Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Uncontrollable Itching
0

4 posts in this topic

Hi everyone,

I have been gluten-free now since Sept 1st of 2003. I have only had a couple epsidoes of accidental gluten ingestion, and none of them have been recent. However, for the past couple weeks, I have had INTENSE itching all over my body - especially my back, buttocks, scalp, neck, chin, neck. I have never experienced anything like this in my life. It actually keeps me awake at night & wakes me from a deep sleep. I also have red spots all over my body. The spots sort of look like acne, but I know they are not acne. I have some acne or spots on my face and I have white sores in my mouth (inside of my cheek in 2 spots). I also have itchy patches and red spots on my scalp. I have several very prominent red bumps on my neck. They actually look like HIVES.

I feel like this could be related to gluten, but not sure if it's something I am eating or something i am putting on my skin. I have not been diagnosed with DH, but suspect that i may actually have it. My case of celiac disease was quite severe with multiple health problems for many years before diagnosis. I am waiting to see Dr Green at the Celiac Center in NY City, but I can't get in there until April unless someone cancels an appt before then. I have seen a nutritionist there, though, who has been EXTREMELY helpful.

My question is this: Does anyone haave experience with this after going gluten-free? Could it be environmental (soap, shampoo, hair dye, laundry detergent, dry cleaning chemicals, etc)? I changed my hair color on Dec. 24 at a salon and had never been to that particular salon before. It didn't occur to me to think about the hair dye. Are there laundry detergents that are better than others for people with DH or celiac disease? I think I want to err on the side of caution now and go completely gluten-free in everything that touches my body...just until i can get this itching and redness to subside. I also recently bought a new brand of laundry detergent, not even thinking that would have an effect on my body. I just cannot seem to figure out what is causing this !

Help !!!!!!

Kathleen

0

Share this post


Link to post
Share on other sites


Ads by Google:

Kathleen,

I sure sounds like DH to me. You know something, get an appointment with a dermatalogist before your appt with the dr in NYC. You can't go until April like this. However until then, what laundry detergent do you use? I'm from Canada and I use Sunlight, it's very mild. Watch the shampoo and conditioner you used as you have some bumps in your scalp, go to a health food store and get a mild all natural one. I would skip makeup if you wear it. I would also look at a health food store or drug store for a lotion that's very mild with no scent. Ask the pharmacist for something that treats eczema or psoriasis. As for the sores in your mouth, I get them when I use a toothpaste that have gluten in it. Use Tom's of Maine toothpaste. Since I don't have DH but have had some skin problems read about DH on this site. They provide alot of info. Lastly, get some Epsom salt, put them in a warm bath and try to relax. Oh yeah I recommend not dying your hair, as you could have some open sores and could be infected by the dye.

Hope you feel better.

0

Share this post


Link to post
Share on other sites

Hi Crystal,

Thanks for your reply. You know, after posting my comments last night, i went to a couple of celiac websites and looked at various pictures of DH. Some of them look a lot like what I have right now. I have been treated for excema in the past and my eldest sister has SEVERE psoriasis (had chemotherapy twice to treat it - experimental - and was hospitalized a couple times).

I use epsom salt baths a lot. It was the only thing that helped my excema.

Laundry detergent - I bought TIDE FREE last week when we ran out of ALL FREE AND CLEAR. That's when the itching started. So I switched immediately to an organic brand.

Toothpaste - I use colgate or crest. Both are supposedly gluten-free in the US.

Shampoo - I tend to use head and shoulders, because it helps with the itching. however, since I had my hair colored, I have been using L'Oreal Color Vive shampoo for color-treated hair. I have not seen any ingredients on the label that look 'suspect'

All my skin makeup is gluten-free.

My hand lotion is gluten-free.

The places I am getting the red spots are places I don't use makeup or lotion, except for the small spots on my face.

I think you're right about the dermatologist, though. I think I should try to get an appt soon. It's been a year since I have seen my dermatologist. The strange thing is that none of my dermatologists have ever said anything about the possibility of DH, but then again, none of my doctors said anything about the possiblity of celiac disease until 6 months ago!

0

Share this post


Link to post
Share on other sites

Kathleen,

It seems like your doing everything right. I've been to the dermatologist about this discoloration on my back, it's not itchy or anything. He took a biopsy of it and it said nothing. He is totally baffled, he even invitited me to go to convention of dermatologists so his collegues could take a look. I said "no thanks" I'm tired of being a specimen. I hope you find what's ailing you.

Let me know

:D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined