Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Intolerance And Cross-Contamination


Kazie

Recommended Posts

Kazie Newbie

Hi everyone,

 

I am certain someone has brought up a similar question before, :mellow: but there we go anyway:

 

My GP has recently advised me to try out a gluten-free diet, since he firmly believes I am intolerant. (I've had something similar to a rosacea for over 10 years.) As I get into the third week out of six of a gluten-free diet, my skin has massively improved but I am bothered about one thing...

 

 What about cross-contamination?

 

My general view of my highly probable intolerance was to still eat some products that "may contain traces of gluten", as it's stated on the package. Yet, I fear I should avoid these products too. Here's why:

I am often experiencing the pins and needles syndrome on my forearms or my feet. (I doubt it comes from any physical activity, since I'm only cycling to work and usually don't experience such things on a regular jogging.)

Recently I am often extremely thirsty or have a sore throat in the morning and the evening. (This might be due to summer and air conditioning though.)

 

I'm asking your advice here. Should I also ban these potentially unhealthy products of my diet for the remaining three-four weeks of this test or not? Have any of you experiences something similar with regard to a gluten intolerance?

 

Thanks to you all  :) and thanks for reading !

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Did your doctor test you for Celiac first?  

Link to comment
Share on other sites
Kazie Newbie

He did an electromagnetic resonance test in the first place and was very positive about gluten. I am now waiting for further test results.

Also I went to an allergologist a couple of years ago, but he refused to test me, saying I would know if I had the coeliac disease...

Link to comment
Share on other sites
kareng Grand Master

That's too bad.  If they are so certain its a gluten issue, you would think they would do an actual medical Celiac test.  Ugh!  Knowing if you have Celiac might help you answer your questions about diet and cc.  However, you do need to be consuming gluten for the tests to be accurate.

Link to comment
Share on other sites
kareng Grand Master

He did an electromagnetic resonance test in the first place and was very positive about gluten. I am now waiting for further test results.

Also I went to an allergologist a couple of years ago, but he refused to test me, saying I would know if I had the coeliac disease...

 

Wait... this just sank in, something odd is going on -

How does an MRI tell you you have an issue with gluten?  What did they scan?  I think you should go back and ask some more questions. LIke -   what were they really looking for?  why did they stop looking? Why won't they do a simple Celiac blood test?

Link to comment
Share on other sites
Kazie Newbie

Wait... this just sank in, something odd is going on -

How does an MRI tell you you have an issue with gluten?  What did they scan?  I think you should go back and ask some more questions. LIke -   what were they really looking for?  why did they stop looking? Why won't they do a simple Celiac blood test?

 

Hi Kareng. I didn't take an MRI, my doctor did an electro-magnetic resonance test, about which you can read more up here: Open Original Shared Link

 

I think that each country has a different way to approach celiac disease: Whilst in Switzerland I went to many doctors (dermatologues, alergologists, etc.) none ever mentioned the possibility of a gluten intolerance or they simply refused to test me when I asked them to do so. Now I've been living in France for a year and they prefer that the patient makes some efforts, in some ways taking a diet for six weeks, to better understand the condition. Of course, I will take more conclusive tests if I the first ones are conclusive.

 

I'm a female, 23 years old, 121 pounds for 5 ft. 4.96. As such, healthy as a horse, but some latent "condition" has been affecting me for years and no doctor was able to point it down to something up to now.

 

I hope this might help you to follow my point  :)

Link to comment
Share on other sites
Hoos Newbie

If your physician prefers that you try a gluten-free diet before (or instead of) performing an actual test for Celiac disease or gluten intolerance, I would definitely avoid all gluten - even trace amounts.  People can be sensitive to and react to very minute amounts of gluten. Cross-contamination can be a source of gluten, too.

 

Good luck and welcome.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,221
    • Most Online (within 30 mins)
      7,748

    lortaine
    Newest Member
    lortaine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...