Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Would This Bother You?


Kimbalou

Recommended Posts

Kimbalou Enthusiast

Sometimes I don't know if I am just too sensitive or if people are just plain rude and insensitive. Yesterday at work a co-worker who knows I have to eat gluten free went out and bought a bunch of pasta and cakes to welcome back a co-worker who was gone for a few months. I walked into the break room and saw nothing gluten free at all. She looked at me and said "Sorry!". She also admitted she thought about getting some veggies to go with the food...but didn't. she even said she thought the restaurant had gluten-free options!  One person said she would eat a piece for me. Yeah, right.

I kept thinking about this after I left work. Is it really that hard to buy some veggies? Even for the people who eat gluten?

How would you feel? Would you just blow it off? I am just tired of people's insensitivity.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I think I wouldn't be bothered by this. I am not sure I would even want to eat the carrot sticks with all the gluten around it.

I prefer to not eat what others bring - even if I know it's gluten-free because of cc issues and it seems to encourage people to try to make me gluten-free food that isn't safe. For instance, I ate something once that I knew to be safe and now this friend is always making stuff and telling me - it's gluten-free! But it isn't always - she doesn't understand cc or that soy sauce isn't always safe. However, one group I am in brought little individual bags of chips and saw that I would have one. Now they always bring them so I can have one - even when I am trying to limit calories! Lol

Link to comment
Share on other sites
nvsmom Community Regular

It wasn't thoughtful but I would not be upset by it. Some people, and I was one like that, think immediately of the foods one can't have and get stuck there. Sort of like: Oh, he can't have peanuts so what will I feed him for lunch if he can't have peanut butter and the jam and butter is contaminated? We can't have sandwiches so what will we do?  KWIM?  They immediately forget soup, salad, chili, eggs, and such.

 

It would have been nice if they had got you something but she chose not to - you can't change people, darn it.   ;)

Link to comment
Share on other sites
icelandgirl Proficient

I'm a fairly sensitive person and my feelings would probably have been hurt. That's just me though. It's hard having that left out feeling...maybe with time we get used to it. I'm at almost a year since my diagnosis and I do feel like it's getting easier. You can't change other people though...only your reaction to them.

Link to comment
Share on other sites
chocominties Rookie

By now I'm pretty used to people walking by my desk and saying, "Oh wow, did you try those cookies?  They're amaaaaaazing!"  If we're having a food day I always make sure to bring my lunch, and then consider myself lucky if there's a bag of Tostitos and a cheese or veggie tray.  Folks at work (some of them) do know about my food issues, so they're pretty good about letting me see what I can eat, and letting me touch it first.  One time there was pizza, and no one was even touching the other items because they were all gorging on delicious, delicious pizza.  

 

More Tostitos for me, I guess.

 

But I'm also going on 5 years of dealing with this, and it probably helps that all my gluten issues "started" (were recognized) when I was in a position where I couldn't expect anyone to understand my issues.  I'm not saying "you'll get over it," but you'll start learning who to get pissed off at when they're clueless or insensitive and who not to.  People who aren't close to you are kind of like little kittens who do bad things but "don't know any better."  And the closer people get to you, the more they should know better.    

 

It might still be irritating on some "I wish I could eat that" level.  I still feel that sometimes (a lot of times).    

Link to comment
Share on other sites
BlessedMommy Rising Star

Basically what Karen said. I'd be relieved that they weren't trying to cater to me.

Link to comment
Share on other sites
Kimbalou Enthusiast

I never expect to be catered to. I guess my point is people are insensitive...especially when they say oh sorry...and I thought of getting some veggies too...honestly it was just odd to see pasta and cake...not very balanced meal. And....yes I know I cannot change people. Just talking about it helps me.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

My vote goes to insensitive. but if you think about it she was trying to get a response from

you& you gave her nothing! Good for you....I just chalk it up to ignorance! People like this love to make others feel bad ....another good reason to have some tempting gluten-free goodies around.. I always like something Italian that smells like I want to dig into to that!!! and waffles all

through the office.....

It's okay to feel left out once in awhile just don't let the villain see it !!!!!

Link to comment
Share on other sites
RubyRose Rookie

I don't think I would be bothered by it. It was not a celebration for you.  If it had been a party for you and they hadn't gotten anything you could eat. I could understand that. Some one else said, I don't expect others to cater to me.  I always bring a back up plan of goodies for myself, and if someone thinks of me I am flattered

Link to comment
Share on other sites
RMJ Mentor

I would not be bothered at all that nothing was purchased that I could eat. But to be told that she thought about buying something I could eat and decided against it - that would irritate me!

Link to comment
Share on other sites
Kimbalou Enthusiast

RMJ...exactly! thats what bothered me the most, was she mentioned she thought about it but didnt buy anything i could eat. ugh

Link to comment
Share on other sites
WinterSong Community Regular

It's one of those social situations where I might feel like, "Well, this kinda stinks, but whatever. Not the most important thing in the world." Kinda like when my boyfriend's friend has a birthday party and invites me, but knows there is nothing at the restaurant I can eat so I either have water or wine. Kinda sucks, but in the grand scheme of life it's not a big deal. 

 

Most of the time, I do not eat what someone buys me because either it is a company I do not trust or there are CC issues. 

 

And people just don't realize how rude it is to say "I'll eat a piece for you," so I just laugh off that kind of comment 

Link to comment
Share on other sites
cristiana Veteran

I'm a fairly sensitive person and my feelings would probably have been hurt. That's just me though. It's hard having that left out feeling...maybe with time we get used to it. I'm at almost a year since my diagnosis and I do feel like it's getting easier. You can't change other people though...only your reaction to them.

 

 People can be very insensitive.  However, a situation I find almost more difficult is well-meaning people preparing something for me, going to a huge amount of trouble on my behalf, only to discover that what they have cooked/bought still has gluten in it.  I am getting to the stage where I just feel it is easier to always have my own treats/snacks on standby.  A good excuse to carry a bar of chocolate in my handbag!

 

Another way of making people think is baking my own gluten-free cakes/buying them and then 'inflicting' them on other people.  They are always stunned at how good they are and ask for the recipes or where I bought them. 

 

Insensitivity/thoughtlessness... whatever it is... a great saying they have up at our local school on one of the walls is a quote by Kipling and it helps me such a lot with all manner of things these days.

 

“I always prefer to believe the best of everybody; it saves so much trouble”

I think Icelandgirl is right.  We can't change other people... only our reaction to them.  

Link to comment
Share on other sites
BlessedMommy Rising Star

 People can be very insensitive.  However, a situation I find almost more difficult is well-meaning people preparing something for me, going to a huge amount of trouble on my behalf, only to discover that what they have cooked/bought still has gluten in it.  I am getting to the stage where I just feel it is easier to always have my own treats/snacks on standby.  A good excuse to carry a bar of chocolate in my handbag!

 

Yes, that scenario is one of the hardest! 

Link to comment
Share on other sites
Serielda Enthusiast

I honestly would felt a bit left out at first, but get over it and Laugh to myself about being spared from all the junk food. Time to time I still get quirky and feel left out around certain events, but I remind myself I'm better off not participating in the food freak outs. Heck last birthday I had, I was shocked by an awesome and gorgeous gluten-free cake, that most was nervous to try ,but once they did you had to fight thunder dome style almost to get a piece. The reason I say that is often gluten-free foods and snacks can get ignored or left out in people are nervous that it may taste bad out of ignorance that gluten-free doesn't equate terrible. Give it time maybe next party you may get an epic nom nom.

Link to comment
Share on other sites
luvs2eat Collaborator

Not only does it not bother me... I prefer it that way. I feel terrible when people try to accommodate me and I don't trust anyone but ME to feed me.

Link to comment
Share on other sites
HappyMom623 Proficient

I got over the fact that people don't care about Celiac. My work always has bagels, donuts, cookies..ect.

 

No one ever thinks about me. LOL. Honestly, I'm okay with it because I'm trying to lose weight.

 

I'm sorry she said that though! Kind of sounds like she was being mean.

Link to comment
Share on other sites
seejenrun Newbie

Yes. What 'luvs2eat' said. I don't trust anyone but me. I always bring my own food everywhere. I would never expect or want anyone to cater to me.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,061
    • Most Online (within 30 mins)
      7,748

    Stephanie Thompson
    Newest Member
    Stephanie Thompson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zackery Brian
      I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease diagnosis through additional tests. Understanding the specifics of your condition can help tailor your approach to managing it more effectively. Food Sensitivity Testing: While blood tests for food sensitivities can provide some insights, they may not always be completely accurate. As mentioned by others, false positives are common, and individual responses to specific foods can vary. Discussing your test results and symptoms with a healthcare professional knowledgeable about celiac disease and food sensitivities can help clarify your situation. Research and Education: Exploring conditions like Mast Cell Activation Syndrome (MCAS) and histamine intolerance could shed further light on your symptoms and provide additional avenues for managing your health. Gathering information from reliable sources and discussing your findings with your healthcare team can help you make informed decisions about your care. Dietary Management: Managing celiac disease and multiple food sensitivities can be challenging, but finding a balance that works for you is crucial. Working with a dietitian who specializes in celiac disease and food intolerances can help you develop a personalized dietary plan that meets your nutritional needs while minimizing symptoms. Stress Management: Chronic pain and health issues can take a toll on mental and emotional well-being. Finding healthy coping strategies to manage stress, such as mindfulness, relaxation techniques, or engaging in activities you enjoy, may help improve your overall quality of life. Remember, you're not alone in your journey, and seeking support from healthcare professionals, support groups, or online communities can provide valuable encouragement and guidance.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
×
×
  • Create New...