Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Rash, Hives, Dh, I Really Have No Idea.
0

6 posts in this topic

Hello again everyone! It's been a while since I've posted, but I've run in to another problem lately and just wanted some feedback.

 

I was told that I have a casein intolerance and have since completely gone off of dairy. A few days ago, a friend had me try a dessert from Ecuador that had dairy in it (she's gluten free as well, so I knew it was safe as far as that goes). I had just a spoonful, but I've been having rash outbreaks on my elbows, abdominal area, my feet and ankles, and the majority of my back. I feel ridiculous, but I can't tell if it's hive s, DH, or something else. It could be a series of suspiciously placed mosquito bites, despite me staying indoors for the most part...

 

I've taken two benadryl since the night I tried the dessert, and my outbreak hasn't improved at all. Has anyone else run in to this? What do you take to help? 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Without knowing exactly what was in the dessert, it is hard to tell.  Is there any way you can get more info?  They may use different fruits and such in their desserts, so you could have eaten something you never had before and are allergic to.  I have problems reacting to all sorts of things, and I will take two benadryl, then two more 4-6 hours later (per dosing on package) and that way I am very medicated through the night and it seems to help more than one dose does.  If they don't go away soon, you may want to get a doctor to look at them before the weekend starts, they may be able to prescribe something stronger, but usually pushing good old benadryl will help.

 

When I have whole body rashes, I like to take a mildly warm bath with epsom salt and baking soda in it.  Seems to soothe the itchy skin a little bit, especially when your whole body is broken out, you can't bathe in hydrocortisone cream! :)

0

Share this post


Link to post
Share on other sites

So I get crazy rashes too. Mine aren't from foods though. I get contact dermatitis and excema. When I get rashes all over like you describe it's usually from my clothes (either detergent or fabric softener). Talk to a dermatologist or allergist. They can help you with diagnosis and treatment. I have a steroid cream that clears mine right up in a couple of days.

0

Share this post


Link to post
Share on other sites

I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe that it was an auto-immune reaction - that we were only able to treat the symptoms since we could not figure out the cause. About a year later I was diagnosed with celiac - and started my gluten free diet. I have only had one outbreak in the two years since diagnosis. Everything that I have read says that one auto-immune disorder begets another auto-immune disorder. I am hoping that if I can keep my celiac under control that it will minimize or stop the hives.

0

Share this post


Link to post
Share on other sites

I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe that it was an auto-immune reaction - that we were only able to treat the symptoms since we could not figure out the cause. About a year later I was diagnosed with celiac - and started my gluten free diet. I have only had one outbreak in the two years since diagnosis. Everything that I have read says that one auto-immune disorder begets another auto-immune disorder. I am hoping that if I can keep my celiac under control that it will minimize or stop the hives.

It's good to know (for me) that you have to take such hefty meds - I've upped my dose a bit, and that has helped. 

 

I haven't seen a doctor for this because, unfortunately, I've had a lot of doctors treat me like a hypochondriac. I mean literally, years of me complaining about extreme period pain, and no communication was given to me about what it could be. No tests, nothing. I had a bad doctor when I was a teen living with my parents, and that has put me off. Now I have anxiety whenever I go to a new doctor, because sadly, I feel crazy, like they'll assume I'm making this stuff up. I tend to get teary eyed when talking to a new doctor because my anxiety levels get so high, and that's not like me. 

 

I did seek help from a GI doctor recently (a month or so ago) due to a long term bout of stomach pain after every meal, and all she did was take a blood test to see if I had ingested Celiac. According to multiple people on this site, blood tests are almost like trying to take a blood test for arthritis - aka, yes, it has signs, but that is just a really roundabout way of looking for the actual problem. 

 

Basically I'm a little lost. Would it be more beneficial for me to see an allergist or a Celiac specialist? Honestly, I am terrified that if I see a Celiac specialist, they'll have me eat gluten for the biopsy. I just.... I don't know if I can deal with that. I work a lot, and I'm trying to get a promotion, and can't perform well at all when I've been glutened. I haven't even been diagnosed with an intolerance, just IBS. My blood tests (I've had 2 now) always come back negative. Not to mention the fact that I work at a very low income job and can only afford so many different kinds of tests. 

 

How do all of you deal with the doctors? With the various health problems? I'm so tired of self diagnosing, but I feel like I don't have good resources in the are. 

0

Share this post


Link to post
Share on other sites




It's good to know (for me) that you have to take such hefty meds - I've upped my dose a bit, and that has helped.

I haven't seen a doctor for this because, unfortunately, I've had a lot of doctors treat me like a hypochondriac. I mean literally, years of me complaining about extreme period pain, and no communication was given to me about what it could be. No tests, nothing. I had a bad doctor when I was a teen living with my parents, and that has put me off. Now I have anxiety whenever I go to a new doctor, because sadly, I feel crazy, like they'll assume I'm making this stuff up. I tend to get teary eyed when talking to a new doctor because my anxiety levels get so high, and that's not like me.

I did seek help from a GI doctor recently (a month or so ago) due to a long term bout of stomach pain after every meal, and all she did was take a blood test to see if I had ingested Celiac. According to multiple people on this site, blood tests are almost like trying to take a blood test for arthritis - aka, yes, it has signs, but that is just a really roundabout way of looking for the actual problem.

Basically I'm a little lost. Would it be more beneficial for me to see an allergist or a Celiac specialist? Honestly, I am terrified that if I see a Celiac specialist, they'll have me eat gluten for the biopsy. I just.... I don't know if I can deal with that. I work a lot, and I'm trying to get a promotion, and can't perform well at all when I've been glutened. I haven't even been diagnosed with an intolerance, just IBS. My blood tests (I've had 2 now) always come back negative. Not to mention the fact that I work at a very low income job and can only afford so many different kinds of tests.

How do all of you deal with the doctors? With the various health problems? I'm so tired of self diagnosing, but I feel like I don't have good resources in the are.

MissHaberdasher...I've lost faith in doctors at this point. That's a hard place to be. I used to have such respect for them. It wouldn't be a bad idea though to go to an allergist to see if maybe you have other food allergies. Maybe find out the ingredients in that dessert first so you can tell the doctor what you ate.
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,511
  • Topics

  • Posts

    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,423
    • Most Online
      1,763

    Newest Member
    Kimmieellis
    Joined