Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Managing Nausea From Glutening


jddh

Recommended Posts

jddh Contributor

Folks, can we talk about nausea relief?

Nausea is my #1 symptom and I am tired of just riding it out during those times I gluten myself.

I've been experimenting with ginger tea (simmer slices of ginger for 10-15 minutes) and it seems to be somewhat helpful. In fact, I tried putting a piece of ginger in my mouth and slowly chewing it and that helped too.

Wondering about the efficacy of gravol, since it's ideally introduced to the system before nausea starts. Of course, also have to make sure the pills themselves are gluten-free.

Tried the wrist pressure points; not a lot of relief there.

Does anyone have any other methods that work for them?

Thanks for your time and thoughts.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MJ-S Contributor

Would pepto bismol help? For me the nausea is a function of gas, and pepto bismol helps, if only temporarily.

Link to comment
Share on other sites
cyclinglady Grand Master

Would pepto bismol help? For me the nausea is a function of gas, and pepto bismol helps, if only temporarily.

Nice tip. Just be sure no one has an allergy to aspirin (I do!).

My old doc would recommend old fashioned baking soda, but used only occasionally. it would be best to find the cause though.

Link to comment
Share on other sites
jddh Contributor

Can Pepto help with indigestion into the small intestine? I thought it was essentially purposed for the stomach. I tend to get sick a couple hours later, ie. ostensibly when food is on its way out of my stomach.

 

Gas is definitely present :) Thanks for your thoughts.

Link to comment
Share on other sites
cyclinglady Grand Master

Wow! You really might have a non-functioning gallbladder. Here is a link to an interesting article about gallbladder issues and the fact that not everyone has classic symptoms. Plus, it is strongly linked to autoimmune disorders like celiac disease. My symptoms came and went for years.

Open Original Shared Link

Have you researched ox bile? That might relieve your symptoms until you get to a GI. I have no experience with it. But I happily take thyroid from a pig!

Link to comment
Share on other sites
blueshades Newbie

I just had the worst headache and what really helped was taking an allergy med and lying down for a while.

I took Telfast which i normally use for hayfever but it did help and i noticed after an hour the headache pain was gone even though it was still there. :)

 

 

Link to comment
Share on other sites
CathyO Rookie

My nausea hits hard and fast, and is severe.  I have a prescription for Zofran.  That's about the only thing that stops it when it is vicious. 

 

I also drink Aloe Vera Juice. I use Georges Fractionally Distilled, and drink 2-4 ounces a day. It's made a huge difference.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beth01 Enthusiast

Look up Quease Ease if you want to stay away from the meds, they work.  I use pepto and it helps or if it is really bad I fall back on an anti nausea script.  Dramamine also helps with nausea but it can make you sleepy, so be careful.

 

I second cycling lady, get your gallbladder checked out. I also had a fecal impacted appendix that I carried around for more than four months, not sure how long before, but that made me very nauseous.

Link to comment
Share on other sites
jddh Contributor

Can Zofran or Dramamine take action once the nausea has hit, or is it meant to be taken as a prophylactic? Drowsiness sound just fine—if either relieved nausea and let me sleep more, I would consider myself lucky :)

 

Really interesting stories about gallbladder issues. How were you diagnosed? I have an ultrasound coming up (too far away; calling every couple days trying to fit in someone's cancellation); hoping that would catch gallstones or swelling. Also pancreas, spleen, and all those other terrifying things the internet will give you unreliable information about...

Link to comment
Share on other sites
beth01 Enthusiast

They will both help with the nausea after the fact.

 

When my gallbladder was bothering me, it was inflamed and no stones.  I had an ultrasound for that.  They took out my gallbladder that day.  It seems that most of us that have gallbladder issues are more due to inactivity or inflammation. I believe there is a scan (HIDA?) or something along those lines, I am not to familiar with them but hopefully someone who is will chime in.  I think it tests out the activity in the gallbladder.

 

Hope you get to feeling better soon and they can get you in sooner for your US.

Link to comment
Share on other sites
CathyO Rookie

Zofran helps once the nausea has hit, for me.  It's sublingual, so no trying to swallow liquid or keep something down. 

 

Once that's taken effect, the aloe helps soothe things.

 

I had my gall bladder removed 35 years ago, so my personal experience is outdated with today's technology.  My husband just had his removed last month.

His surgeon said that in his experience, men and women present differently with gall bladder issues.  Women can suffer for years without any clear diagnosis. When men end up with gall bladder issues, they go bad quickly and they go "really bad" and "get gnarly" (I laughed at his technical term) quickly.   My husband developed gangrene within 24 hours and was miserable. 

 

They used a CT scan and an ultrasound to diagnose his.  So, I'd think those tests will show any issues.

Link to comment
Share on other sites
jddh Contributor
Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.
Link to comment
Share on other sites
cyclinglady Grand Master

Get a HIDA scan. It testes for functionality. An ultrasound or even a CT will look for just stones. I was just over 40 and I was a female but never fat. My symptoms were atypical. I had problems starting when I was sixteen. But it took an infection and a doctor to finally order a HIDA scan to find my non-functioning gallbladder even though it is a family curse (dad is one of seven and six siblings had their GB out). My Aunt had her GB out at 19, she did not have to suffer for years! So, it can hit at any age.

Celiac disease can impact your liver and pancreas too. I would not doubt that you have celiac disease.

Link to comment
Share on other sites
CathyO Rookie

 

Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.

 

 

I had my gallbladder out when I was 28, so I was young, too. 

 

I wasn't clear about the aloe vera, sorry.  I drink 2 ounces every day, generally just once a day.

On days I have any issues .... nausea, diarrhea or its cousin constipation, queasiness, etc. .... I drink 2 more ounces.

 

I have GERD of "epic proportions" according to my gastro doc.  I take Dexilant in the morning and Ranitidine at night.

It's been about 8-9 months now of that combination, and it's worked well for me.

I have a wedge pillow that helps elevate my head, but with the medication combo working well I've not been using it for a while.

 

I figure the aloe vera juice's cost is cheaper than all the medical bills ... especially since it helps.  :rolleyes:

That's how I rationalize it.

Link to comment
Share on other sites
beth01 Enthusiast

Another thing, if you are having problems keeping anything down and worry about losing the anti nausea meds. the do make phenegren suppositories. They work wonders.

Link to comment
Share on other sites
jddh Contributor
How about metoclopramide? New doctor gave me a script, but also gave "fair warning" about some small incidence of prolonged (> 3 month) use causing involuntary muscular spasming, occasionally irreversible.
 
Yikes! That stuff got black-labelled since I was given some back in around 2006. I used it a bit back then and my muscles still work fine...
 
Still, I have plenty to fret about as is. Not sure I want to get into it.
Link to comment
Share on other sites
beth01 Enthusiast

I personally didn't like the metoclopramide, I don't think it works as well as the others.

Link to comment
Share on other sites
  • 4 months later...
jddh Contributor

I'm still dealing with this and I wanted to note some successes:

 

1. Domperidone. Similar mechanism to reglan/metoclopramide. Not available in the US, but it is in Canada. I found it to be helpful, though not a perfect cure.

 

2. Cannabinoids: I live in an area where medical cannabis dispensaries are easy to come by, and I can confirm some definite symptom relief using very small amounts of cannabis. I got a high-potency tincture, which is suitable for administering tiny doses throughout the day as needed. I am able to use this during work, etc, which is to say if done right, you can get symptom relief without getting stoned.

Link to comment
Share on other sites
mynxr Rookie

 

Very interesting. My symptoms present similarly to when I used to get glutened. Wouldn't it be funny if I had GB problems all this time! Though I don't imagine that GB issues would have flattened my gut villi, as an endoscope revealed years ago when diagnosed.
 
I'm 32, which I understand is generally a little young for GB problems, but who knows. Lifelong celiac and strong susceptibility to stress.
 
@CathyO, so you take some Aloe juice after already feeling nauseous?  I just got the same kind you use. Expensive stuff! Label says take 2oz 2x daily. You prefer to take it specifically to relieve symptoms when they happen?
 
Had a good night & good sleep achieved with omeprazole (was told to try it again by doctor), aloe juice, a tab of gravol, and a tab of gaviscon. Felt sleepy and a little bit of a narcotic haze. However I'm just starting omeprazole, tend to be hypervigilent about how I'm feeling, and indeed I hadn't eaten much all day to try and stabilize. Gravol might be just the thing to have an easy night & sleep early. Perhaps will upgrade to Zofran/etc next time I see doc.
 
Thanks for the thoughtful suggestions.

 

I would be careful with the Omeprazole and use Prilosec instead.  There is a great website, www.glutenfreedrugs.com  If the drug is listed, it's gluten free.  Omeprazole, is not listed but Prilosec is.  I used to take Omeprazole and would get ill not long after taking any of my drugs that contained gluten.  When I switched from the generic ones that contained gluten to the brand which didn't, I could tell a huge difference.  I'm one of those Celiac patients that vinegar makes ill when it's distilled from wheat.  Another thing is natural vanilla flavoring.  It is made with vodka.  I have to make my own vanilla flavoring so that I don't get sick.  So, what I'm trying to say, is yes, I'm hyper sensitive but I got that way from three years of hidden gluten exposure after being diagnosed.

Link to comment
Share on other sites
luvs2eat Collaborator

My youngest daughter has had a medical marijuana 'scrip for years for symptoms like nausea and vomiting and to help stimulate her appetite when she was confined to only 5 foods she could tolerate.. She lives in Oregon, lucky girl. She once walked into a dispensary w/ her trash can in her hands and begged them to help her w/ the severe nausea. They sat her down and gave her a lozenge. Within minutes, she was better. I don't know if you're in one of those enlightened states, but the dispensaries are filled with really knowledgeable people.

Link to comment
Share on other sites
  • 2 weeks later...
Chibiehotaru Newbie

I also use Zofran. It doesn't eliminate the nausea but makes it tolerable for me. Good information in the posts above. Thanks everyone!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
×
×
  • Create New...