL!

 

Stock up with some safe yummy gluten-free cookie ingredients and other staples and you'll get some safe treats figured out in no time. I feel that I've become a much better cook since I went gluten-free.

 

In fact, a few months ago, I brought gluten-free doughnuts to a gathering to share and my doughnuts got eaten a lot faster than the regular gluten ones.  :D

Link to comment
Share on other sites
realityrain Newbie

I cheated at the beginning. A lot. I wasn't yet diagnosed with Celiac but I knew gluten was a problem in my body. I still cheated. And I got really, really sick. Eventually it just wasn't worth it anymore. Three months ago I had to get very strict with my diet and figure out all of the foods that were causing me issues, not just gluten. It was very hard at first. About two weeks ago though, I told my mom that I felt like it was all of a sudden a lot easier and I was feeling so much better. She said that it was because I had finally made it to the other side. To the side of the disease where I didn't feel sick all the time, where I wasn't in pain, where I could think! 

 

It isn't easy to make it to the other side, everyone on this forum knows that, but once you get there it will be worth it! It has been worth it to me above and beyond, worth not eating what the others are eating, worth not being able to easily eat out, worth learning a whole new way of life. I too, have been sick for over a decade. You begin to think that being sick is normal but it's not. You can do this! 

Link to comment
Share on other sites
user001 Contributor

I cheated at the beginning. A lot. I wasn't yet diagnosed with Celiac but I knew gluten was a problem in my body. I still cheated. And I got really, really sick. Eventually it just wasn't worth it anymore. Three months ago I had to get very strict with my diet and figure out all of the foods that were causing me issues, not just gluten. It was very hard at first. About two weeks ago though, I told my mom that I felt like it was all of a sudden a lot easier and I was feeling so much better. She said that it was because I had finally made it to the other side. To the side of the disease where I didn't feel sick all the time, where I wasn't in pain, where I could think! 

 

It isn't easy to make it to the other side, everyone on this forum knows that, but once you get there it will be worth it! It has been worth it to me above and beyond, worth not eating what the others are eating, worth not being able to easily eat out, worth learning a whole new way of life. I too, have been sick for over a decade. You begin to think that being sick is normal but it's not. You can do this! 

That made me tear a bit. I'm still working on making it to the other side!

Link to comment
Share on other sites
  • 1 month later...
MyCeliacKid Newbie

I'm really disappointed your doctor didn't cover this better with you.

 

Celiac Disease doesn't necessarily begin at birth. You've "only" been sick for 10 years, most likely because that's when your trigger occurred. But it did, and you now have Celiac for the rest of your life. My daughter ate wheat great for 9 years of her life before it made her ill. That's how Celiac works: you have the genetic predisposition, and you have the gluten in your diet, and it lays in wait. Somehow (no one knows all the possible ways), a trigger or stressor occurs, and then the Celiac begins.

 

There is NO cheating on your diet. As her GE put it, if she even gets a single macaroni noodle, she will be sick. How much wheat is too much? Any amount.

Link to comment
Share on other sites
cap6 Enthusiast

Cheat = sick.   And you set back the healing process. 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...