Im a 32 year old male with hashimotos disease/hypothyroidism.(antibodies for that were in the 2000-3000 range last time I checked a few years ago).As long as I can remember I have had stomach issues, but up until now starting to think I have celiac disease too. One thing that makes me wonder is why am i gonna be on almost 300mcg of levrothroxine soon(seems weird for my age). Was taking 5 grain armour split in half plus 25mcg levrothroxine daily before switching over to levoxyl. I have always had constant gas/painful stomach bloating/(diahrrea maybe once a week or so)when eating meat/eggs/and possibly breads. Have to take probiotics and gas medicine each time I eat something.
The thing is I was reading the blood tests aren't really accurate for getting a diagnosis of celiacs disease.I live in a small town aswell so not sure about a biopsy and if that's anymore better or if they can do it.I have just been stuck in a major depression with panic attacks anxiety all my life.The brain fog is horrible as well.Im lucky if I can remember things that happened a few mins ago.Besides that rant, just wondering if this sounds like celiac disease to anyone? Can you not have major symptoms and still have it? Whats the likelihood of getting celiacs disease when you get hashimotos disease?I really don't know what to do.
I have Hashi's with super high antibodies too! Having multiple autoimmune disorders, like celiac disease. And Hashi's, is common. I only had anemia as my main symptom for celiac disease.
Non-functioning Gall bladder Removal Surgery 2005
Diagnosed via Blood Test and Endoscopy: March 2013
Hashimoto's Thyroiditis -- Stable 2014
Anemia -- Resolved
Fractures (vertebrae): June 2013
Osteopenia/osteoporosis -- June 2013
Allergies and Food Intolerances
Diabetes -- January 2014
Having the right blood tests done are very accurate. Even if you live in a small town, there has to be a bigger town you could go to for a complete work-up, blood tests and endoscope if necessary. With your symptoms, any good doctor will order tests.
The tests are fairly accurate with a sensitivity of 70-100% (the amount of celiacs each test catches), and the specificty is about the same. It is important to have a few tests run (or all) to give the disease a better chance of being caught. The tests to get are:
tTG IgA and tTG IgG
DGP IgA and DGP IgG
total serum IgA
AGA IgA and AGA IgG (older tests)
endoscopic biopsy (catches about 4 in 5 celiacs)
Keep eating gluten or the tests will not be accurate.
The last stats I saw about Hashi's and celiac disease (that I hope I am remembering correctly) said that 10-15% of celiacs have Hashi's (my guess is higher) and that about 6% of Hashi's patients have celiac disease. If you have Hashi's you are more likely to get celiac disease than the average person.
I too have thyroiditis (my doctor won't call it Hashi's beause my TPO Ab is not high but my thyroid have nodules and barely works... go figure LOL) and celiac disease. I find the symptoms are very similar but overall I feel better gluten-free. It's good you are getting tested.
Thanks for all the help.I had wrote a longer post but I accidently hit the back key so i'll try again.I know my doctor would order those tests for me if I ask.Just worried if its covered by my blue cross insuarance or not. Had an h.pylori test though and it was covered so maybe it will be fine.There is a general surgeon here in my area so im thinking maybe he can do an endoscopy here as well.(just figured you needed a specialist for it) I will check out the links and read up more about it as well.If I can get the tests done next week I will post my results here.I appreciate it.
As far as BCBS covering the blood tests, there should be no issue with it at all. But depending on what policy you have exactly, they may want a "valid reason" (basically your doctor telling them why they feel it's necessary) for an endoscopy with biopsy.
Make sure when you talk to your doctor about symptoms you tell them everything that's going on. There are over 300 symptoms associated with celiac (that list can also be found on the University of Chicago website).
You should ask the doctor to do 6 to 8 biopsy samples during the endoscopy. That's the recommendation from some medical board altho I forget which one. One sample is not enough, and many doctors will only do one or two unless they are told to do more. Can you look up celiac support groups in your area? They may have ideas for doctors who are familiar with celiac disease. It's best to choose a doctor who is familiar with diagnosing celiac and treating it as many are not up to speed on the current guidelines. There is a doctors sub-section on this forum which might have someone listed for your area also. Try searching that too.
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it." Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me. Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
I wrote my doctor and asked about the list of tests mentioned in this post.She said she would get back to me next week with whats available from the lab.(Hope i can test for everything)If i do get tested it will probably be next week sometime.I have been eating pretty unhealthy for awhile so if there is anything my hope its pretty obvious i have it.My doctor is a ARNP but i can get recommendations im sure for a biospy.(Just a general surgeon in my area)Will start researching people though on this forum and the web that can do it if not this surgeon.
Got the blood test on the 1st for my thyroid and the celiac test.Thyroid test came back on monday with a TSH of 0.42,which is a lot better than i thought it was gonna be.haha.Might actually have to drop down too 188mcg which is a good sign for that.No word yet on the celiac test as it had to be sent to a medical lab somewhere else to run it.I post my results eventually hopefully this week or the next week.I have no idea how long it takes to run it.I asked to get tested for all the things 'nvsmom' mentioned. They told me they would run a full panel i guess for it.
The tTG IgA is the most common test. It looks negative but 1 in 20 celiacs are low in IgA and that causes false negative tests. You should see if you can get the total serum IgA done, or even look back through past labs to see if it was done. Even if you IgA levels are normal, the tTG iGA can miss up to 25% of celiacs.
The AGA IgG is not a great test. If you look on page 12 of this report by the World Gastroenterology Organisation, you can see that the sensitivity of the AGA IgG can be as low as 17%! That means it can miss (worst case scenario) up to 83% of all celiacs. The DGP IgG (deaminated gliadin peptides) is a much better, but similar test.
If you can get more tests (even the endoscopic biopsy), I would do it. If not, you should consider trying the gluten-free for 6 months. At this point you suspect celiac disease or non-celiac gluten sensitivity (NCGS), and despite the two negative tests, it could still be either one of those causing your problems. If you are sure testing is done, go gluten-free and keep a food and symptoms journal. Symptoms can change so slowly that you barely notice so keeping a food journal can help. There is also the added benefit that if another food is causing your problems, it may help you identify the problem.
Im not sure if i can get my doctor to do the test over again as much as i wanted her too.The lab that did testing had these tests that could of been run:
Anti Tissue Transglutaminase, IgA
Anti tTransglutaminase, IgG
Anti Endomysial, IgA (by IFA)
Anti Gliadin, IgA
Celiac Serology Reflex Panel
Anti Deamidated Gliadin, IgG
Sucks that she wouldnt atleast run all of those even when i requested it.I was gonna start gluten free soon after those test results cause of my hashimotos' to try to get those levels down as well.I will check out that report too.Unfortunetly i just dont have the money right now to get tested outside of my doctor from a private company.Thanks for everyones help with all of this.