Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Lab Interpretation


GrannyPantiesRock

Recommended Posts

GrannyPantiesRock Newbie

Hello everyone. I'm new here. I was tested for celiac disease by my OB/GYN. I was undergoing a fertility workup up after having a miscarriage in January with no success at trying to conceive since. When she saw that I take daily benedry and loratadine for chronic hives on my lips, hands, and feet, she decided to run the test and told me the results were positive. I reported this to my primary care doc and he suggested endoscopy, but I don't really see the point. Positive is positive, right? As I understand it, the blood tests have a high rate of false negative, but not false positive. So what would be the point of endoscopy? I never had GI symptoms anyhow... just hives. Here are my results. Thanks for the unput.

 

Endomysial AB IgA - positive

tTG IgA - 12

Immunoglobulin A QN - 221 (normal)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Welcome to the board.  :)

 

I was dignosed as a celiac with a positive tTG IgA and EMA IgA as well.  The first test is about 95% specific to celiac disease but the second is about 99% specific tp celiac disease.  You are correct, you have celiac disease. 

 

I think doctors like to do the endoscopy on clear cut cases because that's what they were trained to do back in medical school.  Many of them seem to not realize that the biopsy is better used as a tool to help catch those who do not have clear test results, or an unexpected negative, rather than as a third confirmation of the disease.

 

That being said, many find the endoscopy useful because it gives them a starting point in their recovery, so if things do not go well, they can go back and do another biopsy to compare. Others find it easier to stay gluten-free when they have overwwhelming eveidence that they need to change their diets; of course that doesn't always happen as the biopsy misses somewhere between 10 and 20% of all celiacs.

 

It's a personal choice. Do it if you want to have it done or if the doctor wants it done and you agree with that reason, otherwise feel free to skip it -  it won't help with your recovery.

 

The hives were possibly dermatitis herpetifomis. There is a forum around here that focuses on that exlusively - it might be of help to you.

 

Hope you are well soon.

Link to comment
Share on other sites
mjcoelnc Rookie

I used to get hives very badly when I was a kid. All over my body. I saw an allergist for it and it was found out to be that if I have to much salt I break out with hives till this day. I take Zyrtec to help keep the hives away if I getting to much salt in my system either through food or medicines. I have cut down on the salt intake drastically. But I noticed the other day, that I forgot to take my Zyrtec for 2 days cause of being sick, and I started breaking out.

 

Good luck with things.

Link to comment
Share on other sites
Tricia7 Newbie

After years of having abnormal periods mine have become a lot more normal in like 2 months or less of being gluten free. I had thought I was having early menopause or pre-menopause (in my 40's) nope. It was just another thing that wheat and gluten were messing up in my body.  

 

Hopefully for you it will help with your fertility.  You might get pregnant sooner than you think without the gluten!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748

    NYKaren
    Newest Member
    NYKaren
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...