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Dr. And Pharmacy Insanity

trust issues uneducated inexcusable dr.s vist flustered

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#1 Serielda

 
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Posted 09 July 2014 - 10:53 PM

Ok, so Wednesday I had to go see a Dr. at an urgent care facility( ER was way to busy, and seemed a bit much for the injury I had) over a sprained ankle and muscles in my leg.  While trying to  request new paper work, the  girl behind the counter states "Oh, just tell the nurse". Strike one, in my book if a patient needs to update their info you should  freaking listen. The last time I was at this location I was not diagnosed yet, and felt it was important they should have this documented. 

Strike two happens when I tell the nurse,who was very nice, you could still see the doesn't get it look in their eyes, so I wound up  have to speak to the Dr.  Again this is at an urgent care facility but here was to me the  near finalie The Dr. states He has no idea what gluten is, but would tell the pharmacy to ensure my meds was handled to be gluten free.

I am so frustrated, I do not want to take anything that could be CC'd like most of us would not want to have to contend with on top of the  leg issue I had. So then I look down at my supposedly updated discharge papers, no record listed of  celiac's or request for gluten free  items to be used at the pharmacy. Again the meds given was not seriously needed  like an antibiotic or anything but the nonchalant behavior really  disturbed me. Has anyone else experienced this bull in medical facilities? I am  outraged, that people have to pay  so much money to clueless individuals. Strike three was the Walmart by my house,that is how I learned that the pharmacist himself did not know what it meant to make sure my meds had not came in contact with anything potentially  exposed to gluten.  I honestly can't recall having been so upset at the lack of not knowing from people who of all should know bloody better.  I know sometimes my expectations can be high, but this seemed way to negligent for our men and women in white coats we trust to heal us.

 

This brings me to a topic that seems hot anywhere dealing with gluten free and celiacs, that since our sickness is so  freaking hilarious to comedians like Fallon, Kimmel, and crew  that no one  is taking it seriously . I find it very tacky that the people making the jokes are just as uninformed as their targets they interview.  I knew things was bad but this was borderline gross negligence for people what I experienced Wednesday. I could expect this out of  a restaurant but from med experts. At least I can say the Dr. and staff who diagnosed me had a more  empathic and understanding of what I am having to deal with. I guess they set the bar quite high and when other med professionals who do not get it it makes me feel well upset mixed with a side of confused. Does anyone know of any pharmacies that are chains that are quite strict about handling product to ensure people do  not come in contact with things they shouldn't. Back in my hometown we had a small chain that was quite awesome at that and catching inconsistencies that the Dr. missed to protect the patient from unpleasant effects. Such as a incident with a  extended family member who was given meds that could raise his insulin quite high and he is a diabetic type 2.

 

edited to be fair about one  individual at the office.

 One point I do want to make is one of the nurses I did speak with their yesterday did apologize about the  situation, and did seem to understand that she was dealing with something quite serious. So I can honestly say not everyone in that office was clueless. 


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#2 Adalaide

 
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Posted 10 July 2014 - 03:18 AM

There isn't anything a doctor can do about your meds. Yes, celiac is an important part of our medical record but it just isn't always something that is important or relevant to a situation. The doctor will prescribe what he needs to and that's all they can do. It is up to us, as individuals, to make sure we are getting gluten free medications. Some work with a pharmacist they feel they can have a good relationship with and let them check. There is approximately a snowball's chance in hell I'd trust my health to a Walmart employee. Pharmacist or not. When I get a prescription, 100% of the time, I either go to or call the pharmacy and ask for the name of the manufacturer that they would use to fill it. In general, you should also ask for the NDC number because most manufacturers will ask you for this. With Walmart, the NDC isn't correct and you'll instead need to ask them for the pill imprint information so you can describe the pill to the person on the phone. (I have no idea why Walmart doesn't have appropriate NDCs but I've learned to live with it.) I used to joke that I have more pharmaceutical company's contact information in my phone than friends. :lol: At any rate, I call the manufacturer and ask if the drug is gluten free. Nearly every time they say something to the effect of "we don't use any gluten containing ingredients in this drug but because we don't test the final product we don't make any gluten free claims blah blah blah" which is a CYA statement. They are just trying to make sure no one is going to sue them. Because of the strict guidelines in place and how serious it would be if CC did occur, I've never been worried about it. If there were CC happening it could kill people because of drug interactions, so it just isn't going to be a problem.

 

I'm not saying everything was handled for you was okay. You were treated poorly and that is never okay. But please remember that this is a disease that doctors really can't treat at all. All they can do is tell us to stop eating gluten and ship us off. Treatment is completely in our hands once we are diagnosed. Because of the seriousness of the disease, I don't place my trust in a group of people to simply told me to go home and google how to be gluten free. It seems very overwhelming at first, but it all becomes second nature and you'll shrug things like this off because we can't expect the world to conform to knowing enough to actually helpful.


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"You don't look sick or anything"

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#3 GF Lover

 
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Posted 10 July 2014 - 04:07 AM

Addy is correct.  And also, if you have a renewable script, check to make sure the Pharmacy did not get it from a different supplier.  If they did, you have to check again.  You can always request the supplier stay the same but it doesn't always mean that they will do it co check every time.

 

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#4 Adalaide

 
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Posted 10 July 2014 - 04:30 AM

Addy is correct.  And also, if you have a renewable script, check to make sure the Pharmacy did not get it from a different supplier.  If they did, you have to check again.  You can always request the supplier stay the same but it doesn't always mean that they will do it co check every time.

 

Colleen

 

Ah yes, that's something else we have to be on top of. And it has to be checked before you pay for your meds because they can't take them back. Every time I refill I stand there and ask them to verify the manufacturer to me. I also call the manufacturers of the drugs I take regularly every year on my celiac birthday just to make sure they're still gluten free.


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#5 dilettantesteph

 
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Posted 10 July 2014 - 04:45 AM

Some information about gluten in prescription medications: http://www.celiaccen...g/gluteninmeds/


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#6 SMRI

 
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Posted 10 July 2014 - 06:03 AM

uggggg, something else I have to look into...it never occurred to me that my meds could be an issue....


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#7 Serielda

 
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Posted 10 July 2014 - 09:38 AM

 I do understand that, and it could have just been that  facility other healthcare  locations in my city are great when working with people. It was just shocking to see a particular facility to behave so nonchalant. I did look at their reviews over night and they did not receive good reviews, I am just glad I came in for a leg and foot issue. The issue again also could explain certain things was conducted they way they was. 

There isn't anything a doctor can do about your meds. Yes, celiac is an important part of our medical record but it just isn't always something that is important or relevant to a situation. The doctor will prescribe what he needs to and that's all they can do. It is up to us, as individuals, to make sure we are getting gluten free medications. Some work with a pharmacist they feel they can have a good relationship with and let them check. There is approximately a snowball's chance in hell I'd trust my health to a Walmart employee. Pharmacist or not. When I get a prescription, 100% of the time, I either go to or call the pharmacy and ask for the name of the manufacturer that they would use to fill it. In general, you should also ask for the NDC number because most manufacturers will ask you for this. With Walmart, the NDC isn't correct and you'll instead need to ask them for the pill imprint information so you can describe the pill to the person on the phone. (I have no idea why Walmart doesn't have appropriate NDCs but I've learned to live with it.) I used to joke that I have more pharmaceutical company's contact information in my phone than friends. :lol: At any rate, I call the manufacturer and ask if the drug is gluten free. Nearly every time they say something to the effect of "we don't use any gluten containing ingredients in this drug but because we don't test the final product we don't make any gluten free claims blah blah blah" which is a CYA statement. They are just trying to make sure no one is going to sue them. Because of the strict guidelines in place and how serious it would be if CC did occur, I've never been worried about it. If there were CC happening it could kill people because of drug interactions, so it just isn't going to be a problem.

 

I'm not saying everything was handled for you was okay. You were treated poorly and that is never okay. But please remember that this is a disease that doctors really can't treat at all. All they can do is tell us to stop eating gluten and ship us off. Treatment is completely in our hands once we are diagnosed. Because of the seriousness of the disease, I don't place my trust in a group of people to simply told me to go home and google how to be gluten free. It seems very overwhelming at first, but it all becomes second nature and you'll shrug things like this off because we can't expect the world to conform to knowing enough to actually helpful.

 


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#8 bsushibaby

 
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Posted 10 July 2014 - 10:15 AM

This is exactly what just happened to me.  The pharmacy changed suppliers and I called the new supplier and was told none of the fillers had gluten but they don't test for gluten.  I was nervous but took the new one anyway...6 days later my stomach was in pain for 7 or 8 days straight.  I went back to the pharmacy and explained what was happening and they agreed to call the old supplier and get me another 90 days worth so I can find another pharmacy that will provide the same for me, which I have luckily.  So be careful if suppliers on any of your meds change!


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#9 beth01

 
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Posted 10 July 2014 - 10:53 AM

Hospitals in general don't know a damn thing about Celiac.  When I had my appendix out it was a Friday evening and I got back to my room at 7:30 p.m. starving, I hadn't eaten in two days. The place to order food from was closed so I asked a nurse if they had anything for me to eat.  They have cans of soup and sandwiches, neither of which I could eat.  The nurse said to me " oh, we can just take the meat off the bread" , ahhh no you can't.  They were clueless.  Thankfully I had someone to bring me food.

 

My daughter had tubes put in her ears last week and I talked to two different nurses before we were there to let them know she was Celiac, not to feed her crackers or muffins.  I told the nurse that did our pre-op, and the nurse from post-op.  I gave them the gluten free crackers I had for her.  They still tried to feed her a muffin.  Thankfully she knew enough to tell them she couldn't have it.  I would have been so pissed if she woke up and was out of it and they fed her a muffin.

 

I get my scripts at Walmart, and the pharmacist here is great. He even knows me by face and name, helps me all the time.  He calls manufacturers for me, writes down the names of people he talks to on my script bags and the number he called. I was leery at first, called a couple of numbers and they told me exactly what he did.  Now the days he has off is another story....


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#10 bartfull

 
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Posted 10 July 2014 - 10:57 AM

You've been given good advice about meds, but as for the urgent care facility, they should be reported IMO. Any time a person wants to update their info and the office doesn't do it, they should be reported. Suppose it was a penicillin allergy or something of that nature and they failed to put it in your chart? You could easily end up dead! I don't know to WHOM it should be reported - AMA? Or maybe the facility is part of a chain and you could go to the head of that chain?


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#11 Serielda

 
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Posted 10 July 2014 - 11:09 AM

Thanks for the warning. I guess my GI being so helpful and stuff again like I stated raised a bar of expectation that sadly most facilities don't rise to. 

Hospitals in general don't know a damn thing about Celiac.  When I had my appendix out it was a Friday evening and I got back to my room at 7:30 p.m. starving, I hadn't eaten in two days. The place to order food from was closed so I asked a nurse if they had anything for me to eat.  They have cans of soup and sandwiches, neither of which I could eat.  The nurse said to me " oh, we can just take the meat off the bread" , ahhh no you can't.  They were clueless.  Thankfully I had someone to bring me food.

 

My daughter had tubes put in her ears last week and I talked to two different nurses before we were there to let them know she was Celiac, not to feed her crackers or muffins.  I told the nurse that did our pre-op, and the nurse from post-op.  I gave them the gluten free crackers I had for her.  They still tried to feed her a muffin.  Thankfully she knew enough to tell them she couldn't have it.  I would have been so pissed if she woke up and was out of it and they fed her a muffin.

 

I get my scripts at Walmart, and the pharmacist here is great. He even knows me by face and name, helps me all the time.  He calls manufacturers for me, writes down the names of people he talks to on my script bags and the number he called. I was leery at first, called a couple of numbers and they told me exactly what he did.  Now the days he has off is another story....

 


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#12 Serielda

 
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Posted 10 July 2014 - 11:11 AM

I am looking into that. And two it could have also been done post visit. I am just used to facilities in my old town that was right on that sort of thing. 

You've been given good advice about meds, but as for the urgent care facility, they should be reported IMO. Any time a person wants to update their info and the office doesn't do it, they should be reported. Suppose it was a penicillin allergy or something of that nature and they failed to put it in your chart? You could easily end up dead! I don't know to WHOM it should be reported - AMA? Or maybe the facility is part of a chain and you could go to the head of that chain?


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#13 Adalaide

 
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Posted 10 July 2014 - 01:53 PM

You've been given good advice about meds, but as for the urgent care facility, they should be reported IMO. Any time a person wants to update their info and the office doesn't do it, they should be reported. Suppose it was a penicillin allergy or something of that nature and they failed to put it in your chart? You could easily end up dead! I don't know to WHOM it should be reported - AMA? Or maybe the facility is part of a chain and you could go to the head of that chain?

 

This is the part that I was thinking was the being treated horribly. I really don't know what can be done about it, but it isn't right. I guess I wouldn't give it too much thought around here. I have choices in urgent care centers. There are 3 I could go to, 2 from the same organization and the last associated with the clinic my doctor is part of. I forget that not everyone has options. Certainly look into what Bartfull said and see who you can report that to, maybe someone higher up in the healthcare organization they're part of?


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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#14 Caitlin94

 
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Posted 10 July 2014 - 04:19 PM

I know the pain too! I've mentioned to several doctors I'm celiac and can't have gluten and they write "allergies: gluten - food" and I have to point it out to them that gluten is in a lot of medications, lotions and sanitizers not just food. Then they're like oh! I never thought about that.

Although this week I went to my new pharmacy and asked them directly if all my meds are gluten-free and they told me to come back that afternoon for them as they're going to call all the manufacturers and make sure. I told them i had no problem calling myself but they insisted it was for my health and it's their responsibility to make sure the medication they prescribe me won't make me sicker. I was actually really surprised!
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#15 StephanieL

 
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Posted 10 July 2014 - 07:48 PM

We get all meds in NEW, UNOPENED bottles whenever we can. They use the same trays and spatulas to count everything all day, all night, week after week , month after month....you get the idea. Pills in multi dose bottles are often large and pills bust open all the time. So if med #1 is gluten-free but passes over a tray where drug #2 was counted you have CC.  Now this is easier with some meds (DS gets inhalers and epi pens which obviously aren't an issue) and his generic synthroid is 100 ct. per bottle BUT that bottles is $11 and has 200 doses for him so it's not an issue.

 

If it is a multi Pt. bottle that you CAN NOT afford all of, ask them to clean the trays and spatulas and to take it from a NEW unopened bottle as they usually have more than one on hand. If not, they should be able to order one and get it to you the following day.


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