Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Nearing End Of Gluten Challenge....
0

9 posts in this topic

Welp been eating gluten (posion) daily now since Stepember 10th, and sporadicly in the weeks leading up to that. Been eating 2 slices of whole wheat bread+ 2 servings of Kroger Shredded Maple Bronw Sugar Mini-Wheat daily the whole time. I must say that even if the test comes back negative, Im going gluten-free. I fee as bad now as I did before going on my Low-carb diet years ago and lost that surplus 50 pounds. My visit is schedualed for Nov 20th, but I might bump it up. Reading from this site I found this under the FAQ:

How long must gluten be taken for the serological tests to be meaningful?

Vijay Kumar, M.D., Research Associate Professor at the University of Buffalo and President and Director of IMMCO Diagnostics: There is no simple answer to this question as the susceptibility of the patient to developing celiac disease is dependent upon several factors. One factor is the amount of gluten intake. Another is the genetic makeup of the individual. However, we feel that several weeks of gluten intake, especially in doses of 2 gm gluten/day, should result in positive serology in patients with celiac disease.

I should alreay be well passed that by my count! So dunno.....

0

Share this post


Link to post
Share on other sites


Ads by Google:

Good luck with the testing. All of my tests came back neg, but I went gluten-free over the summer. I've had occasional "cheats" when going out, but nothing too major. ANYWAY- Last week, I bought a loaf of french bread... :P my non-celiac kids and I ate it thoroughly buttered. It was so good. I had the WORST brain fog for two days. It started about two days after I ate the bread. It was so crazy. PLUS, I had that horrible endo pain in my lower back again. This hasn't happened anytime we "cheated". I figured it was because we're not actually celiac. I guess it's possible for gluten to hurt anyone's body. Maybe more so if you're gluten free for an extended period of time??? I don't know the answer. I only know I had a major issue concentrating for about two days and the pain was unbearable in my back. I think it was the gluten. I know I can't deal with that kind of brain fog and parent. It's too much. I'm still surprised it was that bad, but I have no other health issues to connect these symptoms with. It had to be due to the gluten I ate. I'm multi-tasking just fine now.

0

Share this post


Link to post
Share on other sites
  I had the WORST brain fog for two days.  It started about two days after I ate the bread.  It was so crazy.  PLUS, I had that horrible endo pain in my lower back again. 

This is the best way I have ever heard what I get explained. But...after 2 negative blood test, a negative biopsy when I was young, and now.....a negative DNA test, I am at a loss what to do. I have been gluten-free for over 3 years now, and when I go back on gluten, or just eat out, I get migranes, "brain fog", headaches, unbelievable lower back pain so bad I can't sleep at all, irritable etc etc etc. What is it if in ain't celiac :-(

If I start eating bread again I will live a life popping pain killers I think.

Or are the DNA they are looking for just not sufficient....

0

Share this post


Link to post
Share on other sites
Or are the DNA they are looking for just not sufficient....

<{POST_SNAPBACK}>

Think you may have your answer there. Do you feel better on the diet? If you do don't worry too much about what the tests say and stay gluten free.

0

Share this post


Link to post
Share on other sites

I agree with Raven- if you feel good, keep eating gluten-free. You're not denying your body of any important nutrients like essential amino acids or anything. Your body is telling you something isn't right when you eat gluten. It's just that the tests aren't sophisticated enough yet to tell what is wrong. Listen to your body and keep it happy!

0

Share this post


Link to post
Share on other sites




Just an update... I ordered the York Labs at home 10min instand celiac disease test. :) Now I jsut pace around (near the toliet) and wiat for it to arrive!

0

Share this post


Link to post
Share on other sites
This is the best way I have ever heard what I get explained. But...after 2 negative blood test, a negative biopsy when I was young, and now.....a negative DNA test, I am at a loss what to do. I have been gluten-free for over 3 years now, and when I go back on gluten, or just eat out, I get migranes, "brain fog", headaches, unbelievable lower back pain so bad I can't sleep at all, irritable etc etc etc. What is it if in ain't celiac :-(

If I start eating bread again I will live a life popping pain killers I think.

Or are the DNA they are looking for just not sufficient....

<{POST_SNAPBACK}>

All I can tell you is I'm relieved I'm not the only one experiencing this. I went gluten-free awhile back because of the extreme lower back pain that was dxed as endometriosis. I figured if no one knew what the hell caused endo and my son has celiac.... it might just help. It did. 100% pain free for the first time in a year+. Then I went back to gluten. Had a good month. Pain returned. I read Dangerous Grains, went gluten-free again. Had bit of gluten here and there with no problem. It was that loaf of french bread that tipped the scales.

0

Share this post


Link to post
Share on other sites

I was the same; couldn't bear the pain in the end. Tried going off coffee as a last attempt (didn't want to go gluten-free) but that didn't help. Doctors told me to drink more water..that didn't help either.

I just with I could get a definite answer on what is going on. I have had all tests possible now and still get all give negative. My father is a very sensitive celiac, by sister has the same symptons as me...I need an answer...just to tell me it isn't all in my head

:(

0

Share this post


Link to post
Share on other sites

Vydor-Good luck with testing and let us know as soon as you find out something...glad to hear you were at least some better while on the diet.

Jmfrisch-the DNA is pretty good but the only thing is a small percentage of people do not have either of the main genes(DQ2,DQ8) Most have one of those but not all. Also not all of the celiac genes are identified yet. Just listen to your body:)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined