Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mystery Diagnosis; Discovery Health Channel
0

23 posts in this topic

Mystery Diagnosis Like Mother, Like Son a one hour episode, featuring Dr. Green and his patient Eamon Murphy and family,

will be on the Discovery Health Channel, Sunday, November 27, 8:00 pm.

The Discovery Health Channel varies based on your geographic location. For NYC, the channel is 115. You may want to check with your local cable provider for the channel in your area.

The program features stories about diseases, including celiac disease, that are difficult to diagnose. Stay tuned for this important program!!!

For additional information, or to visit the discovery health channel online, click here: http://health.discovery.com/tvlistings/epi...d=0&channel=DHC

All the best,

Cynthia

Cynthia Beckman

Director of Development

Celiac Disease Center at Columbia University

161 Fort Washington Avenue

Suite 645

New York, NY 10032

Tel (212) 342-4529

Fax (212) 305-6443

www.celiacdiseasecenter.org

0

Share this post


Link to post
Share on other sites


It was pretty good--I saw it a few weeks ago. Great to see Celiac discussed on TV

0

Share this post


Link to post
Share on other sites

I saw this episode a couple weeks ago.

I dont want to spoil it for anyone but...the little boy has celiac disease. :ph34r:

0

Share this post


Link to post
Share on other sites
I saw this episode a couple weeks ago.

I dont want to spoil it for anyone but...the little boy has celiac disease.  :ph34r:

<{POST_SNAPBACK}>

:lol::lol::lol:

0

Share this post


Link to post
Share on other sites

Darn, Rachel, you took all the suspense out of it!!!! <_<

Karen

0

Share this post


Link to post
Share on other sites

First giggling, and now this? Rachel, you are *SOOO* in detention!

:D

Stephanie

0

Share this post


Link to post
Share on other sites

I just got this update e-mail from the Celiac Center (at Columbia).

Like Mother, Like Son a one hour episode, featuring Dr. Green and his patient Eamon Murphy and family

Based on this, I kind of inferred he did, lol :lol:

0

Share this post


Link to post
Share on other sites
First giggling, and now this? Rachel, you are *SOOO* in detention!

:D

Stephanie

<{POST_SNAPBACK}>

:lol::lol::lol:

0

Share this post


Link to post
Share on other sites
First giggling, and now this? Rachel, you are *SOOO* in detention!

:D

Stephanie

<{POST_SNAPBACK}>

He-He :lol:

I guess I was feeling a little naughty last night...don't know what came over me. :ph34r:

Now I'm having flashbacks of my detention days....boy was that fun!

0

Share this post


Link to post
Share on other sites

11/27 8PM Discovery Channel

REMINDER

0

Share this post


Link to post
Share on other sites

Excellent idea to bump this, Deb. Thank you.

0

Share this post


Link to post
Share on other sites

missed it, darn!

0

Share this post


Link to post
Share on other sites

Jen-- Keep watching for it, I saw it about a month ago. I think they repeat shows pretty frequently. :)

0

Share this post


Link to post
Share on other sites

I watched it last night-was very impressed. Good info on it!

0

Share this post


Link to post
Share on other sites

It was a good show but the whole hour wasn't about the Murphys. Strange, but the third story sounded more like somebody with celiac than the Murphy story.

richard

0

Share this post


Link to post
Share on other sites

Yeah Richard, come to think of it, I did too. I identified more with her case than with the little boy. Of course, I was DX at a much older age than he. Just shows how symptoms of celiac disease get mistaken for other things....

0

Share this post


Link to post
Share on other sites

Even Peter Greene said the boy's symptoms were very atypical. To me the real outrage was that the mother's doctor told her not to worry about family members having it, and that it took doctors so long to say, hey, she has celiac, maybe we'd better throw that test in even though this is an unusual symptom.

richard

0

Share this post


Link to post
Share on other sites

I havent seen this show, but have heard a lot about it. Its my understanding that the boy had a seizure(s)? I had a seizure (my one and only) about 3 months ago and then was diagnosed Celiac about 1 month after that. Neither my top notch neurologist nor my celiac specialist has been able to tell me if they are connected. Did this show discuss the seizure aspect at all, that any of you can remember?

0

Share this post


Link to post
Share on other sites
I havent seen this show, but have heard a lot about it. Its my understanding that the boy had a seizure(s)? I had a seizure (my one and only) about 3 months ago and then was diagnosed Celiac about 1 month after that. Neither my top notch neurologist nor my celiac specialist has been able to tell me if they are connected. Did this show discuss the seizure aspect at all, that any of you can remember?

I dont really remember them getting into the seizure aspect. Did he have a seizure? I saw the episode about a month ago...I dont remember if he actually had a seizure...he would kind of go into a catatonic (sp?) state. It was like he was zoned out...is that a seizure? :unsure:

0

Share this post


Link to post
Share on other sites
I dont really remember them getting into the seizure aspect. Did he have a seizure? I saw the episode about a month ago...I dont remember if he actually had a seizure...he would kind of go into a catatonic (sp?) state. It was like he was zoned out...is that a seizure? :unsure:

hmmm... I think it would probably be classified as a type of seizure. There are many different levels. Sometimes you are awake and conscious when its happening - sometimes you are not. I was not - I had a grand mal. I just find it all to be waaaay too coincendental if the seizure and the celiac disease were not related. Anyway - I will have to watch the show - i just keep missing it. Damn! these are the times when i really really wish i had Tivo.

0

Share this post


Link to post
Share on other sites

I was cat sitting for my parents when this was supposed to be on and they have this channel, but I don't. So I rushed over there in time to see it, found the channel amongst the hundreds of channels and the show was actually on! I was so excited, I sat through the first two stories and they obviously weren't celiac, then the third one came on and I'm like "this must be it" and the symptoms were tired, diarrhea, but it wasn't celiac! I don't know what happened, but it was obviously a different episode.

0

Share this post


Link to post
Share on other sites
missed it, darn!

Its going to be on again on december 4 this sunday and then again someother time in december. i found this out on their website their three times that i cant remeber but if you go the website it will tell you and you can sign up for a reminder of when its going to be on.

Lauren

0

Share this post


Link to post
Share on other sites

Repeat dates:

12/4 @ 2 PM

12/26 @ 6 PM

Discovery Health Channel (not regular Discovery Channel)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,722
    • Total Posts
      914,577
  • Topics

  • Posts

    • Anyone done commercial testing?
      Thanks @LauraTX, @squirmingitch had recommended them before, and finally I've just joined up. I'll see about collaborating with them. 
    • Glutening symptoms five days to a week after consumption?
      Me too Missy.   Four days.  It has made sorting this out very difficult to say the least.
    • does your diet have to be like a perfection?
      First ~ Re-introducing gluten after so many years is an "old" thing.  I am 6 years diagnosed and I was originally told that  same thing by my Dr.  At the time my doctor was not  terribly familiar with Celiac and started doing research right along with me.  After she did more research on the (then) current studies she changed that to a "never eat gluten again!"  What happens, with some people (note I say "some"), is that once your gut does heal you enter into what can be called the "honeymoon" period.  Your gut is healed and you can consume gluten without feeling physically sick.  But...  and this is the biggy should you be one of those who can tolerate it.....  eventually you will get sick again.  And all during the time you were happily munching on gluten and not feeling physically sick the damage to your insides was still going on.  So... only you can answer if it is worth it or not.  I say no!! Second ~ I am 6 years gluten free.  I can count the number of times I have consumed gluten, each time was a total accident.   So, to your question on consistency, I would say it has been six years. And third ~ As for perfecting the diet, well, that can have several answers.  Yes, like most everyone, I struggled greatly in the beginning to learn what gluten was and where it hides.  My feeling of perfection came after about 3 years when I discovered the Paleo diet and went pretty strict Paleo.  That is when it became a very simple thing and my health improved dramaticly.  Personally, I would grab a Paleo book, see how simple g.f. can be.  Read about the effects wheat can have on everyone (not just those with celiac) and I think you will have an easier time of it.  Good luck to you.  !!  
    • Suspect Celiac, no medical access, options?
      Hi everyone, I'm new here!  So, I'll just give the short version first, and we can go from there.   I'm a 46 year old man who has had mysterious health issues my whole life, but only recently began to suspect dietary causes.  I am now quite sure that most of my issues for the last 40 years have been related to wheat, and now I am reacting to at least one form of Corn as well, as best I can tell on my own here.   I'm part of the US demographic that has fallen between the cracks in the medical system, and I have never felt like I had the luxury of medical help.  This is something I intend to work through in the coming months, as it's obvious to me I need some help here.  That said, I've read enough to know I would like to initiate the testing procedure.   Has anyone had any experience with using a walk-in clinic or the like to take the samples and handle the transfer to the labs to get the testing done?  I am imagining I could just walk in and get blood taken and instruct them which labs and what tests and be done with it, but.....?  I dunno, maybe it won't work that way.  At any rate, it's going to be a long, difficult process for me to figure out regular health care, and in the meantime, I'd like to figure out what's killing me here!    Any advice is welcome!
    • Gluten challenge. Random reactions of gluten sensitivity (brain fog)
      hi all, I have brain fog and I suspect that is due to gluten sensitivity.  When I became aware of those symptoms in the past, I did an elimination diet, and gluten introduction  seemed to correlate with the perceived brain fog Then, I was off gluten for a year, but because it is self-diagnosed it is not always easy to explain it and remain 100% gluten free when, for example, travelling or invited to someone's house for dinner. So, I thought I wanted to get to the bottom of this and check for celiac decease first. I have been doing a gluten challenge for the last 4 weeks, and my symptoms are very strange. Sometimes, I eat a slice of cake or a croissant and I can be tired and foggy for the whole day.  Strangely,  there are other times where i can eat bread or a full pizza and have no symptoms at all. Beer is strange, sometimes it affects me, sometimes it does not at all... I am not sensitive to Pasta so far... I am very confused. I thought that maybe it was because the consumed gluten quantity but there does not seem to be any correlation at all. Sometimes, I think that it has to be something else (not the gluten) that is causing those reactions. I cannot understand the random reaction to gluten.  Does anybody have a similar experience or an insight or what could be going on? Thanks!!!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,773
    • Most Online
      1,763

    Newest Member
    Jedi G-Ma
    Joined