Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Thyroid Medictaions? Levoxyl?

Tigercat17

Recommended Posts

Tigercat17 Enthusiast
Tigercat17
Posted

Hi everyone!

 

It's been a while since I've been on here. Just a little background info on me..I've been strictly gluten-free for 6 years now and feeling really great on the diet, but now all the sudden my celiac symptoms have returned in the last six weeks. I have a gluten free kitchen.. but the only gluten I have is the cat and fish food, but I wash my hands right after all the time.. I have acid reflux, feeling tired, brain fog, sore throat, having a pain on my left side under my rib cage and I lost 10 pounds in the last month. I am really slender and now I'm down to 103, so the weight loss is a little scary for me. I now started Boost to try to gain some weight back and I'm only maintaining.. The only thing I changed in my diet is I added Almonds by the company Wonderful. I started them about 6 weeks ago. I eat mostly whole foods, too. I am really sensitive so I know my limits on gluten free processed foods. I don't eat many at all. I did call the Almond company, Wonderful, and they said there is no chance of CC. I'm not sure if I believe them though.. I did stop eating them about 2 weeks ago. I feel a little better but still not 100%. I feel like I just got glutened again two days ago on steak that I make all the time.. ugh..  I stopped all my vitamins about two weeks ago too just in case. I take Kirkman Labs and I've been taking them for the last four years without issues. So I have a lot of trust in that company.

 

So now the only thing I'm questioning is my thyroid medication. I am currently taking Levothyroxine by Lannett and I've been taking them for two years without issues. They say they are gluten free, but of course don't test for gluten. I know it seems highly unlikely since I've been taking them for two years without a reaction, but this is the only thing I can think of that I may be getting CC. I eat mostly whole foods and I stopped everything else.

 

So my question is what thyroid medications are everyone taking? I called my endo doctor and told them the situation and they're going to call in Levoxyl made by Pfizer for me just to try and see if my gluten reactions go away. I was on Levoxyl before and didn't have problems with it, but it's always a little nerve racking to change these meds, especially when you have to take them everyday. Is anyone currently taking Levoxyl without any problems?

 

Thanks so much for your help everyone!

 

P.S. Sorry about my typo in Medication.. This is my brain fog kicking in... LOL..

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

It is  listed a s gluten-free  in 2014  gluten-free  drug  list

Link to comment
Share on other sites
icelandgirl Proficient
icelandgirl
Posted

Hi Lisa,

I've been on Levoxyl since March. My Dr wanted to put me on a name brand since the pharmacies switch up generics and there are sometimes variations in the amount of medication between name brand and generic. Interestingly I was on 100 mcg of the generic and then switched to Levoxyl 100. Ended up hypo. It was awful. Switched me to Levoxyl 112 and ended up hyper. Urgh. So now I'm on 112 Monday thru Saturday and half a pill on Sunday which I guess is about 104 mcg. I do feel better. Have only been on this dose for about 2 weeks though. I have not had any gluten type reactions.

Link to comment
Share on other sites
Tigercat17 Enthusiast
Tigercat17
  • Author
Posted

It is  listed a s gluten-free  in 2014  gluten-free  drug  list

Thanks Mamaw! :) I know that list isn't always up to date, so that's why I'm asking here.. I actually got glutened from a couple meds on that list. :(

Link to comment
Share on other sites
mamaw Community Regular
mamaw
Posted

I understand the list  was from 2014 at times even the mfg  doesn't know for  sure.I react  to many drugs....

Link to comment
Share on other sites
across Contributor
across
Posted

My sister (who at least as far as we know does not have Celiac) was on a thyroid med and was doing fine on it, and then out of the blue she started having all kinds of horrible reactions to dairy. Two docs have told her that they think the manufacturer changed something in the formulation that damaged her gut and caused her problems. She got off of it, and has been gradually recovering.

Link to comment
Share on other sites
etbtbfs Rookie
etbtbfs
Posted

I am on Levoxyl and Cytomel cuz King Pharm sent me letters in 2010 declaring that neither of them uses gluten fillers. (King is now owned by Pfizer.). Have never been glutened by these meds so far as I can tell.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi everyone!

 

It's been a while since I've been on here. Just a little background info on me..I've been strictly gluten-free for 6 years now and feeling really great on the diet, but now all the sudden my celiac symptoms have returned in the last six weeks. I have a gluten free kitchen.. but the only gluten I have is the cat and fish food, but I wash my hands right after all the time.. I have acid reflux, feeling tired, brain fog, sore throat, having a pain on my left side under my rib cage and I lost 10 pounds in the last month. I am really slender and now I'm down to 103, so the weight loss is a little scary for me. I now started Boost to try to gain some weight back and I'm only maintaining.. The only thing I changed in my diet is I added Almonds by the company Wonderful. I started them about 6 weeks ago. I eat mostly whole foods, too. I am really sensitive so I know my limits on gluten free processed foods. I don't eat many at all. I did call the Almond company, Wonderful, and they said there is no chance of CC. I'm not sure if I believe them though.. I did stop eating them about 2 weeks ago. I feel a little better but still not 100%. I feel like I just got glutened again two days ago on steak that I make all the time.. ugh..  I stopped all my vitamins about two weeks ago too just in case. I take Kirkman Labs and I've been taking them for the last four years without issues. So I have a lot of trust in that company.

 

So now the only thing I'm questioning is my thyroid medication. I am currently taking Levothyroxine by Lannett and I've been taking them for two years without issues. They say they are gluten free, but of course don't test for gluten. I know it seems highly unlikely since I've been taking them for two years without a reaction, but this is the only thing I can think of that I may be getting CC. I eat mostly whole foods and I stopped everything else.

 

So my question is what thyroid medications are everyone taking? I called my endo doctor and told them the situation and they're going to call in Levoxyl made by Pfizer for me just to try and see if my gluten reactions go away. I was on Levoxyl before and didn't have problems with it, but it's always a little nerve racking to change these meds, especially when you have to take them everyday. Is anyone currently taking Levoxyl without any problems?

 

Thanks so much for your help everyone!

 

P.S. Sorry about my typo in Medication.. This is my brain fog kicking in... LOL..

 

Hi Tigercat.  Have you considered it is not a food or medication issue at all?  Have you had your thyroid blood test done recently to see if it's the thyroid and not the medication?  Have you told your Doctor about your symptoms without putting a Celiac slant on it?  Look at the symptoms as a whole and take Celiac out of the question.  You may be ill with something else entirely.

 

Colleen

Link to comment
Share on other sites
Tigercat17 Enthusiast
Tigercat17
  • Author
Posted

Hi Tigercat.  Have you considered it is not a food or medication issue at all?  Have you had your thyroid blood test done recently to see if it's the thyroid and not the medication?  Have you told your Doctor about your symptoms without putting a Celiac slant on it?  Look at the symptoms as a whole and take Celiac out of the question.  You may be ill with something else entirely.

 

Colleen

Hi Colleen,

 

Thanks for responding. Yes, I did role out hypo and hyperthyroidism. I just got my blood work done last week and my thyroid levels are right where the doctors want them to be. I did just call my GI doctor and they are going to order me blood work to get my antibodies checked. My antibodies have been at 11 for the last five years so if they are back up then I know for sure I'm getting gluten in my system, but really... I don't even need the blood work. I've been gluten free for almost seven years and feeling great on a very strict gluten-free diet. I know these are my gluten reactions. :(

Link to comment
Share on other sites
Tigercat17 Enthusiast
Tigercat17
  • Author
Posted

Thanks for responding everyone! Well it looks like I'll be changing to Levoxly today. So we'll see if my reactions go away ... I'll keep you all posted. .. :unsure:

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    2. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    3. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    4. Smith-Ronald
      - Smith-Ronald replied to Soleihey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Lymph nodes

      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    5. Bayb
      - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748
    Suzi374
    Newest Member
    Suzi374
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Lymph nodes

      By Smith-Ronald · Posted

      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
×
×
  • Create New...