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Oprah - Let's Get Cd On Her Show


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#1 floridanative

 
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Posted 04 November 2005 - 03:47 PM

I thought about how to best get the word out about celiac disease and the obvious answer was to get Oprah to do a show about it. I started with 'I'm thinking you probably already did a show about this horrible condition that is so underdiagnosed in the US and I'd like to purchase a copy of the show so please tell me how to do so. Then I went on to explain what celiac disease was just in case she hadn't heard of it. The producers didn't get back to me but I told them that I wouldn't be on the show since I don't have horror stories like so many others. I mentioned that some people take 10 years and other 20+ for correct diagnosis. Anyway, I told her she could find many people out here who would be willing to go on the show. So I think we need to be sending her show ideas as they call them on her site every week. We all need to be doing it - not me doing it over and over. If anyone is willing to do this let me know. Maybe we can come up with a system where we do a reminder thread that if your name begins with A-C it's your week to e-mail Oprah. Any other ideas would be appreciated.
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Dx'd with anemia - March 2005
Positive blood tests - Sept. 2005
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#2 Nantzie

 
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Posted 04 November 2005 - 04:38 PM

Oh my gosh! That's a GREAT idea. I like your tactical plan too.

B)

Nancy
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#3 floridanative

 
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Posted 04 November 2005 - 05:05 PM


Oh my gosh!  That's a GREAT idea.  I like your tactical plan too.  

B)

Nancy

<{POST_SNAPBACK}>


Okay - then this is what I'm going to do. Starting Monday (and each Monday after), I'm going to post on this thread to remind everyone that is it their week to e-mail Oprah. They just need to e-mail her that week, not a specific day - that's easy enough. I'm going to ask all those with last name begins with A, then next week B and so forth. I will post also Oprah's website and what link on the site to look for so they don't have to figure it out themselves. It's easy but it has to be super easy so more people will take five minutes and do it. Eventually someone's story will be dramatic that the producers will have to call and then we're good to go.

We can do this people! Even if only a few people a week do this, it will be irritating enough for them to call someone - even to say they're not interested in the story. But I think they will be interested if some of you with compelling stories - sick for years - get involved. We have nothing to lose by trying and everything to gain. After all, when Oprah speaks people listen. Come on you Celiacs - it's time for you to get your fifteen minutes of fame!
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Dx'd with anemia - March 2005
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Positive biopsy - Jan. 2006
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#4 Judyin Philly

 
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Posted 04 November 2005 - 07:04 PM

[quote name='floridanative' date='Nov 4 2005, 09:05 PM']
[/quote]

Okay - then this is what I'm going to do. Starting Monday (and each Monday after), I'm going to post on this thread to remind everyone that is it their week to e-mail Oprah. They just need to e-mail her that week, not a specific day - that's easy enough. I'm going to ask all those with last name begins with A, then next week B and so forth. I will post also Oprah's website and what link on the site to look for so they don't have to figure it out themselves. It's easy but it has to be super easy so more people will take five minutes and do it. Eventually someone's story will be dramatic that the producers will have to call and then we're good to go.

We can do this people! Even if only a few people a week do this, it will be irritating enough for them to call someone - even to say they're not interested in the story. But I think they will be interested if some of you with compelling stories - sick for years - get involved. We have nothing to lose by trying and everything to gain. After all, when Oprah speaks people listen. Come on you Celiacs - it's time for you to get your fifteen minutes of fame!

<{POST_SNAPBACK}>

[/quote]
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Judy in Southern CA

#5 Judyin Philly

 
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Posted 04 November 2005 - 07:05 PM

[quote name='Judyin Philly' date='Nov 4 2005, 11:04 PM']
Okay - then this is what I'm going to do. Starting Monday (and each Monday after), I'm going to post on this thread to remind everyone that is it their week to e-mail Oprah. They just need to e-mail her that week, not a specific day - that's easy enough. I'm going to ask all those with last name begins with A, then next week B and so forth. I will post also Oprah's website and what link on the site to look for so they don't have to figure it out themselves. It's easy but it has to be super easy so more people will take five minutes and do it. Eventually someone's story will be dramatic that the producers will have to call and then we're good to go.

We can do this people! Even if only a few people a week do this, it will be irritating enough for them to call someone - even to say they're not interested in the story. But I think they will be interested if some of you with compelling stories - sick for years - get involved. We have nothing to lose by trying and everything to gain. After all, when Oprah speaks people listen. Come on you Celiacs - it's time for you to get your fifteen minutes of fame!

<{POST_SNAPBACK}>

[/quote]

<{POST_SNAPBACK}>

[/quote]
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Judy in Southern CA

#6 Lisa

 
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Posted 04 November 2005 - 07:08 PM

[quote name='floridanative' date='Nov 4 2005, 09:05 PM']
[/quote]

Okay - then this is what I'm going to do. Starting Monday (and each Monday after), I'm going to post on this thread to remind everyone that is it their week to e-mail Oprah. They just need to e-mail her that week, not a specific day - that's easy enough. I'm going to ask all those with last name begins with A, then next week B and so forth. I will post also Oprah's website and what link on the site to look for so they don't have to figure it out themselves. It's easy but it has to be super easy so more people will take five minutes and do it. Eventually someone's story will be dramatic that the producers will have to call and then we're good to go.

We can do this people! Even if only a few people a week do this, it will be irritating enough for them to call someone - even to say they're not interested in the story. But I think they will be interested if some of you with compelling stories - sick for years - get involved. We have nothing to lose by trying and everything to gain. After all, when Oprah speaks people listen. Come on you Celiacs - it's time for you to get your fifteen minutes of fame!

<{POST_SNAPBACK}>



I'm In, tell me when and how.
[/quote]
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#7 Judyin Philly

 
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Posted 04 November 2005 - 07:09 PM

what a fantastic idea!
Saw where Donna Korn does alot of speaking and she would hit the kids too.
She might be willing to get on the band wagon.
I like the 'emailing' to Oprah down the alphabet...
Count me in.
Judy
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Judy in Southern CA

#8 floridanative

 
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Posted 04 November 2005 - 07:20 PM


what a fantastic idea!
Saw where Donna Korn does alot of speaking and she would hit the kids too.
She might be willing to get on the band wagon.
I like the 'emailing' to Oprah down the alphabet...
Count me in.
Judy

<{POST_SNAPBACK}>


Just check this topic on Mondays or count out your week - by starting this coming Monday for A - If you last name is Adams it will be your week. Then next week the B's and so forth. But I'm going to put in the reminder every week and list the proper letter. If I go out of town I'll ask for a helper but that's only a few weeks of the year. So it will take six months to get throught the whole alphabet but hopefully before then we'll drive Oprah's e-staff crazy and they'll contact someone whose story is so compelling they can't ignore it. This is good people - really good.
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#9 Jnkmnky

 
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Posted 04 November 2005 - 07:33 PM

Oprah's addressed Celiac to some degree already. A few years back, a group of women called The Satelite Sisters had an ongoing article in her Oprah Magazine. The sisters made a disparaging comment about annoying parents with children with Celiac Disease. Well, as you can imagine, all hell broke loose. Letters appeared in Oprah's following magazine telling the sisters off and scolding Oprah for allowing the comments. Ok. Then, the satelite sisters did an entire show on their radio broadcast educating themselves and their listeners about the seriousness of Celiac. :D I'm sure Oprah knows about Celiac Disease.
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#10 floridanative

 
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Posted 05 November 2005 - 07:45 AM

[QUOTE][QUOTE]:D I'm sure Oprah knows about Celiac Disease.

<{POST_SNAPBACK}>

[/quote][/QUOTE][/QUOTE]

Well if Oprah did a proper show about it, I would have heard about it from her, not my GI. It won't cost us anything but five minutes each to try and get her to listen.
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Dx'd with anemia - March 2005
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#11 jerseyangel

 
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Posted 05 November 2005 - 07:55 AM

I've thought all along that Oprah would be the perfect forum to educate the general public about celiac disease. You can count me in!
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#12 bluelotus

 
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Posted 05 November 2005 - 08:48 AM

We should mention celiac disease and general gluten sensitivity. Gluten sensitivity gets little coverage and is important, if you have only had the blood tests and didn't wait for the biopsy, or if the biopsy came back negative (which can easily happen, even if you have celiac disease). Tiffany (tanelberry sp?) recently pointed out the new NIH stand on celiac disease and gluten sensitivity, so we should include a link to that site in our email. No offense to people with celiac disease, but general gluten sensitivity is a huge problem too (with or without genetic predisposition to celiac disease). I wish they would do a show on gluten grains in general and mention all the negative health consequences - behavioral, pyschological, intestinal........now that would be a great show.
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#13 Jnkmnky

 
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Posted 05 November 2005 - 08:51 AM

[quote name='floridanative' date='Nov 5 2005, 10:45 AM']
[/QUOTE][/QUOTE]

Well if Oprah did a proper show about it, I would have heard about it from her, not my GI. It won't cost us anything but five minutes each to try and get her to listen.

<{POST_SNAPBACK}>

[/quote]


Ok, Gung-ho. No need to get snappy with me. I was only pointing out the fact that Oprah and her magazine have addressed the issue of celiac disease and an entire radio show was dedicated to the subject of celiac disease as a result of an article in her O magazine. Oprah is not America's personal physician. If Oprah had done a show on celiac disease... I would NOT have heard about it as I do not watch the show. I read her O Magazine in a waiting room. A friend's husband called to tell me the Satelite Sisters were doing a show on celiac disease. Personally, I think more powerful than Oprah, is word of mouth. Educate the people around you. They actually care.
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#14 jerseyangel

 
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Posted 05 November 2005 - 08:53 AM

That would be a good show and a dream come true for all of us but remember what happened with the Beef Industry when she did a show about their practices? I wonder if she would be willing to rile up the wheat industry? I'm still very much in favor of the E-mailing campaign, don't get me wrong, but I was just thinking...
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#15 zippy

 
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Posted 05 November 2005 - 09:18 AM

I know of a group of women with melasma, a very disturbing to the self esteem, and basically nothing that can get rid of it. (Triluma, hydroquinone products really don't work), Anyway they bombarded Oprah with it do bring it to people's attention. It went ignored. Maybe this will be more successful.
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