Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Symptoms


Zachm

Recommended Posts

Zachm Contributor

Hello (: Ive been on here a few times and made a couple posts, but I was wondering if I could really get opinions on other sufferers. I got "diagnosed" back in late July from a few blood tests and the doctor felt sure that's what it is. Before July I was just irregular mainly. I went from being a one time a day person to 5,6, or 7 times a day and sometimes not going at all certain days and just an "icky" feeling in my stomach like I can constantly go. So I start going gluten free and my stomach feels VERY bad usually constantly. I watch out for dairy, wont put anything in my mouth or hands that doesn't read gluten free and I didn't make myself(on a couple occasions Ive eaten out but Ive been anal about it. But since going gluten free Ive experienced the worst pains about 7-10 times now. Always about 4am I get woken up by horrible stabbing cramps above my belly button and diarrhea that's starts out like "this is going nowhere but just cramps, then oh wait nope"   and it wont go away and I usually take immodium and fall asleep. I went to my GI the first time a couple days ago and he really hasn't said anything but he wants to do an endoscopy, but my insurance did the loveliest thing and dropped me and between 17 credit hours at college and remodeling a home I have no time to really look up insurance and when I do they say it cant start til November and I do want to get this figured out before then, hopefully. Don't be shy to comment, I just want opinions. Oh and if it makes a different, I have a really loud stomach and for some reason have been getting what feel like uti's but they make no sense...?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am sorry that you lost your insurance (been there and done that).  So, you had a positive blood test in July.  You saw the GI, but without insurance you can not do the endoscopy.   You already went gluten-free, if I recall.    Consider staying gluten-free until you can do a gluten challenge when you are not in school and have insurance.  You may have to have it earlier and without the challenge if you do not get relief from your symptoms.  Things like SIBO or colitis need to be ruled out.  Continue to avoid milk for now.  Watch and be sure everything you eat is gluten-free.  Avoid processed foods as much as possible -- like those Cherrios!  

The diet learning curve is steep.  That is one reason for a slow recovery.  I know you are in pain.  I am so sorry.  Keep at it and you will feel better soon.  

 

Link to comment
Share on other sites
bartfull Rising Star

Are you putting up sheetrock? Sheetrock mud is full of gluten and when you sand it it gets in the air like flour dust. You breathe it in and it gets in the back of your throat where you swallow it.

Also, if you haven't already (or even if you have), go to the coping section and read the Newbie 101 thread.

Link to comment
Share on other sites
cyclinglady Grand Master

Are you putting up sheetrock? Sheetrock mud is full of gluten and when you sand it it gets in the air like flour dust. You breathe it in and it gets in the back of your throat where you swallow it.

Also, if you haven't already (or even if you have), go to the coping section and read the Newbie 101 thread.

Great catch, Bartie!  

Link to comment
Share on other sites
Galixie Contributor

I really know nothing on this subject but the first thing I thought about when reading your description was 'could it be a gallbladder problem?'

The insurance thing is a drag, but if you put off signing up for it, it will take even longer for you to be covered. Since specialists often have fairly long waiting lists, it might work out to sign up for insurance now, find out what specialists are covered and immediately book an appointment for the day your coverage begins.

Obviously, if it feels like it is becoming life-threatening you should get to an ER despite the lack of coverage. Most hospitals will let you work out a payment plan. That sounds like such a unpleasant pain. I hope you can get it diagnosed soon.

Link to comment
Share on other sites
Zachm Contributor

I really know nothing on this subject but the first thing I thought about when reading your description was 'could it be a gallbladder problem?'

The insurance thing is a drag, but if you put off signing up for it, it will take even longer for you to be covered. Since specialists often have fairly long waiting lists, it might work out to sign up for insurance now, find out what specialists are covered and immediately book an appointment for the day your coverage begins.

Obviously, if it feels like it is becoming life-threatening you should get to an ER despite the lack of coverage. Most hospitals will let you work out a payment plan. That sounds like such a unpleasant pain. I hope you can get it diagnosed soon.

Ive honestly wondered about that. I am twenty one and my sisters went at about 22 and had to get it removed, my moms was bad at about 30, so I wouldn't doubt it and thankfully we just paid out of pocket to visit the specialist because it took over a month to get that appointment and we couldn't give that up. It seems unbearable some nights and Ive honestly thought about going to the hospital, but who knows

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    2. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    3. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    4. - trents replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    5. - Julie Riordan posted a topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,489
    • Most Online (within 30 mins)
      7,748

    Ronnieb8675
    Newest Member
    Ronnieb8675
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
    • trents
      There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?
    • Julie Riordan
      Just wondering can anyone help me out.heading on holidays and don’t really know what expect.if I get glutened are there tablets that you can take
×
×
  • Create New...