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Question: Sudden Dizziness, Possible Trace Exposure From Goya Beans?
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Hi Folks,

 

I've been gluten-free since Nov 2011 (when I was diagnosed after testing) and lately discovered that a lot of my lingering digestive issues seem to be connected to the small amounts of dairy I was eating (butter, hard cheese, the occasional yogurt).  Since I couldn't handle most foods, I'm excited to finally start to expand my diet now.  I'm underweight, but the dairy kept my bloated and without an appetite.  Now I'm hungry all the time!

 

I need whole grains of some kind because my high iron gives me blood sugar issues from simple carbs, but as you know, whole grains are often contaminated (and I react to gluten-free oats, probably from the avenin, which some celiacs are sensitive to).  Goya's website claims their blue-label beans are gluten-free (though mysteriously they don't make the same claim for their dry beans), although About.com's Jane Anderson is pretty adamant that gluten-free beans from anything but small farmers is a myth.

 

Anyway, I tried the Goya black beans for a few weeks. It's a fantastic addition to my diet, like, I finally have hope of gaining weight without having blood sugar spikes, maybe even can think of travelling. But...now I routinely wake up late, feeling clumsy, dizzy and stupid for a few hours in the morning.  Folks elsewhere on this site seem to do OK with Goya beans, so I'm wondering if I'm crazy and imagining things or what.   

 

I've ordered some Eden Foods certified gluten-free canned beans and some EZ Gluten tests, but these will take 1-2 months to get to me, because I'm living overseas on a US base.  So I'm checking to see if you all have any thoughts on this in the meantime.  Apart from the beans, I'm just eating my usual diet of whole foods that I prepare myself. My kitchen is shared and contaminated, but I have my own area and equipment, and keep my stuff clean and apart.

 

Any experience with these beans, or thoughts on whether this could be a gluten thing?  

 

Thanks!

 

References:

 

About.com: http://celiacdisease.about.com/od/Gluten-Free-Grains/fl/Gluten-Free-Beans.htm

Celiac.com Forums: http://www.celiac.com/gluten-free/topic/102175-goya-canned-beans/

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I just had 3 days of severe vertigo.  I was barely able to walk.  Went to urgent care and there was no diagnosable reason.  The doctor did note there was some fluid in my right ear, but no infection.  Then last night my ears started popping, and the vertigo has gone away.

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Were those canned beans that you tried?  If you are very sensitive you might want to try beans from a gluten-free certified facility.   I noticed early on that I reacted to things that many could tolerate.  Later I found that there were others with this seeming sensitivity to lower gluten levels.  It seemed to me that these people often were the ones with DH and I started reading those posts more and that helped me a lot.  I believe that the tests that you ordered are not very sensitive for barley.  I hope you improve soon.

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I just wanted to say that I had sudden vertigo last summer and for months was quite sure I was being glutened, but despite being strict could not find out what was causing it.  It came on suddenly, my limbs felt distant and disjointed, it was a weird feeling, and I felt that I was continuously walking on board a ship at sea.  I thought I must be suffering from Ataxia.  Eventually I saw an ENT and it was discovered that my C-spine was out and I was suffering from Cervical Dizziness.   It took me a while to work out that actually I had injured my neck picking up my little boy above my head just a couple of days before the dizziness struck.  The dizziness improved dramatically after Christmas, a combination I think of rest and also knowing what was behind it all.   It could well be that something that you are eating is causing all of this but I would advise anyone who cannot pin something down after a while to consult an ENT as dizziness can be very anxiety inducing and if it isn't gluten, there can be many other causes that can be easily (or eventually!) fixed.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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