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Celiac And Tia/stroke
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So the only major health problem I have had that celiac didn't answer was a TIA at age 22. Blood work, CT scan, MRI, ambulatory EEG, etc, all showed nothing abnormal, so my health records list it as "idiopathic ataxia of the left side, possibly TIA". Someone posted something about TIA being celiac connected, so I just did done googling. There's a bunch of reports showing up from studies in the past 15ish years, the most recent was published in March of this year and states:

"Celiac disease patients also had a slightly higher risk of stroke..."

(http://consumer.healthday.com/cardiovascular-health-information-20/misc-stroke-related-heart-news-360/briefs-emb-3-29-8am-et-celiac-heart-disease-acc-meeting-release-batch-1103-686235.html)

Question is, does anyone have any more information on the connection? Who on here has had a TIA/Stroke with no known cause?

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I did, as you know from the other thread. 

 

I was 27 years old with no neurological problem history of any kind. I didn't have a history of migraines either. During my gluten challenge, my chronic headaches lead to neurological impairment. I believe that mine was a left brained TIA, since it affected my speech and numbed my right side.

 

The doctors just ran a CT scan which showed nothing abnormal. I went to my family doctor and he said that he absolutely believed that it was gluten connected and that the best thing I could do was to "not eat gluten."

 

My husband was absolutely adamant that I would never eat gluten again. I think that the whole thing scared him to death!

 

At that point, it didn't matter what celiac tests said, even if they were negative or inconclusive, I wasn't going near the stuff!

 

When I stopped the gluten, it took awhile for it to get out of my system, but right away I started feeling better. The headaches started to go away. I didn't have any further TIA symptoms. In about 5 days, I was completely recovered and back to normal and I committed to being gluten free for life. 

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I have had neurological symptoms since I was 7.  When I got older, my migraines got pretty severe.  I have had about 4 "migraines" in my life that have lead to speech impairment and numbness on one side of my body, one episode lasting more than 12 hours of not being able to speak.  I was never diagnosed as having TIA's but I am starting to wonder. The doctors just chalked it up to having a bad migraine, but now after my diagnosis I haven't not gotten one "migraine" in over three months and I was getting them 4 times a week for the six months before my diagnosis.  Makes me wonder if I have ever had a true migraine.

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Having temporary stroke symptoms that last 24 hours or less and don't produce permanent impairment is the definition of a TIA. 

 

I'm glad that you're not getting migraines anymore!

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I had  several TIA's  thirty  years  ago  plus  lifelong  migraines but  didn't  get  dx'd  with  celiac  until 2003....

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I had an unexplained episode of double vision. Since I do get classic migraines, the neurologist finally decided it was a variant of a migraine. This was before I was diagnosed with Celiac and went gluten free. I get far fewer migraines now.

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I haven't had an unexplained migraine since diagnosis. I have had explained scent induced migraines (ppl, please do NOT douse an envelope in perfume then stick it in your mailbox for the carrier to pick up. Spray the letter a time or two, but don't soak the envelope and all in perfume!). But with my TIA, I literally exhibited every stroke sign. I was rushed into the ER to find nothing wrong with typical stroke tests.

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This interests me as before I was diagnosed with celiac disease my bad headaches (which I always suspected were actually migraines because they made me feel sick and I couldn't look at light)  turned into aura migraines without pain.  The first episode I had was the silver flashing lights, kind of a paisley pattern, in both eyes which was then followed by a sort of snow storm where I could still see through but only partially, lasting about 20 minutes.  It was towards the end of a pregnancy and I hadn't a clue what was happening.  I rang family to tell them as I was in the house alone and as I spoke to them I realised my speech was kind of slurred. I thought I was having a stroke.  They took me into hospital to keep an eye on me.  Then, a few weeks after my daughter was born, they did an MRI and apart from a cyst that I had probably been born with found no explanation for the episode, diagnosing it as an aura migraine.   I recently realised I haven't had one since going gluten-free.

 

But I have often wondered at the TIA/migraine connection especially when I talked about how I felt during the first aura episode to a friend of mine who had just had a TIA, who had also experienced the slurred speech. 

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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