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Can You Help Me With This Rash?

Frances03

By Frances03
in Dermatitis Herpetiformis

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Frances03 Enthusiast
Frances03
Posted

I have celiac disease and was diagnosed in 09 and have been gluten free since then. Occasionally I get this rash, but this time it is not going away. The places I have it are on both sides of my neck which is sort of one small cluster on each side, the inside/front of both arms above the elbow which are both in a straight line of one bump/blister each making a row of 4 or 5 bumps, across my chest in very small groupings/clusters, on my upper back in clusters, one bump only on each side in front of my hips, and same in back of hips, and then several bumps on each leg. They itch like complete insanity. If I get in to a hot bath or hot water, the itch becomes unbearable. They don't heal or go away or change or get worse or anything. They are like little blisters until I scratch them and then tiny little sores. If they ever do go away, they leave sort of dark purple spots for months and months. Can anyone relate to this and tell me what it might be, and if it could be related to my celiac disease? Thank you!

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LauraTX Rising Star
LauraTX
Posted

Have you seen a doctor about this yet?  It maybe a good idea to set up an appointment, since so many things can cause a rash.

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cyclinglady Grand Master
cyclinglady
Posted

I assume that you have completely ruled out DH (celiac rash)? Celiac disease can evolve and manifest in so many ways. Are you sure you are not getting exposed to gluten (new meds, etc?)

I hope you can figure it out!

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squirmingitch Veteran
squirmingitch
Posted

I assume that you have completely ruled out DH (celiac rash)? Celiac disease can evolve and manifest in so many ways. Are you sure you are not getting exposed to gluten (new meds, etc?)

I hope you can figure it out!

I second these thoughts. 

You should probably go to your doctor & see if your blood panel is signifying dietary compliance.

Go through everything you put in your mouth & re-check to make sure it is truly gluten free. Do you eat out?

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Frances03 Enthusiast
Frances03
  • Author
Posted

Actually I am wondering if this sounds like a celiac rash. I don't know what I would be eating that would have gluten regularly, but I am sure I could have been glutened at a restaurant. We don't go out often, and if I do it's only to places I don't usually have a problem with, like getting fries at five guys. But recently I went to two restaurants that assured me they were safe, but who knows really. I'd did have a blood panel within the last 6-8 months and they told me the results were fine, though I didn't see them for myself. But I haven't had any testing done with this rash. I could be getting exposed somehow.

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squirmingitch Veteran
squirmingitch
Posted

It sounds like dh to me. The way you describe it presenting & how it acts. You could go to a derm & have it biopsied IF they do the biopsy correctly --- NEXT to not on an FRESH lesion. IMHO you're getting glutened somewhere.

I'm not sure how it will work with you on the bloods now since you didn't have dh when you were dx'd but those of us who present with dh before a dx test negative on the bloods 60% of the time. We generally have to get a dh biopsy. 

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