Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

It's Not Insomnia

bartfull

By bartfull
in Coping with Celiac Disease

Recommended Posts

bartfull Rising Star
bartfull
Posted

All my life I had terrible insomnia. After I went gluten-free I started sleeping well - too well. It seemed I could sleep for ten to twelve hours a night, straight through.

 

Well, lately I try to go to bed at my usual 8PM, but I can't sleep! I end up getting back up and often stay up 'til ten or eleven. I then get up at 5:30 or 6.

 

It just dawned on me that it is NOT a return of the insomnia. It is a return to good health! For the longest time I couldn't find vitamins that were gluten-free, corn-free, and soy-free. Now that I finally found some I think my vitamin deficiencies are gone and the reason I'm not tired at 8PM anymore is that I actually have some energy again!

 

Just thought I'd share that. :)

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

LOL it's a surprise when "normal" creeps up on us.   :P  Awesome.

Link to comment
Share on other sites
Adalaide Mentor
Adalaide
Posted

Yay! :D

Link to comment
Share on other sites
HavaneseMom Explorer
HavaneseMom
Posted

Hi Bartfull,

That is great news!

This sounds just like me. Before I went gluten free, I had terrible insomnia and bad dreams when I would sleep. I would also often wake up in the middle of the night sweating and gasping for breath with my heart racing. I'm so glad that is over!

Now I sleep like a baby and could easily sleep for 10-12 hours a night. I love it, but my schedule doesn't :-). It's good to know that at some point I might not need so much sleep. Can I ask what supplements and brand you are taking that helped with your deficiencies and energy?I'm always curious to know what is working for others.

Link to comment
Share on other sites
Georgia-guy Enthusiast
Georgia-guy
Posted

LOL it's a surprise when "normal" creeps up on us. :P Awesome.

Wait, "normal" actually exists?? I thought it was a myth.

Link to comment
Share on other sites
BlessedMommy Rising Star
BlessedMommy
Posted

It is so weird to find normal after living the other way for some long.

 

I've struggled with severe anxiety and finally, my brain is relatively calm most of the time. That is pretty shocking and weird to me after being stressed and worried nearly all the time!

 

OP, so glad that your sleeping is improving and that you feel healthier. That is wonderful! :)

Link to comment
Share on other sites
CaliSparrow Collaborator
CaliSparrow
Posted

That's so good to hear :) I can't wait for normal!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Congrats Barty.   :D

Link to comment
Share on other sites
bartfull Rising Star
bartfull
  • Author
Posted

Shopko Naturals are the supplements I take. "Contain no sugar, salt, yeast, wheat, gluten, corn, soy, artificial colors or flavors". They are cheap too. Most are $7.99 or less and they frequently have a buy one get one free special. They don't have a multi so I am taking 3,000 mcg of B12, 5,000 mcg of biotin, 4,000 iu of D3, 1,000 mcg of C, 1,000 mg of calcium, 500mg of magnesium, 5 mg of zinc, and I also get my probiotics there - 500 million L. acidophilus LA14, L. bulgaricus 64.

Link to comment
Share on other sites
IrishHeart Veteran
IrishHeart
Posted

Good for you, honey!! whoohooo!.

 

As you know, I, too had serious insomnia for most of my adult life and during the 3 years before DX, when I was quite ill, I barely slept more than a few hours at a time. (pain and ramped up everything kept me from being able to rest very much) I could never lay down and

take a nap like some can do--just too jumpy and in pain--even though I was exhausted beyond belief.. It was awful.

Never had a regular sleep pattern or a restful night's sleep. Sleep study said I never reached REM sleep. duh. I told them that--why did I need a study done?  :huh:

 

Now, I get sleepy at a regular time (between 10:30 - 11pm )and I can sleep nearly 7 hours . I may awaken, but at least now, I can go back to sleep most of the time. I wake up rested and I never  feel exhausted

 

I am so happy for you!!!.

 

This is the "new normal".

Link to comment
Share on other sites
HavaneseMom Explorer
HavaneseMom
Posted

Shopko Naturals are the supplements I take. "Contain no sugar, salt, yeast, wheat, gluten, corn, soy, artificial colors or flavors". They are cheap too. Most are $7.99 or less and they frequently have a buy one get one free special. They don't have a multi so I am taking 3,000 mcg of B12, 5,000 mcg of biotin, 4,000 iu of D3, 1,000 mcg of C, 1,000 mg of calcium, 500mg of magnesium, 5 mg of zinc, and I also get my probiotics there - 500 million L. acidophilus LA14, L. bulgaricus 64.

Thank you for sharing this! I am definitely going to look in to these.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748
    TT24
    Newest Member
    TT24
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...