Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

What Do Intestines Look Like?
0

6 posts in this topic

I just had an endoscopy today after seeing a GI doctor last week Friday. He did bloodwork for celiac (not sure which specific tests) which aren't back yet. He told me after the endoscopy that the stomach and small intestine looked healthy - no ulcers visible-but he did do biopsies which I will find out the results in about a week. I was a bit out of it and didn't think to ask if the small intestine typically looks normal with celiac or can you usually see actual damage during the endoscopy?

My story is that I have a 4 month old daughter (and 2 older boys). I started getting terrible upper abdominal pain a few weeks after she was born, but only sporadically. Then the last 5 weeks it became daily and usually after eating. They did an abdominal US, no gallstones. They also ruled out H Pylori bacteria for ulcers. I experienced this pain after my boys were born as well, but it went away after a few weeks and didn't happen daily. I had 3 miscarriages before my daughter, still unexplained even after alot of testing. I have also had problems with general fatigue, headaches and neck/upper back aches and pains for many years. The other weird thing I have going on that they found a few weeks ago is an elevated eosinophil count (about 20%, the normal is 0-6%).

Last Friday was the first I heard celiac mentioned- so I haven't tried the gluten-free diet yet.

I guess my big question is about the intestines (about them looking normal), and any other advice you can offer, questions I should ask when I call for the bloodwork results later in the week.

Thanks- Stacy

0

Share this post


Link to post
Share on other sites


Ads by Google:

From reading your symptoms, I would guess that you may have celiac. Villi damage is hard to see unless you look at it under a microscope. They will have to look at your biopsies underneath the microscope to see if there was any damage done.

and any other advice you can offer, questions I should ask when I call for the bloodwork results later in the week.
My advice would be to try not to stress about the whole thing until you hear your results. Stress can make symptoms worse! And if you find out that you do have celiac then we are here to help. Well, we are here to help either way :) We can give you gluten-free product lists, advice on where to eat, recipes, and meal ideas. Please keep us posted :)
0

Share this post


Link to post
Share on other sites

A healthy intestine has healthy villi .. or tiny little fingers all over it. These villi collect all the vitamins and minerals from the food and then sends the waste on. When you have Celiac disease the villi is damaged, sometimes to the point where they are really flat and can no longer collect any nutrients. If the damage has just started, this can only be seen by microscope. Only severe damage can be seen by the specialist when they are doing the biopsy. :rolleyes: Hope this helps explain it a bit.

0

Share this post


Link to post
Share on other sites

Thank you so much for your replies! That does help explain it. I guess I went in thinking they would automatically see some damage and kind of assumed there was some from the pain I've been having. So this makes sense now.

I've been just thinking so much about the miscarriages and all I went thru- so much testing & seen by 3 different doctors. Some of the tests were for some pretty rare things. And they never once mentioned celiac! Which you would think would be an obvious thing to test for, as common as it seems to be. I did lots of research on the internet and read some books as well on miscarriage and don't remember coming across it on the websites or chat rooms. So many women like me just end up with unexplained m/c & , no diagnosis which makes it so scary to try again! If I have this, I plan to write a letter to all 3 of the doctors I saw and try to educate them to add this to the battery of tests they do for recurrent miscarriage.

Right now I'm kind of overwhelmed thinking about all the changes I will need to make. Was trying to find something to snack on in my pantry today and there wasn't much w/o gluten! I'm kind of scared to eat since I'm not sure yet what to look out for. Is there a link, list of all the hidden ingredients to look for? I know a few, like modified food starch and distilled vinegar. What else?

0

Share this post


Link to post
Share on other sites

Oh, forgot to add- I'm wondering if others have had high eosinophil counts as well? I haven't seen it listed as a symptom or common sign of celiac. It is usually seen elevated with allergies, parasites and drug reactions, and scarier conditions like lymphomas. I don't have any allergies like hay fever and didn't think I had any other allergies either. When I googled celiac and eosinophilia together, a few things came up- it may be one of the more uncommon signs? The doctors have seemed puzzled by it, even the GI doc.

0

Share this post


Link to post
Share on other sites




Stacy ... click on the "Gluten-Free Celiac Disease Forum" on top of the page, it will give you a list of threads. Go down the list until you find "Gluten Free Foods, Products, Shopping and Medications." You'll find lots of lists, hints, and good advice there for snacks, lunches etc.

Hope this helps you some :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,902
    • Total Posts
      919,563
  • Topics

  • Posts

    • Gluten does WHAT to the brain?
      I'm ok, just a little tired right now.  Lots of stress getting elderly parents and in-laws taken care of. My thyroid took a dip low (no surprise there) so I had to increase dose by a quarter grain. Overall, I am not dragging all day but waking up and getting going in the morning is slowwwwwwwww.  I'm sure you understand that! Yeah........Barty.  I thought of her for DAYS on end and it just saddens me to no end that such good people are the ones being taken.  Sometimes life is just so unfair. We all know that but there are times when it really hits you in the gut. There are times I think they are the lucky ones with the way the world is going these days. This terrorism plague is unnerving and I am really getting mad about it. Dear God, please stop this shyte!  I also miss nvsmom and others who have not been heard from. I hope she is feeling better and is just busy with life.  I got glutened on vacation about 6 years ago on the first day in Liverpool.  Jeez, was I sick!  I know how you feel but take heart........that was the last time I was bagged on vacation.  The longer you are gluten free and heal, the faster you recover from hits. You also get very good at not being glutened. It has been almost 2 years since it happened to me last so after 11 years gluten-free, I think I am doing well with that. I still have a little work to do with the vitamin D levels but I work so seeing much sun isn't happening.  My levels have doubled but they are still under 50. This whole Celiac thing is a part time job!
    • Test Results
      Hang in there SLLRUNNER...it is hard and frustrating.  Good job getting that appointment moved up.  I've done too...I've called daily looking for cancellations.  I can also remember counting down the days until my appointment.  ((((Hugs)))) and please let us know how it goes.
    • So I've been glutened....
      Miso soup has gluten in it, doesn't it? =/ I know that I've been avoiding it, which is a big shame because I adore miso!
    • Kissing and gluten
      Hi guys. I know this is a topic that has come up before, but I'd appreciate a little bit of advice. I've been 'courting' a guy for the past few months; nothing has happened yet but we have a proper date in a few weeks which is likely to lead to kissing. He didn't even know what a ceoliac was until a few days ago; I don't think he'd caught the hints that I'd been dropping beforehand. English isn't his first language - he's east Asian. Anyway, I've heard about being potentially glutened via a kiss. How do I broach this? I don't want to scare him off or make him think that I'm a lot of hard work; I know, I know, he's going to have to accept me as I am, etc. but for someone new to the entire thing, it is likely overwhelming. It would be for me if I'd never heard of it! Do I laughingly bring it up beforehand? We aren't going for food so if he isn't eating, just having a cup of tea, will I still need to be careful? If this seems safe, do I just let him kiss me and then bring up afterwards that any future kisses after food will have different precautions?  It all feels so clinical! He's a lovely guy so I do think he'll be understanding, but if anyone has any advice of first hand experience on how to approach the topic without it being a weird moment, that would be great.  
    • gluten-free...how long til I feel better?
      Hi there.  I had been sick for over a year and decided to try and go off gluten within 4 weeks i started to feel better than i had for so long! But my problem is now i test negative for celiac because i have no gluten in my body. I have been told to go back on gluten so it can be determined if i have it or not but im not willing to go back to feeling that sick again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,948
    • Most Online
      1,763

    Newest Member
    VER
    Joined