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Pepcid And Thiamcinolone

27 posts in this topic

Yes! Pet food can gluten you!!!! Pets lick themselves. drool & what the gluten goes on can get transferred to you. You said grinding..... do you use the same food processor? There could be a source of cc. There are grain free/gluten free pet foods. Just Google gluten-free dog food, cat food. Also, in the grinding process, if there's gluten in it, the powder can be breathed by you. What goes in your nose & down your throat, goes in your gut. Do you kiss your dog? I know I kiss mine all the time. She eats gluten free -- Fromm Grain free, Annamaet also makes grain free (gluten-free), lots of choices out there for gluten-free dog food. 


Believe me, I do know how overwhelming it is in the beginning. There is a hugely steep learning curve, sort of like climbing Mt. Everest. It takes a while to get all the rules down pat. 

Just Google whatever it is you're looking for & add gluten free & you will come up with lots of info. there is a thread on here for gluten free make up & shampoo & so forth. Some will say you don't need gluten-free make up or lotions but when you have dh, you really DO have to worry about it. DH is unbelievably sensitive to the tiniest amount of gluten. The med publications say the gluten molecule is too small to pass through skin. All fine & well but we have open sores! It doesn't have to pass through the skin b/c we scratched the skin off or the skin was compromised by a blister that ruptured. You see?


Here is a link to the forum where you can find lots of info. on not only food products but meds & topical products that are gluten-free.

Here is one on stuff like shampoo


Personally, I just use Suave shampoo & conditioner -- cheap, does a good job, smells yummy & is gluten-free. Vaseline Intensive Rescue Repairing lotion is gluten-free. Dove deodorant is gluten-free. So is Mitchum. I think a lot of the Garnier (sp?) products are gluten-free. 


Call companies too when you're not sure. That's food, pharmaceutical companies (for prescriptions or OTC), cosmetics. & topicals as well as pet food companies. I call all the time. BTW, McCormick has gluten-free turkey & beef gravy packets now as well as chili mix & taco seasoning. I called them last week. They have an excellent policy for ensuring gluten-free is gluten-free. They will always reveal gluten ingredients on the ingredients list. With the new labeling law, things are going to get much easier for us!


Here's the Newbie 101 thread:


You know oatmeal is cc'd don't you? You have to have oats that are grown in certified fields & harvested & processed on clean equipment. Bob's Red Mill (BRM) has certified gluten-free oats. And BTW, it's a good idea not to eat even certified gluten-free oats for a year. The protein is so similar to the wheat protein that the body might react. So just skip the oats for a year.


As to travel.... get yourself together a travel kit --- 1 or 2 pots & pans, flexible cutting board, a few utensils, a small colander, toaster bags (you put your gluten-free bread in them to protect from gluten crumbs in a toaster) -- I think these things are listed in the Newbie 101. Put them all in a box & when you get rooms make sure you get a kitchenette & cook your own meals. You can not count on local places even when not busy to know all the rules or even for you to be able to TELL them all the rules. They just don't know how to be careful enough. WE make mistakes, how can we expect them to get it right????

When you took the trip, you may have just been on an "off" phase with the rash at that time. It can & does come & go at will even though you are eating gluten-free. It's going to take time. I hope you will not be as long as I have been but it's possible. I STILL get itchies. 400,000% improved but there are still antibodies under my skin that haven't left yet. I get days, 1 or 2, or 3 when I have nothing but then there are days when I do. They don't itch 24/7 anymore though & there are hours in between itchy "spells". 


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Good thing I don't like oatmeal!  I did know it was bad for me to eat, long before I got diagnosed.  :P   I never liked it.


I have a coffee grinder that is used only for the bird food I grind, but I never thought about the dust.  I guess I'll be getting masks and doing a lot of hand washing.  I only grind once a month and I always wash my hands after feeding or touching them, even if I never touch a crumb of their food.  I rescued them both none years ago and they have five year lifespans, so somehow I'll figure it out so they can live out their lives with the people they know and love.


Right now I have Neutrogena shampoo and conditioner and a Garnier leave in.  My hair hasn't been cut in well over a year and it was long and curly and a mess before I got the DH rash.  I haven't had it cut since.  I don't even know what to do with it anymore and until the rash clears up some, I don't really care.  I can't use a blow dryer or flat iron or anything with heat, so a ponytail it is.  My only issue with that is sometimes the weight of my hair (it's really thick!) pulls on my open wounds, and that hurts and is irritating.  I do call or google products I am not sure about - the problem is, it seems EVERY product is questionable and it takes a while to figure all that out.  I'm learning this. There is SO MUCH to learn! 


I can switch the dogs to gluten free, but I think the older dog already is.  She has a sensitive belly. Most times I just make her rice and chicken on my own - it helps her tolerate her medications better with less stinky gas!  The puppy in my pic, I'll have to check the package. I think both dogs are getting baths tomorrow. 


I really appreciate all your talk and your links.  There is so much to learn about gluten free.  Except in the summer, I cook almost every meal at home but when it's warm here my husband likes to take out the motorcycle, so we end up eating out a lot more.  Not so much this summer because I've been sick, but we did take that trip and he wants to do a final summer one this coming weekend.  We camp, so stopping at a local store and getting plain meat to grill is definitely possible and I can pack small snacks to eat for breakfast.  I am so bloated that I really don't eat more than twice a day. 


For anyone else that might be following this thread for its original content:  as long as I remember to take the pepcid (I got the Walgreens generic brand which is gluten free) and I use the steroid, it's not so fire ant-like and it's mostly tolerable.  I just want it to go away!


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    • Hi AWOL, Since you weren't able to complete the 2 weeks gluten challenge for the endoscopy the results are not necessarily reliable.   So to be err on the side of caution I think you should assume you have celiac disease.  Your doctor should not assume you don't have it either since the challenge was not completed.  He has no proof that you don't have celiac disease.  He does have evidence that you have negative reactions to eating gluten though.
    • Hi Ironic Truth, Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse. My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself. I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it. I did see one abstract, I can't get my hands on the full article as you stated their is a link: Dig Dis Sci. 2005 Jan;50(1):126-9. Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus). Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums. Good luck with you Boyfriend he is lucky to have you looking out for him.
    • Hi Sunshine, There is a program called a 504 plan that some schools will follow if you get one approved.  It helps the school identify proper ways to deal with a child's particular needs.  Probably it is helpful to have a 504 plan, but they may require a formal diagnosis for it.  I suggest you talk to the school and ask them about it.  Tell them the situation with the kid and about the stress he would need to go through to get diagnosed.  They may be willing to work with you without a formal diagnosis.   I am not saying you absolutely have to have a 504 plan for him.  School districts vary and some may be more accommodating than others.  A 504 plan may give you certain rights, but I  am no expert on them. The gluten challenge is 12 weeks of eating gluten for blood tests.  The payback for being formally diagnosed is questionable IMHO.  Treatment is the same regardless, eating gluten-free for life.  One thing to be aware of is that celiac disease has a genetic factor.  So he got the gene from one of the parents.  Anyone else in the family could have celiac develop at some point.  So testing every couple years for all family members is a good idea. Welcome to the forum!
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    • Okay. I think I will start with an allergist and a dietitian. 
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