Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

livelifelarge24

Recommended Posts

livelifelarge24 Enthusiast

Hi everyone! I haven't been on here in a long time. Three years of being gluten free and doing well other than this chronic, ongoing awful pelvic pain. It gets much worse at times and a little better at other times. It took me until about a year ago to realize I am sensitive to corn and when I cut out corn chips and corn tortillas and anythign made with flour I had remarkable improvement. I am still miserable off and on though and I am wondering just HOW much I need to avoid corn. For example I still drink sodas and those have HFCS and carmel coloring. I know for a hard fact that I can't have a whole list of candies and I have researched them and found that all of them have corn syrup as the first ingrediend. I react very badly to all of those (marshmallows, starburst, tootsie rolls, etc). So I have cut all of those things out of my diet but I do still have the pelvic pain and pain with BMs so I'm wondering for those who have issues with corn, do you avoid HFCS and corn starch?Baking powder? What about xanthan gum? I know all of these things are garbage anyway and as of today am starting back on an eliminatiion diet of corn products this time but its SO overwhelming as it seems that corn is in EVERYTHING. I am just hoping someone can give me some insight or personal experience. I experimented two days ago and ate a handful of corn chips and I'm paying for it so badly ever since. Excruciating pain and been on the toilet all day. I will never do that again and I"m so determined to figure this thing out once and for all! 

 

Also, I've done quite a bit of research today on GMO corn and HFCS and its health dangers, I'm just still a bit confused and I think more wanting to hear from anyone that has similar problems that can tell me I'm not crazy, it will get better and definitely avoid these certain ingredients (which are?)

 

Thank you!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I avoided all corn at first. It is difficult because corn is not one of the top 8 allergens so the label doesn't have to list it if it is not an actual ingredient but was USED IN PROCESSING. That means bagged salads are out because they are washed in a "citrus" wash that is made with corn. As a matter of fact, just about anything with "ascorbic acid" that you find in the grocery store is from corn, not citrus fruit.

 

After I had been off all corn for a while I got to the point where I could tolerate corn starch. There is no corn protein in corn starch. That makes life SO much easier because just about any medication you can find has corn starch as the filler. Now, instead of paying $37 for a small bottle of Tylenol from the compounding pharmacy, I can buy the store brand at Family Dollar for $2.

 

So if you want to avoid all corn for a while you need to stick to whole foods. That means meat, veggies (but none of the "ready to eat veggies), Uncle Ben's rice (No corn used in processing), potatoes, and there are some snacks available without corn. Blue Bunny ALL NATURAL vanilla ice cream or Hagen Daz, Boulder Canyon potato chips or other health food store brands (read the label), and for bread I use Canyon Bakehouse - no corn whatsoever. If you need more help shoot me a PM. :)

Link to comment
Share on other sites
livelifelarge24 Enthusiast

Thank you so much for the reply. I figured I would start the elimination diet again the same way I did when cutting out gluten. It's just overwhemling because corn is EVERYWHERE and all I can really find online is info on actual corn allergies which is not what I'm dealing with  (at least I don't think). When researching corn allergies I see info about corn starch and other things being ok because they don't have the protein in them but I have no idea if the protein is what causes me the problem or not so I assume I just need to cut it ALL including vinegar, caramel coloring, and ascorbic acid (I had no idea!) and then if I get to feeling better try one thing at a time. It's just so hard not to feel depressed, my diet is already so limited as it is. 

Link to comment
Share on other sites
bartfull Rising Star

Yeah, it's really hard. A food journal is a great idea. The corn allergy sites are still full of information on where to find hidden corn and there are quite a few people on them who have intolerances instead of allergies. For me, the protein is the problem. That's why corn starch is OK. But those clear plastic bottles you get individual servings of water in make me sick because they are made with corn protein! And I know ascorbic acid does me in because the last corn exposure I had was to a vitamin C capsule and I truly thought I was going to die.

 

If there is a Shopko near you you can get vitamins though. They have a line called "Shopko Naturals" that contain no gluten, corn, soy, yeast, sugar, dairy, sugar, salt, artificial flavorings or colorings. Maybe you could even order tham from their website. I stock up when they have buy one get one free sales (which they do fairly frequently), and wind up paying about $3.50 for a bottle of 60. Vitamins are really important for folks like us who are on such limited diets.

Link to comment
Share on other sites
livelifelarge24 Enthusiast

Holy cow! Plastic water bottles?! I am looking for info on that now and it looks like coco-cola/dasani use those for sure. I drink out of those all day every day. I switched to BPA free reusable bottles last summer and saw a huge improvement in my problems but that was becuase a doctor had recommended that for hormonal issues. When I moved I didn't transfer my water service and have been drinking out of these things again for 6 months now. 

Link to comment
Share on other sites
kareng Grand Master

. When I moved I didn't transfer my water service and have been drinking out of these things again for 6 months now. 

 

 

You have no water at your house?  I think that might cause some health issues you should address before worrying about corn in plastic.   :unsure:  

Link to comment
Share on other sites
livelifelarge24 Enthusiast

You have no water at your house?  I think that might cause some health issues you should address before worrying about corn in plastic.   :unsure:  

Obviously I have water. I drink about a gallon a day. I did not transfer my Alhambra service from my house and am drinking water bottles instead - the portable sized Dasani and such. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Obviously I have water. I drink about a gallon a day. I did not transfer my Alhambra service from my house and am drinking water bottles instead - the portable sized Dasani and such.

Oh. That makes sense. Couldn't imagine living without any water- could shower at the gym, drink bottles water, wash clothes at the laundry, but toilets and hand washing?

On a serious note - some people do have a problem with corn. But most don't have to go to the extremes Barty does - plastic bottles, a smidge of cornstarch in a pill, etc. maybe just start with the big obvious corn foods and see if that helps?

Link to comment
Share on other sites
livelifelarge24 Enthusiast

That's what brought me to this point - I eliminated the big obvious things a year ago and had immediate relief in symtoms but definitely not complete relief at all. I am still plagued with the symptoms that I know get MUCH worse if I ingest a blatant corn product but I don't know how sensitive I am or really where to start. 

Link to comment
Share on other sites
seejenrun Newbie

My son is gluten free and also allergic to corn, potatoes, citric acid and cirtrus fruit among other things. He avoids most packaged foods and gets by on meat, cheese, fruit and veges that agree with him. We use rice flour instead of cornstarch in cooking. Also, we use USA made aluminum bottles for our water. No plastic and no 'made in China' bottles. Good luck.

Link to comment
Share on other sites
livelifelarge24 Enthusiast

Thank you seejenrun. It must be hard to care for a kid with multiple food allergies. I have a hard enough time dealing with my own! I can't have eggs or nuts or pepper and it really depends on the day whether I can tolerate dairy or not. Frustrating but I'm still deteremined to get it all figured out!

Link to comment
Share on other sites
bartfull Rising Star

The cloudy plastic that gallons of water (and milk) come in do NOT contain corn. They are cheaper too.

Link to comment
Share on other sites
seejenrun Newbie

Livelifelarge24 I'm so sorry that dairy doesn't always agree with you. Whole milk has been one thing that has helped my son keep any weight on. Sometimes my son has eaten about 6 or 8 foods for months since those are the only 'safe' foods. It takes so much time to figure it out.

Link to comment
Share on other sites
livelifelarge24 Enthusiast

Livelifelarge24 I'm so sorry that dairy doesn't always agree with you. Whole milk has been one thing that has helped my son keep any weight on. Sometimhees my son has eaten about 6 or 8 foods for months since those are the only 'safe' foods. It takes so much time to figure it out.

That's where I'm at too! It's very hard for me to keep weight on. 

Link to comment
Share on other sites
livelifelarge24 Enthusiast

The cloudy plastic that gallons of water (and milk) come in do NOT contain corn. They are cheaper too.

That is what I will switch to until I can figure out a solution.

Link to comment
Share on other sites
livelifelarge24 Enthusiast

Yeah, it's really hard. A food journal is a great idea. The corn allergy sites are still full of information on where to find hidden corn and there are quite a few people on them who have intolerances instead of allergies. For me, the protein is the problem. That's why corn starch is OK. But those clear plastic bottles you get individual servings of water in make me sick because they are made with corn protein! And I know ascorbic acid does me in because the last corn exposure I had was to a vitamin C capsule and I truly thought I was going to die.

 

If there is a Shopko near you you can get vitamins though. They have a line called "Shopko Naturals" that contain no gluten, corn, soy, yeast, sugar, dairy, sugar, salt, artificial flavorings or colorings. Maybe you could even order tham from their website. I stock up when they have buy one get one free sales (which they do fairly frequently), and wind up paying about $3.50 for a bottle of 60. Vitamins are really important for folks like us who are on such limited diets.

Bartfull the main question I have I think is what is really the difference between corn syrup and high fructose corn syrup? I have googled it but don't really understand the answers. I KNOW that I cannot have corn syrup. But I still drink sodas and I don't know if the HFCS has more or less corn derivitive than regular corn syrup? I know the caramel color is bad too but I'm seriously addicted to caffeine and until I work it out I am curious how much the HFCS is affecting me. 

Link to comment
Share on other sites
bartfull Rising Star

I don't know. I have avoided HFCS for years, long before I developed the corn intolerance. I saw a TED Talk a long time ago where a scientist explained that the body can't process the stuff. It's really bad for us (according to him). I believe it. I know an elderly lady who was really really sick until she cut it out.

 

If you need caffeine, how about coffee or tea? Hot or iced, you'd still be getting the lift. I personally drink LOTS of coffee. Partly for the caffeine, but mostly for the taste. And if I happen to go anywhere at night, I drink defaf because everything else has corn!

Link to comment
Share on other sites
1desperateladysaved Proficient

If you have drunk a lot of high fructose corn syrup; I would watch out for diabetes!  Have you been checked for that?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...