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A Celiac Seeking For Answers


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6 replies to this topic

#1 seeker

 
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Posted 03 November 2005 - 07:16 AM

hi all

1-I have been gluten-free for one month, many symptoms have vanished, but my immune system is still weak! I am still so sensitive to any thing little cold , I am as before all the time about to have a sur throut but thanks to not drinking or eating any thing cold at all. and my body is still bad at healing from cuts and infections.

2- I still don't understand the exact mechanism of celiac disease. immune system attacks all strange bodies comes to blood, so why when attacking gluten harm occurs to the villi? does the immune system attack the gluten only while it's been absorped by the villi so damage happens to it? I dont understand.

3- why products like makeups, soaps, shampoos, hairsprays, perfumes, etc..why should be gluten-free ?? how could they reach the intestines?

4- when glutened, how to deal with the problem? for example when I feel pain after eating a hiden gluten will it work to throw up?

thank you all
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#2 seeker

 
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Posted 03 November 2005 - 07:22 AM

I forgot to tell, that the worst my immune system is when I eat fruits!!!!
I can't understand why!!!
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#3 nettiebeads

 
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Posted 03 November 2005 - 07:15 PM

hi all

1-I have been gluten-free for one month, many symptoms have vanished, but my immune system is still weak! I am still so sensitive to any thing little cold , I am as before all the time about to have a sur throut but thanks to not drinking or eating any thing cold at all. and my body is still bad at healing from cuts and infections.

2- I still don't understand the exact mechanism of celiac disease. immune system attacks all strange bodies comes to blood, so why when attacking gluten harm occurs to the villi? does the immune system attack the gluten only while it's been absorped by the villi so damage happens to it? I dont understand.

3- why products like makeups, soaps, shampoos, hairsprays, perfumes, etc..why should be gluten-free ?? how could they reach the intestines?

4- when glutened, how to deal with the problem? for example when I feel pain after eating a hiden gluten will it work to throw up?

thank you all

<{POST_SNAPBACK}>

You need to give the gluten-free more time. You didn't state how long you had been sick before going gluten-free, so we don't know how much damage has been done. Remember celiac disease is a malabsorption problem so your body wasn't getting the nutrients it needs to keep healthy and fight off infections. Slow healing is also a symptom of blood sugar problems, which seem to be common with celiac disease. Remember, autoimmune disorders tend to piggyback onto others. I was dx'd with hypoglycemia back in h.s. days. Healed slow then, and still do.

Your question about why the body attacks itself when gluten is ingested is a good one. And one that the experts don't understand completely either. There are a lot of things not understood about autoimmune diseases and why more research needs to be funded.

You would think that makeup and hair products would be okay, but look at it this way - you are carrying contaminates on your body. How many times a day do you scratch your head, but NOT wash your hands to remove the contaminate. Then pick up a gluten-free chip or something and eat it? Voila! the gluten is now in your body. Or when you wash your hair in the shower, can you keep the water from running down into your eyes, on your lips.... The less exposure, the better is the consensus when it comes to gluten.

And throwing up won't really do anything to stop the glutening. Once you feel the pain that means the gluten protein has reached your small intestine and you can't throw it back up from there. So the best bet is to be very very careful and maintain 100% gluten-free lifestyle. But it really isn't so bad after awhile - It will become second nature and easier to be 100% gluten-free than it is to be sick.
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#4 seeker

 
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Posted 04 November 2005 - 04:41 AM

thanks nettiebeads for responding

Slow healing is also a symptom of blood sugar problems, which seem to be common with celiac disease.


may you give me more details about that??
one time I had symptoms similar to diabetes , very frequent bath, hunger after eating, extreme fatigue after eating so that I can't move! this lasted for three days during them I thought I am 100% diabetic, but when I made tests sugar in blood was ok even during the past 2 months of the test( they can test how blood sugar was during the before months), at that time I was shocked how everything was ok!! and that diabetes symptoms went off after the tests!!!
I was and still sensitive to sugar, it causes anxiety for me and mizerable feeling.
what I am still confused about is that my sensitivity to things healthy and recommended for celiacs and for everybody like citrus fruits and garlic!!
the second day I eat these things I am semi-sur throut although I didn't eat or drink anything cold at all!!! and this is a huge problem how could I increase my immunitiy while I cant eat helpful things to the immune system like citrus fruits which include huge amounts of vitamin C??
what in the hell couses this sensitivity???
should I consider taking vitamin injections? and if I do, how long will it take?? six months until I heal???

And throwing up won't really do anything to stop the glutening. Once you feel the pain that means the gluten protein has reached your small intestine and you can't throw it back up from there.


I don't understand how food can reach small intestines after 10 minutes from eating! what a super protien is the gluten!!!

I read in this site about Additional Things to Beware of to Maintain a 100% Gluten-Free Diet

Toothpaste and mouthwash.
Medicines: many contain gluten.


from the ingredients of many medicines and toothpastes I can't figure if they contain gluten or don't, usually complicated chemical compounds are typed which can't be understood . how to deal with that????

final question:
are anitbiotics safe?? because I have been taking them during the past days for healing from a skin infection, but I am not feeling only that these antibiotics are doing nothing, I am also feeling they are weakening my immune system!!!
I think there is a complicated immune problem in my body so that it can't tolerate citrus fruits,garlic and antibiotics!!!!
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#5 darlindeb25

 
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Posted 04 November 2005 - 05:01 AM

Well Seeker--maybe I can help too. Many celiacs have problems with sugar and it may just be that your system isnt able to deal with sugars yet and going gluten free has just allowed you to realize the problems sugars are causing you--they may always have been a problem, its just the gluten was a bigger problem. Many celiacs have to go dairy free in the beginning and find later they can add it back in. Some celiacs, like me, find that more and more foods cause intolerances over time. Fruits are full of natural sugars and it may just be that you will have to give them up for awhile. Let your body heal from the celiacs and then try adding fruits one at a time. Avoiding gluten at all times is necessary--even with your shampoos, soaps, make-up---especially medications. Many fillers are wheat based or barley. Medications are not regulated in the US like foods are. I am not sure where you are from. I truly think the US is way behind other countries in caring for our celiacs. You cant just ask a pharmacist either--you have to go straight to the companies. There is a company in New Jersey that makes medications for celiacs, I understand they formulate them so they are gluten free. I checked on a vitamin from Puritan Pride and they stated it is gluten free, but when I read the ingreds, it stated barely grass-----their disclaimer is that "they" do not feel there is a significant amount of gluten in the vitamin to consider it gluten---but that isnt up to them. If there isnt enough barley to consider it gluten, then why is there barley at all. If the amount is that insignificant, then it doesnt need to be there to begin with. We celiacs have to constantly be vigilant--only we can take care of us. Deb
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#6 jenvan

 
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Posted 04 November 2005 - 05:11 AM

First off, one month is probably only making a dent in your recovery. Have patience... I work with a nurse who has Celiac, and she says 2 years is often how long it takes for total healing. I have been gluten-free for 8 months and have had some improvement, but still have not seen much improvement in muscle pain and energy levels. It will take your body time...however, I am glad you have received some relief so far.

On products--there is always a risk with lotion, shampoo etc that it could get in your mouth or that you might be one of those who has skin reactions. I suggest getting rid of all gluten-containing products. There are so many brands out there, you can always find a replacement. Think, gluten=enemy.

There is no much you can do to curb a gluten contamination. Patience again...and perhaps some herbal or medical remedies if they help you--like soothing tea or a stool softener temporarily. Those you will have to figure out by experimenting, carefully and reading what others try. But, there is no way to rush the gluten out of your system.

I would suggest you read "Wheat Free, Worry Free" by Danna Korn. This book will educate you on Celiac Disease and all about the gluten-free diet. It will teach you much... Good luck!
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#7 nettiebeads

 
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Posted 04 November 2005 - 08:11 AM

thanks nettiebeads for responding
may you give me more details about that??
one time I had symptoms similar to diabetes , very frequent bath, hunger after eating, extreme fatigue after eating so that I can't move! this lasted for three days during them I thought I am 100% diabetic, but when I made tests sugar in blood was ok even during the past 2 months of the test( they can test how blood sugar was during the before months), at that time I was shocked how everything was ok!! and that diabetes symptoms went off after the tests!!!
I was and still sensitive to sugar, it causes anxiety for me and mizerable feeling.
what I am still confused about is that my sensitivity to things healthy and recommended for celiacs and for everybody like citrus fruits and garlic!!
the second day I eat these things I am semi-sur throut although I didn't eat or drink anything cold at all!!! and this is a huge problem how could I increase my immunitiy while I cant eat helpful things to the immune system like citrus fruits which include huge amounts of vitamin C??
what in the hell couses this sensitivity???
should I consider taking vitamin injections? and if I do, how long will it take?? six months until I heal???
I don't understand how food can reach small intestines after 10 minutes from eating! what a super protien is the gluten!!!

I read in this site about Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
from the ingredients of many medicines and toothpastes I can't figure if they contain gluten or don't, usually complicated chemical compounds are typed which can't be understood . how to deal with that????

final question:
are anitbiotics safe??  because I have been taking them during the past days for healing from a skin infection, but I am not feeling only that these antibiotics are doing nothing, I am also feeling they are weakening my immune system!!!
I think there is a complicated immune problem in my body so that it can't tolerate citrus fruits,garlic and antibiotics!!!!

<{POST_SNAPBACK}>

It could be the sore throat is from acid reflux which may be cause by the malaborptions of food. I'd go down to basic food - chicken and fish are easily digested. Cooked veggies, especially potatoes. There was another post re: what do you eat when you're tummy is recovering from glutening. The hands down winner was mashed potatoes. Antibiotics are hard on the digestive system, period. Your dr may give you something to go with the antibiotic so it won't aggrevate you stomach so bad. celiac disease is a life of learning and patience. The healing takes time. Stay with it and don't get discouraged. And my blood sugar still stays naturally on the low side, but not enough to get my dr worried. But I haven't had a glucose fasting test since I was in h.s. The only time I spilled sugar was when I was preggers. But I know I'm better off w/o sugar. I go way up in energy but the crash afterwards isn't worth it.
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