Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Dermatitis Herpetiformis Treatments: What Do You Use?

2 posts in this topic

Hi everyone!  I am new to this forum as I just discovered I have DH.  I had been diagnosed with a severe case of Herpes Simplex 2 for about 5 years before my doctor performed extensive testing that showed I do NOT have HSV 2.  I had always loved my whole grains, thinking I was eating healthy; little did I know!!  Only a month into my gluten-free diet, I am still having DH symptoms.  I am trying Dapsone for the first time, so we will see how it goes.


The point of this post is to find out what treatment options work for the rashes and blisters, what you have found effective or ineffective.  I would really like to know how other people deal with this ailment in their day to day lives.  


I prefer to use aloe vera directly from the plant.  I have found this to be extremely effective in healing the rashes more quickly.  I also use an rX lidocaine (2.5%) cream which alleviates the itching and burning.  And rX steroid cream applied 2-3 times a day seems to help as well.  I take epsom salt baths and rinse my mouth out with salt water (I get DH orally) which burns but helps heal the lesions faster.  I am one of the unlucky ones who gets the rash in my buttock/genital area (sorry if TMI).   Using the lidocaine and steroid creams mixed with aloe really helps!  


Also, what do you guys tell people who ask about the rash?  Mine tends to resemble a burn in the early stages on my hands, so I just tell them I had a kitchen accident or something.  I wish people would mind their own business, but I realize that the rash looks horrible and people might think it is contagious.  


Thank you for replying to my post!  Bless you all  :rolleyes:


Share this post

Link to post
Share on other sites

Ads by Google:


I am not ashamed of my rash. I tell them the truth. You never know when you will be helping by making someone knowledgable about celiac disease & also about dh.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Splenda was gluten-free back in 2005 when this thread was active and its still gluten-free now!  I like it better than aspartame as aspartame gives me a stomach ache.  But some people are the exact opposite.  
    • Hi. Im 49 male. I was diagnosed with celiac disease last year. In high school, I was diagnosed  with psoriasis (p) and psoriatic arthritis (psa). For 30 years about I took high-dose ibuprofen for the inflammation. The psa got so bad 5 years ago I had to start enbrel. A biologic drug that is an injection. So Ive been very good about eating gluten-free. Ive had 2 glutenings in 9 months. Symptoms were migraines and stomach pain. I was feeling better in a couple days. In September I started getting same symptoms.  After a couple weeks, bad constipation. Same as before celiac disease diagnosis. I was going crazy! I couldnt figure where the gluten was coming from! Then I was reading the forum here, great resource by the way, and I read how some celics are intolerant to rice also. So I stopped my brown rice that I had been eating daily for years. A matter of days all gluten symptoms were gone. The real magic to me is that within a couple weeks all my psa pain was gone. Now its been been a couple months without enbrel or anything! No sign of p or psa. Im never eating a grain again! Am I crazy? Feels to good to be true.
    • Hi, Thanks so much for the thorough reply. I really appreciate it.  Dairy is something I cut out of my diet too as indeed, I reacted to some things too... But dairy isn't as much of a problem as is sugar, in my case... I don't really know for sure if I'm gluten intolerant, but I guess, some of my reactions may have been caused by the sugar that is in products with gluten, I just don't know but just to be sure and because they damage the gut lining I banned gluten from my diet too...  Yeah, I lost a lot of weight quite fast after changing my diet, it seems I really got my metabolism going and I'm sure it's for the better as I was, and am, prediabetic, so I hope my efforts pay off eventually, I'm not interested in having to manage my blood sugar levels. I just know that with the right diet, I can recover. Anything with sugar in it will cause a negative response in my case, so just to be sure, of the foods you named, does anything contain fructose or glucose? What about the sweet potatoes? I normally don't quite tolerate starchy vegetables. Avocados is something worth considering. I had eggs tonight and so far they do not cause any extraordinary reaction.  Gluten free products is something I'd rather not consume though, especially the rice crackers, I feel my body is really craving an all-natural approach. In that respect I really appreciate the paleo diet, unfortunately even that diet sometimes stresses out my gut apparently...  Caffeine is something I don't tolerate either. Sauerkraut I'm pretty sure I won't tolerate, unfortunately, since it's rich in probiotics.  Oh well, as long as I don't starve and start to feel better I'll manage I guess.  Thanks again Ken
    • According to the Splenda company and the ingredients list, as I read it, it IS gluten free.   I find it tastes better than Stevia extract.  Does this seem the same to you?  Do you find it better than aspartame?   Do you know how aspartame reacts to heat?  I have heard about bad proteins forming, but nothing certain.  You are not alone.  I am an A/I with multiple conditions: -Sarcoidosis, Hash, Reynauds, Sjogren's, incurable candida (caught by an 18 hour stay in a hospital).   I can become Celiac or an A/I diabetic on a dime with 9 cents change.  It never ends. Ironically, I am presently NOT a celiac, but I have severe G/I probs and I am trying a few months of Gluten free to see if it helps by repairing possibly damaged entrail linings (i.e. "leaky gut").   So much  of leaky gut info is nonsense from commercial interests,  so we must all be careful!  A lot of sleaze-bag, snake oil jerks want our money!   Being desperate is not a good shopping mind-set. For info, trust only true non-profit orgs such as The Mayo Clinic or Mount Sinai, etc.   Not even Wikipedia is consistent enough to trust (I am a contributor/editor).   Worse, the AMA is only beginning to admit that such a thing as "Leaky Gut" exists.   And it DOES exists, however, what it is and HOW it is, is not known or even generally comprehended.  If you have serious leaky gut, you are in for a bad ride  —Sorry.  However; for me, this is just an expensive shot in the dark, but one must try everything that is reasonable.    I was simply born with a gene pool without a deep end.  My grandmother died from Scleroderma, etc. Side humour: I was once 50 lbs overweight.  It took 11 months, but 2 weeks after loosing 47 lbs, I was diagnosed A/I, and with Hashimoto's!  Worse, this was due to a clerical error.  As I am male and was then of perfect weight, they would never have normally checked my TSH (even though I had the symptoms).    Somehow, the TSH test box was inadvertently marked.  Doctors, geese. If I am lucky, I will soon have an Ileostomy bag (yes, LUCKY).  At first, you tell them to go to heck, but after years of G/I horror you soon realise that it is a small price to pay for a chance at living with some normality.  But, it is not that easy.  Surgeons will not operate for a "bag" (even though it is reversible) as they are under great malpractice fright and want tests that I cannot , at this late point,  perform! (Catch-22) Again, remember; you are not alone.  I am grateful that I was allowed to live 36 years before I experienced significant symptoms.  However, the U.S.A. medical industry is rubbish and becoming worse by the minute. I have been MISDIAGNOSED 4 times over an 12 year period.  Plus, I have had 5 radiology tests that were wrongly diagnosed by the technician.  Remember that your specialist doctor does NOT look at your images, but relies strictly on the text of the report written by a radiologist whom is NOT an M.D. or Internist!  This should never be allowed to happen. In most other countries, the doctor MUST examine the images.   Make sure you have a doctor who WILL examine the images BEFORE he reads the report.  Be careful out there.  G-d's speed to all of you.  
    • Thanks, well, apart from gluten I cut out all of the sugar too, so virtually no carbs... I'm glad to have lost the weight. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member