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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm Always Tired.
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60 posts in this topic

Maybe you can try to include some breathing techniques on your daily routine. Many people take short, shallow breaths, and this will reduce the amount of oxygen absorbed by the body so it makes your lungs and your heart work harder. The proper breathing techniques will prevent your body from getting tired fast. After taking short, shallow breaths, try to breathe long and deep. Remember that you have to breathe through your nose and remove it through the mouth. 

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I have been Gluten free for 11 months now.  I was exhausted all the time prior to going Gluten Free and felt a significant change right away having so much more energy.  Over the past several months, that tired feeling comes back from time to time. I know I need more exercise as I always feel better afterwards.  My vitamin levels are all good and thyroid is fine too.  I take B complex vitiamins.  They really do help me.  I notice the difference if I forgot to take one.  Hope this helps. :rolleyes:

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I have been Gluten free for 11 months now.  I was exhausted all the time prior to going Gluten Free and felt a significant change right away having so much more energy.  Over the past several months, that tired feeling comes back from time to time. I know I need more exercise as I always feel better afterwards.  My vitamin levels are all good and thyroid is fine too.  I take B complex vitiamins.  They really do help me.  I notice the difference if I forgot to take one.  Hope this helps. :rolleyes:

I am going to the Dr tomorrow to see about a diagnosis.  I have had insomnia for  YEARS!  I got so bloated last week that I finally did a little "elimination test" of my own... BINGO!  I felt better after 12 hrs off gluten!  I've been reading like crazy and eliminating things from my diet.  I'm a nurse, so I have to have myself half diagnosed before posing symptoms to a Dr!! :D I'm hoping a lot of my "mysterious" physical problems will subside.  On the plus side, I lost 4.2# in 1 week without trying!  I had gained weight very suddenly about 6 yrs ago.  Looking forward to a definitive diagnosis and cleaning the gluten out of my house, if need be!

 

Debbie

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Hi Guys,

I had an endoscopy and I have Celiac sprue.  I have eaten very healthy as a vegetarian since 1968 and as a vegan for many years and always my tests have shown I was doing great! Because of my lifestyle I made it a point to become very educated on nutrition. Since finding out about the Celiac, I have been gluten free for 3 months now. I have had EVERYTHING tested and it all came out ok.  But I can barely take care of myself I am so tired.  I have been tired before but never like this. This is different.   I am at the point where I am going to have to see about getting someone to come in to help to clean my home.  Plus my food bill is not something I can keep up with on a fixed income.  I am still taking Imodium just to get through the day or I can't leave the bathroom.  My stomach is a mess and I am getting very concerned.  I saw a nutritionist and I am taking all the supplements they said to but it doesn't seem to be doing anything yet.  I can't get a good sleep in even with medication.  I have nightmares and wake up exhausted.  Does anyone have any information that might help or even maybe have felt this way?  I felt better when I was on gluten. My stomach is flatter,my breathing a bit better, joints not quite as sore. But the trade off, not good.  My stomach is acting way worse.  I have been meticulous about eating gluten free or even buying products that could have even been manufactured in a plant where there could have been cross-contamination. I don't know what else to do.  My doctor is certain it is celiac. All replies are appreciated because I have a life that i would like to get back to!  :blink:

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This is what helped me to get  some additional energy just after 2 weeks:

 

1. Zinc

2. Magnesium

3. Selenium

4. Vit D

5. Swedish Bitters

 

Good luck!

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Could it be depression? Exercise might help.

Are you eating out? If so stop and eat at home for a few weeks. See if it helps.

Have you checked all meds and supplements for gluten?

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Oh god that is a sticky one with the  food bill, do you have an Aldi or Trader Joes near you? I been to one a couple of times and have purchased quite a bit of Gluten free real food + treats before.  Second option check out farmers markets and co-ops.  I have an acquaintance, who has a huge load of debt from school and  is on disablility .She goes to one in a neighboring town and gets food ridiculously cheap and we are talk awesome stuff. I used to poo poo those markets having come from a small town  in ohio originally that had a terrible co-op and farmers market. But if your in a good sized city you can do well with those options. As for cleaning and energy I know this one, most here probally do as well I've learned to  clean in stages.For instance I may do  vacuming in bedroom and livingroom on one day , and the next the sofa and living room. Moping on another day and dusting. It sounds like a lot but it does help atleast with me. What got me at first was when I went to working overnights that was a doozy, but finally adjusting better. I hope some of these options work for you and are viable.

Hi Guys,

I had an endoscopy and I have Celiac sprue.  I have eaten very healthy as a vegetarian since 1968 and as a vegan for many years and always my tests have shown I was doing great! Because of my lifestyle I made it a point to become very educated on nutrition. Since finding out about the Celiac, I have been gluten free for 3 months now. I have had EVERYTHING tested and it all came out ok.  But I can barely take care of myself I am so tired.  I have been tired before but never like this. This is different.   I am at the point where I am going to have to see about getting someone to come in to help to clean my home.  Plus my food bill is not something I can keep up with on a fixed income.  I am still taking Imodium just to get through the day or I can't leave the bathroom.  My stomach is a mess and I am getting very concerned.  I saw a nutritionist and I am taking all the supplements they said to but it doesn't seem to be doing anything yet.  I can't get a good sleep in even with medication.  I have nightmares and wake up exhausted.  Does anyone have any information that might help or even maybe have felt this way?  I felt better when I was on gluten. My stomach is flatter,my breathing a bit better, joints not quite as sore. But the trade off, not good.  My stomach is acting way worse.  I have been meticulous about eating gluten free or even buying products that could have even been manufactured in a plant where there could have been cross-contamination. I don't know what else to do.  My doctor is certain it is celiac. All replies are appreciated because I have a life that i would like to get back to!  :blink:

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BoJonJovi, that is a great point, there are so many snakes in the grass often something can get over looked. Meds was at first one I did not think of until I started pounding the internet and books I could get my mits on for that kind of info. I do know Target has their brand and some of their products are brazenly marked gluten free. If you are on meds, a good pharmacy with your Dr.'s orders on it will get them on alert to do things. When I got out of the hospital my surgeon had put on the scripts and called even(bless his heart) to warn them make sure  things was cool so I wouldn't get glutened by that. So make sure if you are on meds they haven't been possibly cc'd. Also check your tupaware and glassware and if you cook with untreated wood or bamboo you could have it in that as well if there are scratches present.

I know I may sound overkill but I am well past and done with Gluten, to me its as unwanted as a stalker because of all the places it shows up.

Could it be depression? Exercise might help.

Are you eating out? If so stop and eat at home for a few weeks. See if it helps.

Have you checked all meds and supplements for gluten?

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Just a note to all reading this thread, it spans back to 2005, so you may want to start a new discussion if you need answers.

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This is what helped me to get  some additional energy just after 2 weeks:

 

1. Zinc

2. Magnesium

3. Selenium

4. Vit D

5. Swedish Bitters

 

Good luck!

I'm curious:  Swedish Bitters for energy? 

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