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Ana Tests


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20 replies to this topic

#1 danikali

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Posted 14 November 2005 - 09:29 AM

Does anyone know if there is a connection with positive ANA tests and Celiac Disease?

Have any of you diagnosed Celiacs had a positive ANA, or vice versa. Have any of you had a negative ANA test?

I just want to see if there is any correlation....... ;)
  • 0
Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06
Diagnosed: Gluten Sensitive through enterolab 11/17/05
Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06



I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein
Peanuts (can handle very small amounts)
Any kind of additives or preservatives

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#2 luvs2eat

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Posted 14 November 2005 - 10:21 AM

I believe there is a connection. I was diagnosed with Celiac Disease in 2002 and about a year later my doc called after my routine physical and told me my ANA was elevated. She told me it was a "marker" for LUPUS, which is like the MOTHER of all autoimmune disorders.

She sent me to a rheumatologist, who sent me for about a million blood tests (all negative, 'cept for that mildly elevated ANA) and I've been back to see him twice since. Once a year he runs the million blood tests and he goes thru my entire body systems asking tons of questions.

I've not had one symptom of LUPUS other than that raised ANA... but he brings me back once a year to keep an eye on me.
  • 0
luvs2eat
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!

#3 danikali

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Posted 14 November 2005 - 11:00 AM

I believe there is a connection. I was diagnosed with Celiac Disease in 2002 and about a year later my doc called after my routine physical and told me my ANA was elevated. She told me it was a "marker" for LUPUS, which is like the MOTHER of all autoimmune disorders.

She sent me to a rheumatologist, who sent me for about a million blood tests (all negative, 'cept for that mildly elevated ANA) and I've been back to see him twice since. Once a year he runs the million blood tests and he goes thru my entire body systems asking tons of questions.

I've not had one symptom of LUPUS other than that raised ANA... but he brings me back once a year to keep an eye on me.

<{POST_SNAPBACK}>



Thanks! That's what I'm thinking too. I had a positive ANA test and I am getting blood tests for Celiac this Wednesday. I really am thinking that Celiac is what I have because all of the other blood tests came back normal (for lupus, thyroid problems, etc.) I was never tested for celiac before....

May I ask what your symptoms were and how your doctor knew to test you for Celiac? And did you get an ANA test before you were tested for Celiac too?
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Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06
Diagnosed: Gluten Sensitive through enterolab 11/17/05
Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06



I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein
Peanuts (can handle very small amounts)
Any kind of additives or preservatives

#4 luvs2eat

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Posted 22 November 2005 - 08:54 AM

My symptoms were unrelenting diarrhea and belly noises that sounded like wolverines were fighting in there!! I had no pains or other sickness. I thought I'd picked up some sort of parasite! The doc gave me a course of Flagyl, the med for "bugs" and did blood work and a colonoscopy. The results were SO positive, I didn't have an endo. I'd only had my symptoms for about 2 months when I was diagnosed.

About a year later, my routine blood work for my yearly physical showed the slightly elevated ANA. My doc sent me to the rheumatologist who did more extensive blood work. So far, so good... no symptoms from it.
  • 0
luvs2eat
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!

#5 danikali

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Posted 22 November 2005 - 09:36 AM

My symptoms were unrelenting diarrhea and belly noises that sounded like wolverines were fighting in there!! I had no pains or other sickness. I thought I'd picked up some sort of parasite! The doc gave me a course of Flagyl, the med for "bugs" and did blood work and a colonoscopy. The results were SO positive, I didn't have an endo. I'd only had my symptoms for about 2 months when I was diagnosed.

About a year later, my routine blood work for my yearly physical showed the slightly elevated ANA. My doc sent me to the rheumatologist who did more extensive blood work. So far, so good... no symptoms from it.

<{POST_SNAPBACK}>



wow! YOU WERE LUCKY WITH THE WHOLE FINDING OUT AND TESTING PROCESS!!!!!!!
  • 0
Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06
Diagnosed: Gluten Sensitive through enterolab 11/17/05
Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06



I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein
Peanuts (can handle very small amounts)
Any kind of additives or preservatives

#6 danikali

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Posted 22 November 2005 - 09:42 AM

I had more to say but I accidently clicked add reply!:

Anyway, you really were lucky with this whole thing. I'm 21 years old and I've been having weird things happen to me my whole life, and starting in high school, symptoms got worse every year!

But I was going to ask you; I just got my ANA results in the mail because my doc. finally sent them to me and I was looking at them and trying to understand. I think it says 209H U/ml and positive is anything higher than 120. So, I don't know much about this, but that is pretty high, am I right? And that should indicate something.......

Well, I'm waiting for my celiac blood tests and also the enterolab test results, but I'm just wondering because my doctor kind of ignored this ANA testing all together. ;)
  • 0
Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06
Diagnosed: Gluten Sensitive through enterolab 11/17/05
Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06



I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein
Peanuts (can handle very small amounts)
Any kind of additives or preservatives

#7 luvs2eat

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Posted 23 November 2005 - 08:22 AM

Yea, I was lucky to be diagnosed so quickly... altho now I laugh when I tell people about it and say, "the first symptoms is unexplained weight loss... um... I didn't get that one!"

When I went to the rheumatologist, he explained it all so well to me. He said that my body is like a country (I asked if that was some kind of sick FAT joke?? haha). My immune system is the army that defends my country. When I get sick, my army comes to the defense and helps me get well...

So... sometimes when there are no germs to fight...or even when there are... the army (immune system) gets restless and starts fighting amongst themselves (autoimmune disorder). It's the immune system fighting itself!

So, he said that this elevated ANA meant that my army was sort of poised to fight against itself if it got mad enough.

I don't remember what my ANA number was... but the numbers go up in a funny way... sort of exponentially or something... so a big number looks bad, but really isn't.

I'd call your doc and get a better explanation!
  • 0
luvs2eat
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!

#8 danikali

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Posted 23 November 2005 - 09:45 AM

WOw! Thanks for putting it that way! (the country and army!) -I like that! :P

You HAVE A REALLY REALLY GOOD DOCTOR! Not only did he/she diagnose you from the first little sign, but he actually expalins things to you?? :blink: And in such a cute and easy to understand way?! Even better! :lol:

Where do you live and what is your doctors name?! I live in NYC, any chance you are near? I have YET to find a doctor like that!

Anyway, my doctor pretty much kicked me out of her office and out of her "practice" when my results for lupus and thyroid problems came back negative. She said "10% of positive ANA tests don't mean anything at all and are in COMPLETELY HEALTHY people." :blink: uhhhhhhhh, I'M OBVIOUSLY NOT HEALTHY, I HAVE A GAZILLION SYMPTOMS, MY LIFE HAS DRASTICALLY CHANGED BECAUSE OF ALL OF THIS, SO I MUST NOT BE ONE OF [U]THOSE 10%! :angry:

She told me to go to a GI if I think celiac, though "I don't have any symptoms that would imply celiac"-according to the genius rheum. :huh: (I have about 50 of the 200-I think that should be enough)-She told me to only call her "if things get worse." ;)

Anyway, sorry for the b*tching and complaining here :D , but the only good and on point info. I've ever gotten is through my own research and this forum. :(

Thanks for your input though!

-Danielle

P.S. HAPPY THANKSGIVING! :)
  • 0
Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06
Diagnosed: Gluten Sensitive through enterolab 11/17/05
Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06



I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein
Peanuts (can handle very small amounts)
Any kind of additives or preservatives

#9 skbird

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Posted 25 November 2005 - 08:30 PM

I, too, had a positive ANA test, 1:320 the first time, then 1:160. Both are positive, one, obviously is higher than the other. I was sent to a rheumatologist who also tested me for everything, but didn't find anything. I do have some joint symptoms and had pleurisy pains for a few months, but they have subsided now. I still have some joint sensations. I was in earlier this month for a follow up and he decided to do an MRI of my hands, and there may be a spot on one of my joints in my right index finger - it could indicate some joint erosion. I don't find out until the first week of December when I go for the follow up to the MRI. We'll see.

Most doctors I talk to about positive ANA's say they are a real pain - they could mean about a million things.

Stephanie
  • 0
Diagnosed by food challenge, 10/04
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
Fibromyalgia, 6/11

#10 EvilGut

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Posted 28 November 2005 - 07:05 PM

Well, the dopey doctor was right about one thing: ANA can be positive in perfectly healthy people. Of course, many of them are elderly people. But if you have an elevated ANA titre and symptoms suggestive of autoimmune disease, you should be followed up.

As far as I know, elevated ANA is not directly linked to celiac disease. However, many autoimmune diseases that are associated with celiac disease--lupus, Sjogren's among them--usually produce high ANA levels. I'm one of those weirdos who has a Sjogren Syndrome antibody (anti-Ro/SSA) with a negative ANA. Go figure. It happens, especially with anti-Ro.

Had my blood drawn last week for all the celiac disease-related autoantibodies plus Ig levels. So I'm in waiting mode right now. Don't know whether I want the results to be positive or not. It would certainly answer a lot of long-standing questions. Then again, I can't imagine myself on any kind of a strict diet.
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#11 jenvan

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Posted 06 February 2006 - 06:17 AM

evil gut--
so have you been diagnosed with sjogren's yet? do you experience any symptoms? just curious...my NP thinks i should be tested. but i had an ANA last year and it was negative i believe....
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Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#12 gabrielle

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Posted 06 February 2006 - 07:49 AM

luvs2eat Posted Nov 14 2005, 10:21 AM
I believe there is a connection. I was diagnosed with Celiac Disease in 2002 and about a year later my doc called after my routine physical and told me my ANA was elevated. She told me it was a "marker" for LUPUS, which is like the MOTHER of all autoimmune disorders.

She sent me to a rheumatologist, who sent me for about a million blood tests (all negative, 'cept for that mildly elevated ANA) and I've been back to see him twice since. Once a year he runs the million blood tests and he goes thru my entire body systems asking tons of questions.

I've not had one symptom of LUPUS other than that raised ANA... but he brings me back once a year to keep an eye on me.


That is almost exactly what happened to me. When I was tested for celiac disease, I had a thyroid test and an ANA test. My ANA test came back slightly high and my thyroid came back HYPO. I was supposed to go back to see a rheumatologist- but never did because my gastro told me that my ANA levels could be high from my thyroid or celiac disease. He also said sometimes elevated ANA is because of just an infection like the flu. He basically told me not to waste my time- so i didn't. I have no symptoms of Lupus or anything, and I feel fine taking my thyroid meds and being gluten-free.
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Gabrielle
Lancaster, Pennsylvania

#13 EvilGut

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Posted 06 February 2006 - 01:49 PM

evil gut--
so have you been diagnosed with sjogren's yet? do you experience any symptoms? just curious...my NP thinks i should be tested. but i had an ANA last year and it was negative i believe....


Hi jenvan,

I am officially diagnosed with "probable" Sjogren's--only because I haven't had a salivary gland biopsy (no thanks!) or another objective test like the Schirmer's. Since I have symptoms of dry eyes and mouth and the anti-Ro/SSA antibody, I get a probable diagnosis even without the tests. That's enough for me. I know I have it. OTOH, I don't have celiac disease, which is why you haven't seen me on this board for a while. I had the antibody tests, and all were negative. I'm still anemic and no one knows why--colonoscopy and upper endoscopy were normal, so bleeding from the GI tract isn't the cause.

On the subject of Sjogren's again, I am also ANA negative--or was five years ago. I haven't been tested since. ANA can change. I could have it done tomorrow and test positive. Although it's not common, you can have Sjogren's without a positive ANA.
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#14 jenvan

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    Lynne took this picture! :)

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Posted 07 February 2006 - 06:28 AM

evil gut--
thanks for the info. hope you start improving. that's weird all your gi tests etc came back normal. did they ck your liver and kidneys, do you have heavy periods? good luck to you and figuring it all out!!
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~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#15 teankerbell

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Posted 14 February 2006 - 11:30 AM

wow! YOU WERE LUCKY WITH THE WHOLE FINDING OUT AND TESTING PROCESS!!!!!!!



I found you! ~Love your Step Mom!
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Laura
Started SCD 3/16/06

Diagnosed by Enterolab 2/06/06
IgA & tTg Positive, Malabsorption negative
HLA-DQB1, 0303 0302
Casein IgA positive
gluten-free 2/8/06
Celiac Blood Panel Normal 2/13/06
Rheumatoid Arthritis 7/05


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