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Hello New Here From England
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:D Hi all. I am a married Mum of 4 children from Yorkshire, England. I was diagnosed above a year ago, and now my youngest son is going through diet tests hope to chat soon
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Hi "Mum",

I hope you find a support group in your area. This is the single best "defuser" of that overwhelming feeling when you are first or recently diagnosed. It changed my outlook and has forced me to look outside the box and keep current with the disease, coping strategies and new recipes. The good news is that you are getting your children tested! In the U.S. the lag time is about 15 yrs. before a correct diagnosis is made and because doctors are not up to speed on the disease, it is very hard to get them to order the blood tests on children unless they are underweight and fall below the growth rate for their age. So don't despair! Life after celiac is not bad - I joke with my grandchild that "We are the "real" people, the others are mutants! He thinks it's funny!!!

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Thanks for the welcome. Just realised i didn't put my name there, its Julie :lol: My youngest son, had almost the same symtoms for most of the time i did, and it took me 20 months to get an hospital appointment for him he is 12 years old now, and we have had the gastro camera and endo camera too like i did- they found that he had a 'rare gut allergy' to put it in simple terms. But said there was no evidence of celiac there, however they decided that taking him off all food and giving him drip feed to give his bowel a rest. Then the tube came out and they started him on food again and today at the hospital they have said he can have wheat for next 6 weeks but still no dairy and eggs or milk so that is son 3 background

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welcome julie

its nice to have someone from good old yorkshire on here it makes me feel at home, sorry to here about your son i hope he gets well soon liz

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hi there julie are you the same milkfree yorkshire lass ive been chatting too. This is ambers mumma. Its a small world isnt it.

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Hi Julie,

Welcome to the board. This is a great place for information and support.

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Hi Julie,

Welcome to the board. This is a great place for information and support.

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:D Hi all. I am a married Mum of 4 children from Yorkshire, England. I was diagnosed above a year ago, and now my youngest son is going through diet tests hope to chat soon

hay you , im in uk too. im im tenby west wales. also married mum but of 3 boys. diagnosed 2 months ago.

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I have an English dog (a staffy bull) and we both welcome you to the board. Can you tell me, how much in pounds is a "stone". Also, do you ever hear the phrase "bully for you" over there? I know it's a British saying, just don't know how common it is these days. Thanks.

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I have an English dog (a staffy bull) and we both welcome you to the board. Can you tell me, how much in pounds is a "stone". Also, do you ever hear the phrase "bully for you" over there? I know it's a British saying, just don't know how common it is these days. Thanks.

there are 14 pounds to a stone, and yes " bully for you " is used commonly or at least i hear it. nice you have a bull dog, a friend had one which was lovely but it got stolen anbd used for fighting it was awfull.

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:D Hi all. I am a married Mum of 4 children from Yorkshire, England. I was diagnosed above a year ago, and now my youngest son is going through diet tests hope to chat soon

Hi! Im a mum of 4 from yorkshire, england too! Huddersfield to be precise. Not diagnosed but suffering all the same :)

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I have an English dog (a staffy bull) and we both welcome you to the board. Can you tell me, how much in pounds is a "stone". Also, do you ever hear the phrase "bully for you" over there? I know it's a British saying, just don't know how common it is these days. Thanks.

Bully4you,I've had 2 Staffies-I love them,they are so daft.

Brilliant with kids too-sadly my staffies died.

They get a bad press,but they really are great family dogs!

And yes,we still use the saying 'bully for you'!!

Great picture of your dog :)

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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