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Only 1 test positive??

SpeechM

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SpeechM Newbie
SpeechM
Posted

Hi Everyone,

I am a newbie here as I am still trying to figure out if I have celiac disease or not!  Have had multiple issues with fatigue and joint pain for years.  Was treated for lupus but have now been told that it is not lupus.  I am now being looked at by my Rheumatologist as possibly having psoriatic arthritis.  Have had a lot of gastrointestinal issues as of late and mu regular GP ordered celiac panel.  Only test that came back positive was GLIAD (DEAMINATED) AB,IgG.  My GP said that I do not have Celiac disease but my Rheumatologist says that I do.  Can I have the disease or at least a gluten intolerance with only 1 test positive? Thanks for any information or clarification you can give me!!

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cyclinglady Grand Master
cyclinglady
Posted

I tested positve to only the DGP IGa and yet biopsies revealed a Marsh Stage IIIB (moderate to severe intestinal villi damage.  Even when glutened and with follow-up testing, I still test this way.  Try to research more.

Good Luck!  

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squirmingitch Veteran
squirmingitch
Posted

Do you have copies of the celiac panel? Could you post the test results along with the reference ranges? It could be (often is) that your doc did not perform the current FULL celiac serum panel.

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Stacy0w Enthusiast
Stacy0w
Posted

I only tested positive to the gliadin iga.  It was well over 100. From that alone they diagnosed me. 

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cyclinglady Grand Master
cyclinglady
Posted

Just to clarify, when I said to research more, I just wanted you to find more evidence from credible sources (like the University of Chicago or one of many celiac books by doctors: Murray or Fansano who are experts in celiac disease) to share with your doctors.  Your GPA is mis-informed and that happens all the time.  Even GI docs make mistakes. 

celiac disease is tricky to diagnosis.  Running all the available  celiac disease tests gives the doctor the best means of catching a diagnosi.  Nothing is fool-proof!  One positive is all y ou need to go on to the next step which is often the endoscopy.  But some folks take the blood test resultsas the final diagnostic tool for a variety of reasons (long wait in Canada, financial issues, etc. 

 

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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Constant low back, abdominal and pelvic pain!

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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      Why?

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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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