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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Traveling With Team
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 Hi All! I'm a newbie here and hope you can help me. My extremely gluten sensitive teen daughter is a competitive volleyball player and has been chosen to play on a team in the national high performance championships 1500 miles away.She will be gone for a week and will be eating many meals served family style, etc.  I'm not too concerned about her negotiating eating out when she gets to choose her own individual meal, as she is good at choosing gluten-free items and courteously advocating for her needs with waitstaff. I'm more concerned with the other meals she'll be eating. To keep costs down the team buys ingredients and makes bag lunches and snacks for the girls or gets pizza, subs, etc. Many of the options will not be gluten free and obviously aren't going to work for her. I will of course be asking that they include gluten free options for her, but am concerned that they might not always be available (someone eats her gluten-free cold cuts by mistake, things get cc'ed, etc.) What can I pack/send with her that 1) will stay fresh without refrigeration (for travel), 2) ensure enough nutrition for a demanding play/practice schedule 3) not take up much space (only allowed 2 carry-ons) and 4) be appealing to a teen-aged girl? Thanks for any help/suggestions.

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Well done her! I think maybe she/you should treat the family-style meals (do you mean cooked by coaches/host families or something?) as you would do eating out - making sure those preparing it are fully aware of her needs. Maybe there is something from this site you could send in advance to help them prepare as she'll need to be eating properly to play well :) Is she formally diagnosed with coeliac? Might be worth mentioning if she is, just to add weight to the importance of safe food for her. 

 

I travel a fair bit for running events and my go-to is a jar of peanut butter, a jar of jam (jelly!) and rice cakes/gluten-free crackers. I also take rice/quinoa/gluten-free pasta and a sauce with me if I'll be able to cook. If she can have oats, gluten free oats can make decent porridge if you pour boiling water over them, stir and leave for two minutes (put sugar on it or something, or the peanut butter/jam mixed in). Oh and popcorn! I take tubs of that with me (ideas coming straight from my brain to the page here haha). Can she arrange to buy fresh fruit and veg daily there to supplement all these storecupboard things? Eggs? Good luck!

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Great news and congratulations.

On google search for blueberry bliss energy bar recipe. There's a greatl recipe there for making batches of homemade energy bars. It's quite flexible so if you don't like blueberries swap for other dried fruits or use mixed berries, swap almonds for walnuts etc.

I use these as snacks between meals. They are hugely calorific and come in handy if there aren't any gluten free options available for a few hours.

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    • Formal dinner suggestions
      You could take shrimp cocktail -- just ice it & no need for heating that then. How about following up with some coconut crusted fish with some nice veggies on the side? That could just be nuked to reheat & only takes a minute or two. Make sure when they put it in the microwave that it is covered in case there is gluten lurking on the ceiling of the microwave that can fall down into his food.
    • Formal dinner suggestions
      Hi people. I'd just like some ideas for what I can take for V to a formal family dinner. Unfortunately the restaurant has stated there is no gluten-free safe option so I have to take his meal and dessert.  I can make him gluten-free chocolate cake so thats fine.  But its a three course dinner, and I need to transport it there. Hopefully they will be happy to heat it if needed.  Something really nice and special would be good because everyone else will be eating really  nice meals.  
    • Italian pasta
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    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      It looks like you have a few options that you need to consider pursuing: 1.  Get back to your doctor and tell him to figure out what's wrong with you.  Take a friend because it helps to have someone listen and take notes who is not the patient.  Get copies of all lab reports and doctor notes always and keep a file on yourself to share with future doctors or to monitor your progress.   2.  Ditch this GI and get a new one (SIBO is real per my celiac savvy GI).  Take a friend with you.   3.  You say you are lactose intolerant.  Experiment by going lactose free for six months -- not just a few days.  This will help to promote healing and help determine if milk (lactose or proteins) are causing villi damage and not gluten. 4.  Recognize that some celiacs test NEGATIVE to antibodies.  Per Dr. A. Fasano and Dr. Murrary, based on their clinincal experience and recent data just published, they estimate that 10 to 20 percent of celiac disease patients test negative to the serology screening test. That means consider yourself a celiac and stop your gluten intake for at least six months.  Normal vitamin and mineral levels do not rule out celiac disease.   5.  Recognize that you can multiple reasons for villi damage.  That's why a second consult with a celiac savvy GI is important.   Good luck!    
    • Continued Symptoms
      Try keeping a food and symptom diary.   She could have allergies or intolerances.  But, again, I am not a doctor!  I am healed from celiac disease, but I still react to certain foods and have allergies.  Those will probably never go away as I have been plagued with them all my life (as my siblings have too).  She could have a milk protein intolerance and not just lactose.  Eliminate all dairy too see if it helps.   Speech really normalizes by the age of 8.  I can not say if your public school will evaluate her.  My home-schooled friends are still monitored by the state and receive state funding.  So, I would assume they would receive all the same benefits.  Try calling.  
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