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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Weird Problem With Acetaminophen
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13 posts in this topic

I am pretty sure my brother has celiac disease, but he's in denial. He keeps asking me if I had symptoms that he has, but when I mention that it's just a blood test to see if he may have it, he's like- I don't know. He has;

Vitamin D deficiency (that's all he knows of, that's all that was tested)

Brain Fog

Gastro Intestinal Issues, heartburn daily

 

Recently he was having a weird itching and burning sensation in his hands and feet and had to visit the ER. He had hurt his knee and been taking Acetaminophen regularly for a few days, the doctors attributed this reaction to the drug. He stopped taking it and hasn't had a problem since. I was curious to know if this is something common for people with celiac disease, I have recently started taking Acetaminophen instead of ibuprofen when I had aches, So I was curious. I am certain he has celiac also, but is refusing or procrastinating on getting tested.

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I have never read a single Pub Med article or seen anything in the hundreds of celiac-related article/books I have read during the last 4 years that discusses tylenol as being a "problem for celiacs".

 

Sounds like a simple adverse reaction to the medicine. 

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Thank you Irish. I had trouble searching for this. 

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As Irish said, it just sounds like he has an allergic sensitivity to the medicine.  Totally separate from Celiac.  Of course, being the sibling of someone with Celiac disease and all those symptoms definitely points to the need for him to get tested.  I also have a sibling who has random GI issues and she just forgets when I tell her she needs to be screened.  At some point I am just going to coax her into giving me permission to make her a GI appt with my doctor and drag her in there since she tends to not get around to things.  I am just waiting for her to be able to financially do it.  Perhaps you could do something like that with your brother?  Get him in to see your doctor who you already know is good.

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While a back up what Irish said, I have not seen any publications on studies or research saying a link, I also have issues with acetaminophen. I get the itching/ burning sensation.....but I also have my heart rate skyrocket with just a 200mg dosage of Tylenol. I do not know why, and doctors can't explain why, but I can't have acetinophen, injected steroids (anaphylactic shock), or Vimovo (given to me for "idiopathic joint pain" if I remember correctly, have to check the records).

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Acetaminophen has been my go-to pain reliever for over a decade. If it was a problem for folks with celiac disease, I would know it by now. You may have an issue with acetaminophen that has nothing to do with celiac disease.

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I think it might be because he has been planning on changing jobs and just made the switch recently so maybe he's waiting for benefits to kick in.

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Call the manufacturer. There are some meds that have gluten. I use a generic acetaminophen that does not have gluten. Advil doesn't have it either, but I have found several brands of ibuprofen that do, so it's possible that there is a generic Tylenol that has it. Better safe than sorry, so I always call and check. I have found a variety of meds that DO have gluten, but none of the packaging showed it.

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I tried to buy ibuprofen today and realized none of them were labeled gluten free! Not the generic or the name brands. I thought that was strange because up till today, I have seen that label on medicines and vitamins pretty frequently. I did buy my tums though because they were on sale and clearly labeled gluten free!

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Oh, I also wanted to note that I was not curious about him being glutened from the medicine, I was wondering if its some allergic reaction that was common for people with celiac disease, I thought it might be possible because of how it is processed through the body or something. I really haven't ever taken it till recently, so I was curious to know if this was something common because if so, i shouldnt take it. Irish answered this for me though.

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Seems the FDA is working on label changes for acetamenophen related to skin reactions.

 

http://www.huffingtonpost.com/2013/08/01/acetaminophen-skin-reactions-warning-fda_n_3691974.html

 

You could also check ask a patient http://www.askapatient.com/

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Advil doesn't have it either,

Per the manufacturers of Advil, phone call earlier this month: "Advil TABLETS are gluten FREE. Advil LIQUIGEL AND CAPLETS and some other formulations are NOT gluten free. At this time, we can only guarantee that our TABLETS are safe for those with celiac and gluten sensitivity."
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"We can only guarantee" -- we only test those ones, and so will not make a statement that would potentially make us liable for an error by a supplier. This is a standard CYA legal disclaimer, and should not be taken to mean that there is actually any gluten in the product.

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    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
    • Could this possibly be related to celiac or a gluten intolerance?
      If you did actually have celiac disease, it can take weeks, months and years to recover from some of your symptoms, especially neurological ones.   Best to get screened for celiac disease.  It's a simple blood test.  Any medical doctor can do it.  But a GI doctor is needed for a diagnosis, since an endoscopy is part of the diagnostic procedure.  BUT you have to be consuming gluten to get accurate results! http://www.cureceliacdisease.org/screening/ http://gi.org/guideline/diagnosis-and-management-of-celiac-disease/ Keep on researching.  I wish you well!    
    • Confused
      Your doctor is woefully mis-informed.  First of all you did get a positive on both (barely on the TTG IGA).  That does not mean you should be referred to a dietician.  You should be referred to a GI to run either the full celiac blood panel (your GP can not order it at Kaiser) and schedule you for an endoscopy to obtain four to six biopsies to confirm celiac disease which is the GOLD standard level of care. Read the research here: http://www.cureceliacdisease.org/screening/ Ask your doctor for a GI referral.  Show them the print out out from the University of Chicago.  Be nice, but they'll do it.   Also, did your GP run a IGA deficiency test?  Do you have those results?   Best to email your doctor.  Reqest a GI referral.  Once it is in writing, your doctor has to act.  Let him know that what is required for a proper diagnosis per leading celiac research centers and the American GI Association. http://gi.org/guideline/diagnosis-and-management-of-celiac-disease/ DO NOT GO GLUTEN FREE UNTIL ALL TESTING IS DONE!  This is so critical.  Otherwise the tests will be invalid.  Then you'll be in diagnostic limboland!   After your GI consult, you can ask to be tested for vitamin and mineral levels.  Spend time learning about celiac disease and the gluten diet.  Learn about cross contamination and hidden sources of gluten. Again, DO NOT GO GLUTEN FREE YET!  You can do anything you like, of course, but get the facts first!     
    • Could this possibly be related to celiac or a gluten intolerance?
      I too have more neuro than gastro symptoms...its so weird. I hope we both find answers soon!
    • Silent Celiac or Non-digestive symptoms
      My celiac diagnosis started with me seeking medical attention for an ongoing migraine problem. This lead to MRI's that showed white spots on my brain which lead to blood work that showed a positive ANA (1:640) and a trip to the rheumatologist. The rheumatologist suggested the biopsy and a referral to a GI specialist after he felt confident that I didn't have lupus. The funny thing is that I don't have severe tummy troubles. I have some bloating occasionally and gas along with differing bowel patterns but that's about it. The most annoying and troublesome symptoms for me are migraines, fatigue and sometimes I get a little achy. My results for the prometheus test were high, blood anti-bodies were present and my biopsy revealed Grade B2 villi damage (the worst classification according to Corazza, Roberts, Ensari). Anyway I guess what I am wondering is how long after being "glutened" will I have a migraine, vitamin deficiency or other neurological symptom so that I will know that I am in trouble? I feel like if I had the tummy trouble to go with this I would know when I have eaten something that has been cross-contaminated. I just want to heal soon and not risk further intestinal damage or lymphoma. Thanks for your reply!
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