Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

The Ups And Downs Of Cd


Jen H

Recommended Posts

Jen H Contributor

Hi everyone,

I'm still fairly new to celiac disease and was hoping I could ask you guys a question. I was diagnosed in August and have been eating gluten-free since then. I've been extremely careful about what I eat and I'm fairly sure I have rid my diet of gluten. Over the past 3 months I seem to have "waves" of symptoms. Some days I feel great and other days I have stomach pain and am exhausted. I'm pretty sure I'm not glutening myself, so is it normal for me to go through ups and downs like this? I'm just so new to it all I don't know what to expect.

Thanks so much!

:D Jen

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Yes, I was up and down for many months before feeling better.

I know you said your foods have been gluten free but what about your products?

Also, since you are kind of new to the diet it does take time to feel better it took me 8 months to get back to normal but I felt better and saw improvement before then...have you seen any improvement? If you have by now that should be encouraging.

Link to comment
Share on other sites
jerseyangel Proficient

I agree that it takes a while to feel better more or less consistantly. At 3 months, I was still having bad days but after the fourth month, there were definately more good days than bad--thats the point where I felt I had my gluten-free act together and kind of turned a corner so to speak. I'm only five months into it now but the D is gone :D but some of the other symptoms still remain--but not as severe. I figure that its all part of the healing process and will improve with time (and being strictly gluten-free!!). Sounds like you're on the right track--keep us posted :)

Link to comment
Share on other sites
jenvan Collaborator

It is not uncommon to go up and down. I am 9 mos gluten-free and still riding that rollercoaster. Sometimes it can be attributed to less sleep, more stress, different foods...other times there is no correlation, and who knows what your body is up to. :) In the scheme of things, you are still just beginning, and I am only really beginning to get some where in terms of healing. Now, I will say if you are having varing digestive issues, not just fatigue, you may want to track your symptoms. Something could be getting in or there may be another food or product that bothers you. I highly recommend food/symptom journals to come up with correlations and track progress. Hope this week/end is a good one for you!

Link to comment
Share on other sites
Jen H Contributor

Thanks for all your replies! Jenvan, I think I'm going to start keeping my food journal again. I was doing great for a while, and then BAM, I started getting stomach symptoms again. I bet you're right-there's been a leak. I've been super careful about checking what I eat, but today I noticed that the wraps I've been eating for lunch seem to affect me. I was sick within ten minutes of eating it. I've been using the corn tortilla wraps from Trader Joes (on the gluten-free list) and Carl Buddig Ham (which is gluten-free on their website). I've been eating this sandwich all week and have had similar symptoms. I'm not sure how that's making me sick, but it seems to be. Have you had reactions from gluten-free foods?

Jen

Link to comment
Share on other sites
jerseyangel Proficient

Could there be cross contamination from the slicer used on your ham? Just a thought.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,478
    • Most Online (within 30 mins)
      7,748

    Susan Maxwell- Trumble
    Newest Member
    Susan Maxwell- Trumble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Tlbaked13
      Thank you and I am aware that I should be eating a "normal" diet until tested it's kind of been trial and error for my diet or more like just ERROR! I about 1-3 bites a meal I'm to a point that 99 percent of the time I'm having trouble swallowing just about everything occasionally I find either something or a very small window of time that allows me to get very little of something! I am basically getting zero nutrition what so ever because I take one bite of the meal that I usually just slaved over just to end up tossing it when it's all said and done...did anyone else ever experience anything like this?  I am more then open to suggestions! It is taking a very extreme toll on me and my body forsure 
    • JustGemi
    • trents
      No! Do not start the gluten free diet until you know whether or not you will be having an endoscopy/biopsy to verify the blood antibody test results. Starting gluten free eating ahead of either form of diagnostic testing can invalidate the results. You don't want to allow the villous lining of the small bowel to experience healing ahead of testing by removing gluten.
    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
    • JustGemi
      Thank you! What do you recommend in the next 7 weeks until I see my Doctor?  Just start my Gluten free diet?
×
×
  • Create New...