Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Endomysial Test (ema)
0

30 posts in this topic

[

I don't know if they looked for internal bleeding....who would do that? I had a colonscopy which showed only slight diverticulosis. Nothing to even remove and send off for testing.

I know what you mean about the more doctors you see and getting more confused. My GI at least thought my antibody level was abnormal and so this started my search for answers about celiac disease. But the blood doc said in no way would you tell someone they could have celiac disease based on that alone. Well that sort of got me excited thinking the GI is mistaken but until the Celiac panel blood tests come back I won't know what's what!

<{POST_SNAPBACK}>

0

Share this post


Link to post
Share on other sites


Ads by Google:

I would pose the question to your primary physician - whoever you consider that to be. May be your GP or other. Don't let them brush you off. Unexplained anemia can be a sign of either significant or slow, less significant internal bleeding. It should be investigated if all other possibilities have been exhausted. Claire

<{POST_SNAPBACK}>

0

Share this post


Link to post
Share on other sites

My dd was also always anemic and I believe that it was directly related to her gluten sensitivity. Nothing was ever done about it and I was told her give her a vitamin and be sure she ate enough iron. This was a child who ate us out of house and home and then some because she was so starving and yet was vitamin deficient and malnourished to the point that her hair was/is falling out.

Drs. are on my hit list right now!!! We didn't get the menstrating line, obviously, but we just got some other BS because they obviously knew she was eating better than most children on this planet, yet was not absorbing the nutrients properly. They chose not to figure out why...

0

Share this post


Link to post
Share on other sites

Claire - well I don't know that I have celiac disease yet. I don't really have the gastro symptoms. But I'm going to ask my doctor to check for ulcers just in case. She's an internist but she's young and she doesn't seem to worry too much about what's causing my anemia. I want to change to another pcp but I can't do that in the middle of all these tests. One thing my doc will do is refer me to whoever I tell her to. Have to credit her for that.

e&j0304 - I'm right there with you on the doctors being on my hit list too. When the hemo doc stopped listening to me after he'd asked if I had 'D' or 'C' and I said no, I knew he wasn't going to be of help to me. At least he ordered the Celiac panel so I'm anxious to find out those results.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,354
    • Total Posts
      920,522
  • Topics

  • Posts

    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,427
    • Most Online
      1,763

    Newest Member
    BrookN3WJ
    Joined