Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Rash, Hives, Dh, I Really Have No Idea.
0

6 posts in this topic

Hello again everyone! It's been a while since I've posted, but I've run in to another problem lately and just wanted some feedback.

 

I was told that I have a casein intolerance and have since completely gone off of dairy. A few days ago, a friend had me try a dessert from Ecuador that had dairy in it (she's gluten free as well, so I knew it was safe as far as that goes). I had just a spoonful, but I've been having rash outbreaks on my elbows, abdominal area, my feet and ankles, and the majority of my back. I feel ridiculous, but I can't tell if it's hive s, DH, or something else. It could be a series of suspiciously placed mosquito bites, despite me staying indoors for the most part...

 

I've taken two benadryl since the night I tried the dessert, and my outbreak hasn't improved at all. Has anyone else run in to this? What do you take to help? 

0

Share this post


Link to post
Share on other sites


Ads by Google:

Without knowing exactly what was in the dessert, it is hard to tell.  Is there any way you can get more info?  They may use different fruits and such in their desserts, so you could have eaten something you never had before and are allergic to.  I have problems reacting to all sorts of things, and I will take two benadryl, then two more 4-6 hours later (per dosing on package) and that way I am very medicated through the night and it seems to help more than one dose does.  If they don't go away soon, you may want to get a doctor to look at them before the weekend starts, they may be able to prescribe something stronger, but usually pushing good old benadryl will help.

 

When I have whole body rashes, I like to take a mildly warm bath with epsom salt and baking soda in it.  Seems to soothe the itchy skin a little bit, especially when your whole body is broken out, you can't bathe in hydrocortisone cream! :)

0

Share this post


Link to post
Share on other sites

So I get crazy rashes too. Mine aren't from foods though. I get contact dermatitis and excema. When I get rashes all over like you describe it's usually from my clothes (either detergent or fabric softener). Talk to a dermatologist or allergist. They can help you with diagnosis and treatment. I have a steroid cream that clears mine right up in a couple of days.

0

Share this post


Link to post
Share on other sites

I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe that it was an auto-immune reaction - that we were only able to treat the symptoms since we could not figure out the cause. About a year later I was diagnosed with celiac - and started my gluten free diet. I have only had one outbreak in the two years since diagnosis. Everything that I have read says that one auto-immune disorder begets another auto-immune disorder. I am hoping that if I can keep my celiac under control that it will minimize or stop the hives.

0

Share this post


Link to post
Share on other sites

I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe that it was an auto-immune reaction - that we were only able to treat the symptoms since we could not figure out the cause. About a year later I was diagnosed with celiac - and started my gluten free diet. I have only had one outbreak in the two years since diagnosis. Everything that I have read says that one auto-immune disorder begets another auto-immune disorder. I am hoping that if I can keep my celiac under control that it will minimize or stop the hives.

It's good to know (for me) that you have to take such hefty meds - I've upped my dose a bit, and that has helped. 

 

I haven't seen a doctor for this because, unfortunately, I've had a lot of doctors treat me like a hypochondriac. I mean literally, years of me complaining about extreme period pain, and no communication was given to me about what it could be. No tests, nothing. I had a bad doctor when I was a teen living with my parents, and that has put me off. Now I have anxiety whenever I go to a new doctor, because sadly, I feel crazy, like they'll assume I'm making this stuff up. I tend to get teary eyed when talking to a new doctor because my anxiety levels get so high, and that's not like me. 

 

I did seek help from a GI doctor recently (a month or so ago) due to a long term bout of stomach pain after every meal, and all she did was take a blood test to see if I had ingested Celiac. According to multiple people on this site, blood tests are almost like trying to take a blood test for arthritis - aka, yes, it has signs, but that is just a really roundabout way of looking for the actual problem. 

 

Basically I'm a little lost. Would it be more beneficial for me to see an allergist or a Celiac specialist? Honestly, I am terrified that if I see a Celiac specialist, they'll have me eat gluten for the biopsy. I just.... I don't know if I can deal with that. I work a lot, and I'm trying to get a promotion, and can't perform well at all when I've been glutened. I haven't even been diagnosed with an intolerance, just IBS. My blood tests (I've had 2 now) always come back negative. Not to mention the fact that I work at a very low income job and can only afford so many different kinds of tests. 

 

How do all of you deal with the doctors? With the various health problems? I'm so tired of self diagnosing, but I feel like I don't have good resources in the are. 

0

Share this post


Link to post
Share on other sites




It's good to know (for me) that you have to take such hefty meds - I've upped my dose a bit, and that has helped.

I haven't seen a doctor for this because, unfortunately, I've had a lot of doctors treat me like a hypochondriac. I mean literally, years of me complaining about extreme period pain, and no communication was given to me about what it could be. No tests, nothing. I had a bad doctor when I was a teen living with my parents, and that has put me off. Now I have anxiety whenever I go to a new doctor, because sadly, I feel crazy, like they'll assume I'm making this stuff up. I tend to get teary eyed when talking to a new doctor because my anxiety levels get so high, and that's not like me.

I did seek help from a GI doctor recently (a month or so ago) due to a long term bout of stomach pain after every meal, and all she did was take a blood test to see if I had ingested Celiac. According to multiple people on this site, blood tests are almost like trying to take a blood test for arthritis - aka, yes, it has signs, but that is just a really roundabout way of looking for the actual problem.

Basically I'm a little lost. Would it be more beneficial for me to see an allergist or a Celiac specialist? Honestly, I am terrified that if I see a Celiac specialist, they'll have me eat gluten for the biopsy. I just.... I don't know if I can deal with that. I work a lot, and I'm trying to get a promotion, and can't perform well at all when I've been glutened. I haven't even been diagnosed with an intolerance, just IBS. My blood tests (I've had 2 now) always come back negative. Not to mention the fact that I work at a very low income job and can only afford so many different kinds of tests.

How do all of you deal with the doctors? With the various health problems? I'm so tired of self diagnosing, but I feel like I don't have good resources in the are.

MissHaberdasher...I've lost faith in doctors at this point. That's a hard place to be. I used to have such respect for them. It wouldn't be a bad idea though to go to an allergist to see if maybe you have other food allergies. Maybe find out the ingredients in that dessert first so you can tell the doctor what you ate.
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,113
    • Total Posts
      919,443
  • Topics

  • Posts

    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,151
    • Most Online
      1,763

    Newest Member
    Ayryil
    Joined