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Mystery Diagnosis; Discovery Health Channel


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22 replies to this topic

#16 jerseyangel

 
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Posted 28 November 2005 - 08:56 AM

Yeah Richard, come to think of it, I did too. I identified more with her case than with the little boy. Of course, I was DX at a much older age than he. Just shows how symptoms of celiac disease get mistaken for other things....
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Patti


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#17 lovegrov

 
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Posted 28 November 2005 - 10:44 AM

Even Peter Greene said the boy's symptoms were very atypical. To me the real outrage was that the mother's doctor told her not to worry about family members having it, and that it took doctors so long to say, hey, she has celiac, maybe we'd better throw that test in even though this is an unusual symptom.

richard
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#18 hlm34

 
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Posted 28 November 2005 - 02:22 PM

I havent seen this show, but have heard a lot about it. Its my understanding that the boy had a seizure(s)? I had a seizure (my one and only) about 3 months ago and then was diagnosed Celiac about 1 month after that. Neither my top notch neurologist nor my celiac specialist has been able to tell me if they are connected. Did this show discuss the seizure aspect at all, that any of you can remember?
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#19 Rachel--24

 
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Posted 28 November 2005 - 03:37 PM

I havent seen this show, but have heard a lot about it. Its my understanding that the boy had a seizure(s)? I had a seizure (my one and only) about 3 months ago and then was diagnosed Celiac about 1 month after that. Neither my top notch neurologist nor my celiac specialist has been able to tell me if they are connected. Did this show discuss the seizure aspect at all, that any of you can remember?


I dont really remember them getting into the seizure aspect. Did he have a seizure? I saw the episode about a month ago...I dont remember if he actually had a seizure...he would kind of go into a catatonic (sp?) state. It was like he was zoned out...is that a seizure? :unsure:
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Rachel

#20 hlm34

 
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Posted 29 November 2005 - 10:05 AM

I dont really remember them getting into the seizure aspect. Did he have a seizure? I saw the episode about a month ago...I dont remember if he actually had a seizure...he would kind of go into a catatonic (sp?) state. It was like he was zoned out...is that a seizure? :unsure:

hmmm... I think it would probably be classified as a type of seizure. There are many different levels. Sometimes you are awake and conscious when its happening - sometimes you are not. I was not - I had a grand mal. I just find it all to be waaaay too coincendental if the seizure and the celiac disease were not related. Anyway - I will have to watch the show - i just keep missing it. Damn! these are the times when i really really wish i had Tivo.
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#21 mytummyhurts

 
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Posted 29 November 2005 - 01:31 PM

I was cat sitting for my parents when this was supposed to be on and they have this channel, but I don't. So I rushed over there in time to see it, found the channel amongst the hundreds of channels and the show was actually on! I was so excited, I sat through the first two stories and they obviously weren't celiac, then the third one came on and I'm like "this must be it" and the symptoms were tired, diarrhea, but it wasn't celiac! I don't know what happened, but it was obviously a different episode.
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#22 Guest_CD_Surviver_*

 
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Posted 29 November 2005 - 02:48 PM

missed it, darn!

Its going to be on again on december 4 this sunday and then again someother time in december. i found this out on their website their three times that i cant remeber but if you go the website it will tell you and you can sign up for a reminder of when its going to be on.
Lauren
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#23 debmidge

 
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Posted 30 November 2005 - 03:01 AM

Repeat dates:

12/4 @ 2 PM

12/26 @ 6 PM

Discovery Health Channel (not regular Discovery Channel)
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003




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