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Mystery Diagnosis; Discovery Health Channel
#16
Posted 28 November 2005 - 08:56 AM
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
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#17
Posted 28 November 2005 - 10:44 AM
richard
#18
Posted 28 November 2005 - 02:22 PM
#19
Posted 28 November 2005 - 03:37 PM
I havent seen this show, but have heard a lot about it. Its my understanding that the boy had a seizure(s)? I had a seizure (my one and only) about 3 months ago and then was diagnosed Celiac about 1 month after that. Neither my top notch neurologist nor my celiac specialist has been able to tell me if they are connected. Did this show discuss the seizure aspect at all, that any of you can remember?
I dont really remember them getting into the seizure aspect. Did he have a seizure? I saw the episode about a month ago...I dont remember if he actually had a seizure...he would kind of go into a catatonic (sp?) state. It was like he was zoned out...is that a seizure?
#20
Posted 29 November 2005 - 10:05 AM
hmmm... I think it would probably be classified as a type of seizure. There are many different levels. Sometimes you are awake and conscious when its happening - sometimes you are not. I was not - I had a grand mal. I just find it all to be waaaay too coincendental if the seizure and the celiac disease were not related. Anyway - I will have to watch the show - i just keep missing it. Damn! these are the times when i really really wish i had Tivo.I dont really remember them getting into the seizure aspect. Did he have a seizure? I saw the episode about a month ago...I dont remember if he actually had a seizure...he would kind of go into a catatonic (sp?) state. It was like he was zoned out...is that a seizure?
#21
Posted 29 November 2005 - 01:31 PM
#22
Guest_CD_Surviver_*
Posted 29 November 2005 - 02:48 PM
Its going to be on again on december 4 this sunday and then again someother time in december. i found this out on their website their three times that i cant remeber but if you go the website it will tell you and you can sign up for a reminder of when its going to be on.missed it, darn!
Lauren
#23
Posted 30 November 2005 - 03:01 AM
12/4 @ 2 PM
12/26 @ 6 PM
Discovery Health Channel (not regular Discovery Channel)
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
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