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Lymphoid Aggregate In Terminal Ileum


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#1 greenbeanie

 
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Posted 10 July 2014 - 10:41 AM

Does anyone know what it means have a biopsy of the terminal ileum (done during a colonoscopy) show a "lymphoid aggregate"? It says there's no evidence of an inflammatory bowel disease, and that this is benign and not cancerous. So I'm assuming the lymphoid aggregate is nothing too significant, but I'm curious about what it means. Could gluten cause it? 

 

When they did my upper endoscopy last year they only took four samples, with none from the duodenal bulb, and no lymphocyte counts. The GI assured me beforehand that she'd do plenty of biopsies, but I woke up and found out she'd only done four. And I'd been gluten-light for over a decade, then briefly gluten free, then did a six-week gluten challenge leading up to the endoscopy (during which I only had one piece of bread most days because it was making me so miserable and my hair started falling out). So altogether, there were many places where doubt crept in about whether this had really been enough to rule out celiac. I'm sticking to the diet, regardless, as the improvements have been huge and life-changing. But I guess I'm still trying to piece together a coherent explanation of what's going on. The GI also made blatant factual errors about my family history on the colonosopy report, so in general I'm not sure if she's even reading my file or reports carefully. 

 

I guess what I'm really wondering is whether a "lymphoid aggregate" way down at the end of the small intestines could be caused by celiac or NCGS, or whether it's totally unrelated. The procedural report did note that she was able to get the scope up through the colon and into the terminal ileum unobstructed. 

 

 

 

 


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Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosis still unclear after extensive testing: Atypical wheat allergy, severe NCGI, or false negative celiac tests? Doctors disagree.Gluten challenge caused acute gastritis, esophagitis, and angioedema that lasted 4 months and was eventually determined to be a sulfite allergy. Gluten light for 15 years, then gluten free since June 2013.
Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Improved greatly within six months of going gluten-free.


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#2 beth01

 
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Posted 10 July 2014 - 11:11 AM

I had a mass the size of a orange in my mediastinum that I had removed in December of 2010.  It was a mass of lymph cells, all benign.  At the time the doctors really had no clue what caused it.  After my celiac diagnosis my doctor and I were talking and he said it might of had to do with the fact that the lymphatic system releases lymph cells to counter act inflammation and sometimes they can congregate in places where there is a lot of inflammation.  Why they ended up in my chest is a mystery, but I was having a lot of chest, shoulder and back pain for years before that and our digestive system goes from your mouth to anus so it is safe to say that there might be inflammation in those areas as well.  Maybe it is from an inflammatory response in your intestines.  While the report stated there was no inflammatory bowel, that doesn't mean it wasn't inflamed before.  Just a thought.


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Diagnosed April 7th 2014

#3 greenbeanie

 
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Posted 10 July 2014 - 11:58 AM

Wow, that's a big mass you had! Interesting about lymph masses in general - that makes sense. I've been strictly gluten free for over a year, so I wouldn't expect to have active inflammation from gluten anymore, but my endoscopy last year did find inflammation in my esophagus and stomach (plus a hiatal hernia). My tongue also stayed swollen for months after my gluten challenge, and it eventually went most of the way down after I cut out sulfites too. So there certainly has been inflammation in my digestive tract!
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Daughter: Positive tTG-IgA, DGP-IgA, and DGP-IgG. Celiac confirmed by biopsy in June 2013, at age four. Clear gastrointestinal, behavioral, and neurological/sensory symptoms since very early infancy, even when exclusively breastfeeding.

Me: Diagnosis still unclear after extensive testing: Atypical wheat allergy, severe NCGI, or false negative celiac tests? Doctors disagree.Gluten challenge caused acute gastritis, esophagitis, and angioedema that lasted 4 months and was eventually determined to be a sulfite allergy. Gluten light for 15 years, then gluten free since June 2013.
Long history of eczema, chronic diarrhea, steatorrhea, ataxia, peripheral neuropathy, infertility, chronic insomnia, low cholesterol, vitamin deficiencies, and joint pain. Improved greatly within six months of going gluten-free.





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