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Itchy Skin


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19 replies to this topic

#1 Cindy Chabot

 
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Posted 17 November 2005 - 05:49 AM

Last Friday I think I had a bad gluten experience. I went out for lunch with some coworkers, and I thought I ate safely. Within an hour of returning to work I felt dizzy and then I quickly ran to the washroom to vomit. Since them I have had itchy skin on my arms, I even wake up from the itchiness. I would appreciate some feedback.
Thanks!
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Cindy

Positive biopsy
gluten-free since August 4, 2005
Son - positive biopsy
gluten-free since August 4, 2005

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#2 jerseyangel

 
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Posted 17 November 2005 - 06:01 AM

I frequently have itchy skin on my arms, mostly, but sometimes on my thighs and back. Mine happens without having been glutened. I think its another symptom of Celiac. I would love to know if anyone with more experience has any thoughts on this. I have no rash--just itch.
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#3 mart

 
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Posted 17 November 2005 - 06:47 AM

I'm no expert, but I can certainly tell you that my 7 year old with celiac disease CONSTANTLY complains of itching on his back and arms. We work very hard to keep him gluten-free, so I think the itching is probably just part of condition.
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#4 jenvan

 
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Posted 17 November 2005 - 06:51 AM

Are you aware of DH? It is the itchy skin rash that frequently accompanies Celiacs. Read more here: http://www.csaceliac.../dh_defined.php
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#5 uclangel422

 
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Posted 17 November 2005 - 07:50 AM

I have been having the same problem. I do not have a rash or anything that looks like DH but i cannot stop itching. It is dry and windy here in So Cal so i thought maybe that was it. I havent changed soap or detergent or anything but i am so itchy. If anyone knows a way to make it stop, please let me know.
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#6 dlp252

 
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Posted 17 November 2005 - 07:56 AM

I have been having the same problem. I do not have a rash or anything that looks like DH but i cannot stop itching. It is dry and windy here in So Cal so i thought maybe that was it. I havent changed soap or detergent or anything but i am so itchy. If anyone knows a way to make it stop, please let me know.

<{POST_SNAPBACK}>


Same here, I get itchy mostly on my lower legs and it's been happening on and off for many, many years now. And, it doesn't take much scratching to make huge welts. I've tried almost every lotion available here, and my dermatologist told me to use a couple of creams but they didn't offer much help. There is never any outward indication--no bumps, no rashes, no redness, nothing just itching. I apply lotions and more lotions which don't really help, but at least my skin isn't dry. I also have one spot on my heel that seems to itch from the inside...it has even kept me awake at night--same thing, no outward indication. I've seen two different dermatologists and two allergists for it. <_<
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#7 deb.h.

 
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Posted 17 November 2005 - 04:55 PM

This whole road of finding I was gluten intolerant started with a severe itch that I had in my legs for about ten days. I went crazy. i knew I couldn't scratch or i would have no skin left. The doctor said that i had dermographism. No one really knows the trigger but it is a general allergic like reaction in the form of itching. if i were to scratch my skin say a line with my fingernail there would become quite a raised pink line that would take 10 minutes or more to go away. that is how he knew i had it. I have found over the years that staying away from any foods that I am sensitive to especially sulphites. nitrates and preservatives helps alot. I can go months and months without an incident. Gluten doesn't seem to be the direct culprit because i have now been gluten free for three years. It is like an autoimmune reaction.
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#8 Cindy Chabot

 
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Posted 17 November 2005 - 06:10 PM

Thanks everyone for your input. I guess I need to try to determine other things that could be causing the rash in addition to possibly gluten. :)
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Cindy

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Son - positive biopsy
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#9 dlp252

 
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Posted 18 November 2005 - 06:06 AM

This whole road of finding I was gluten intolerant started with a severe itch that I had in my legs for about ten days. I went crazy. i knew I couldn't scratch or i would have no skin left. The doctor said that i had dermographism. No one really knows the trigger but it is a general allergic like reaction in the form of itching. if i were to scratch my skin say a line with my fingernail there would become quite a raised pink line that would take 10 minutes or more to go away. that is how he knew i had it. I have found over the years that staying away from any foods that I am sensitive to especially sulphites. nitrates and preservatives helps alot. I can go months and months without an incident. Gluten doesn't seem to be the direct culprit because i have now been gluten free for three years. It is like an autoimmune reaction.

<{POST_SNAPBACK}>


Debbie, thank you so much for the name!!!! That's it exactly. One day my legs looked like a raised road map! Now at least I know what it's called.
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#10 Guest_kim07_*

 
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Posted 20 November 2005 - 08:22 PM

Last Friday I think I had a bad gluten experience.  I went out for lunch with some coworkers, and I thought I ate safely.  Within an hour of returning to work I felt dizzy and then I quickly ran to the washroom to vomit.  Since them I have had itchy skin on my arms, I even wake up from the itchiness.  I would appreciate some feedback.
Thanks!

<{POST_SNAPBACK}>


Hello there Cindy,

I was diagnosed with Celiac Disease from a (promethius blood test, and a biopsy) 2 years ago. I have had an "itchy skin ever since I was diagnosed". I always thought maybe it was due to the weather, so I used oatmeal soap 'Aveeno' anti itch body wash, thinking it might help with the itchiness. In the beginning it did seem to help for the most part. On many nights though it didn't help at all, the itchiness wouldn't go away no matter what, would keep me up till 3 or 4am in the morning, and start to seriously affect my sleep.

Of course, now I realize using Aveeno soap (because of the oatmeal) was not the smartest or best soap to use, on my skin because of the oats due to my Celiac Disease. So I have stopped using what I call now the "evil" soap, and have thouroughly checked all of my other beauty products for any traces of gluten.

I have always believed as someone who has had Celiac Disease for 2 years that my itching was a symptom of my Celiac Disease. I mean it started around the exact same time, so that made sense to me.

I've always believed in a "connection" between my itching and having celiac disease, and the most frustrating thing for me was one day asking my gastroenterologist if he believed there was a connection, and him replying that, "Oh no, celiac disease having an effect on the skin like that would be so rare". Sometimes they would just look at me like I'm totally insane for asking such a question.

Doctors do not know how much we suffer, sometimes I feel unfortunatley that we are more educated then they are when it comes to our bodies, our symptoms, and how this disease is effecting us.

Anyways, Cindy, the first thing I would do, is look at the body soap your using make sure it is safe and gluten free, use a safe lotion (helps with itching) that is gluten-free!, make sure that the shampoo and conditioner is safe, your dishwashing liquid, your laundry detergent, make up, everything that you can come in contact with, toothpaste, everything! And see if this helps at all.

When it comes to itching I know all!! I have sufferred pretty badly from it. Luckily I don't have DH, Celiac's whom have DH suffer horrendously, and worse than me. But if I accidently eat something tainted that had gluten in it, I immediately break out in Hives, not fun. Itchy, red, inflamed, hard, bumps, tingling, all over; dermatologist grade creams don't work, I'm on a high dose of Prednisone right now to help with the intense itching. If I don't take the Prednisone, I'm not even able to wear clothes, the clothes feel horrible against my skin. It keeps me up till 3 or 4am in the morning, and just makes me absoutely miserable, to say the least. This is from one accidental ingestion of a product I thought was safe, and the allergist and dermatologist don't know how long the hives will last.

I'm not itching now due to 2 antihistamines, and 2 prednisone pills a day. I'm just really DROWSY. I finally have some peace though, and I can finally sleep through the night.

So, Cindy I too know a lot about itching! And I deffinitely believe there is a correlation between the itching and this disease.

I'm learning to cope with my hives, because my doctors can't tell me how long I will have them (they hope 2-4 weeks), I'm trying to pick myself back up and not let this beat me, I've never had hives before so (during what was a very good time for me), it knocked me off my feet, should I say. But they are not going away, I keep waiting, and my life is quickly passing me by.


I realize that waiting isn't the answer, and that I need to start living again despite being very uncomfortable sometimes! And that is what I'm trying to do! I got satin sheets! My husband keeps sliding off in the middle of the night :lol: , I wear 100% cotton clothes, or sometimes nothing but my underwear and a throw if my skin is too sensitive, and I make sure that gluten mistakes don't occur, can't occur! As much as I can darn well help it. Because I never ever want to itch like this again, (so I do my best to avoid it), so I'm so much more careful, than I ever have been before.

Cindy, I guess what I'm trying to say is this, I do think itching is part of Celiac Disease for some people. It doesn't necessarily have to be DH or hives, just plain old annoying itching.

If you ever need to talk to anyone when your frustrated, and can't sleep due to itching, write me! I'll talk to you! I'm used to this symptom, me and this symptom go way back. It's a hard symptom to deal with. But it does not last forever. There is an end to it. So if you need to talk or vent to anyone about it, you can feel safe to do so with me, anytime,-

Bye, Kim.
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#11 Claire

 
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Posted 20 November 2005 - 08:49 PM

I do not have celiac disease. I have not yet tested for non-celiac gluten sensitivity. I am a postive Type II, Delayed Food Reactions - all grains except oats and rice.

I itched steadily for 10 years! Mostly this was in the evening and into the night. I used to have a friend spray me with Solarcane before I went to bed so I could sleep.

I had every allergy patch test known to man. All negative.

I finally found my way to a chiropractor/nutritionist who took the blood samples and sent them to Immuno Labs in FL. - thus the Delayed Food Reaction diagnosis.

No one mentioned gluten. I just stopped eating produdcts that had flour in them. Within a week the itching had virtually stopped. I would have brief 'attacks' - usually much milder than what I had for so long. This almost always happened when I went to a restaurant.

There were other foods on my reactive list. Most trigger GI issues rather than itching but to this day itching is still my first warning that I have gotten something I can't handle.

Initially I itched head to heels. Later it became localized. Sometimes an arm, then after awhile that would change to a leg. It would move around the body - always remaining in one spot for quite awhile and then change location.

It still happens but not often and nothing really serious like it once was. I am Gluten-free Casein-free and watch a whole lot of other reactive foods. Claire
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#12 darlindeb25

 
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Posted 21 November 2005 - 03:26 AM

My sister and I both have suffered through this itching too. We found quite often it is set off by the water. We both had water softeners installed in our homes, which helped tremondously, we live in an area with very hard water. There are times here that I will get to itching after a shower too--it's usually worse after a shower and yes, I do read the ingreds of my soaps, shampoos, etc. Sometimes at work, out of the blue I will start itching. It gets red with streaks like all of you have stated and then goes away after a while. I to believe it to be a celiac thing. I also agree that doctors dont realize how much we go through as celiacs and yes, I also feel we know more about this disease then they do. The doctor I am going to admitted to that fact, but he also said he will be happy to learn all he can from me--that's a start. Deb
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#13 kevsmom

 
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Posted 21 November 2005 - 03:49 AM

I have to take a pair of scissors or a letter opener to scratch my back all the time. I can't get my 17 ear old son to scratch it for me ("euw mom <_< " ) There is no rash. As far as I know, I have not been glutened, but I'm still learning.
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#14 elisabet

 
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Posted 21 November 2005 - 04:11 AM

My son had very itchy skin,he also couldn t have a proper night sleep,after eliminating gluten ,casein ,and soy, he dosen t itch at all,it took about 6 weeks to see the difference,and dot better and better with time,he gets the itchy skin if gets gluten or casein.
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#15 Cindy Chabot

 
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Posted 21 November 2005 - 05:23 PM

Thanks for that thorough reply Kim. A couple of people have mentioned a relationship between casein and rashes. I have not heard about this before. Does anyone have any information?
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Cindy

Positive biopsy
gluten-free since August 4, 2005
Son - positive biopsy
gluten-free since August 4, 2005




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