Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Restaurant Gave Me Regular Bread And I Didn't Realize It


LauraH

Recommended Posts

LauraH Newbie

AAGGHHH!!!  I rarely eat out because I also have microscopic colitis, and my diet is ridiculously restricted and the symptoms quick and severe if I eat something wrong, but I was out with some friends - expected to leave to eat at home, but it went long, so I got brave and ordered cheese and gluten-free bread.  The restaurant has a good reputation for being careful with their gluten-free foods and other dietary issues.    

 

I should have just eaten the cheese since I know that's always safe,  but I was too hungry and lost my good judgment and willpower.  Also I haven't had any bread since my diagnosis,  so didn't really realize for a bite or two that the bread I had was regular bread.  Once I clued in that the bread was too soft,  I asked the waitress (had been really clear about the gluten-free bread when I ordered) and she was barely apologetic.  OMG.  

 

I left immediately to get home before the symptoms started (got glutened a couple of months ago and had uncontrollable d and awful nausea all night long, followed by a few days of joint pain and brain fog and migraine.  I took some gluten-enzyme and have some activated charcoal (pharmacist recommended) for in an hour or so if the symptoms get too bad.  I am having pains and cramping...ugh.  

 

Anyway, this is just a vent and warning - you can't trust ANYONE, always ask again before you start eating if you ordered something that isn't obviously gluten-free (like beans),  and always carry your own snacks!

 

SO frustrated that the restaurant obviously decided I was gluten-free to be trendy and didn't really have a health issue.  

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

So sorry! Hope you feel better soon!

Link to comment
Share on other sites
bartfull Rising Star

Major bummer! :(

 

I always keep a couple of Lara Bars in my purse and a small bag of Planter's nuts. That way if I get caught out late and need to eat at least I have something to hold me over 'til I get home.

 

Hope you get over this quickly.

Link to comment
Share on other sites
luvs2eat Collaborator

That's my worst nightmare and why we almost NEVER eat out. I'd have been tempted to stay there and let them SEE what happens when they don't take your gluten free needs seriously... but, for me, it's so severe and explosive (from both ends... sorry for the TMI) that they'd have to scrape me off the floor!

 

Did you contact the restaurant after the fact and let them know what happened?

Link to comment
Share on other sites
LauraH Newbie

That's my worst nightmare and why we almost NEVER eat out. I'd have been tempted to stay there and let them SEE what happens when they don't take your gluten free needs seriously... but, for me, it's so severe and explosive (from both ends... sorry for the TMI) that they'd have to scrape me off the floor!

 

Did you contact the restaurant after the fact and let them know what happened?

Yes, I let them know right away and talked to the manager, who offered me different food (uh, no, I had to leave right then for the same reason you'd want to stay and share it with them ;-) ) and then they offered me a gift card, which I declined because I don't plan to return.  I'm doing ok, a few days later - still some stomach pain, joint pain and the squirts, and feeling faint every time I move.  I had forgotten that awful faint feeling, it's been so long since I got glutened.  Other stuff gives me the other symptoms, but gluten must be the only thing that gives me the faints.    

Link to comment
Share on other sites
icelandgirl Proficient

Ugh!! I'm so sorry this happened to you! I hope you feel all better soon.

Link to comment
Share on other sites
psawyer Proficient

... and then they offered me a gift card, which I declined because I don't plan to return.

Hmm. So... no incentive for the restaurant to improve their practices, since you are not coming back.

I would have accepted the card even if I had no intention of using it, because the hope that I would return could be a motive to actually try to fix the problems.

Just saying.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraH Newbie

Hmm. So... no incentive for the restaurant to improve their practices, since you are not coming back.

I would have accepted the card even if I had no intention of using it, because the hope that I would return could be a motive to actually try to fix the problems.

Just saying.

 

Good point.  At that moment I really just needed to get home, and didn't feel like I had time to wait for a gift card.  I was wearing light colored shorts... My friends definitely gave the manager and waitress some pieces of their minds too.  They have a decent sized gluten-free menu, so they normally take it pretty seriously, and I expect they will in the future.  It was probably more of a training-of-that-one-waitress issue than a restaurant issue.    

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
×
×
  • Create New...