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17 replies to this topic
#1
debmidge
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Posted 20 November 2005 - 07:52 AM
Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
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#2
Guest_Viola_*
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Posted 20 November 2005 - 08:58 AM
Yes! Thank you all who work to keep this forum running 
#3
nettiebeads
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Posted 20 November 2005 - 09:35 AM
Thanks from me, too! I was thinking about this board and how much healthier I've been from all of the things I've learned 
Definitely strength and wisdom in numbers!!!!!
Definitely strength and wisdom in numbers!!!!!
gluten-free since Oct 1996
#4
jerseyangel
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Posted 20 November 2005 - 09:39 AM
Thanks to everyone who helps the board run and be there for all of us Have a Happy Thanksgiving!
Have a Happy Thanksgiving!
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#5
Rusla
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Posted 20 November 2005 - 10:02 AM
I would like to thank those who put up this site so that we could all find people like us and share our feelings, laughter and frustration with. I also thank the moderators for helping keep it all together here.
Rusla
Asthma-1969
wheat/ dairy allergies, lactose/casein intolerance-1980
Multiple food, environmental allergies
allergic to all antibiotics except sulpha
Rheumitoid arthritis,Migraine headaches,TMJ- 1975
fibromyalgia-1995
egg allergy-1997
msg allergy,gall bladder surgery-1972
Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease
gluten-free totally since Nov. 28, 2005
Hashimoto's Hypothyroidism- 2005
Pernicious Anemia 1999 (still anemic on and off.)
Osteoporosis Aug. 2006
Creative people need maids.
Asthma-1969
wheat/ dairy allergies, lactose/casein intolerance-1980
Multiple food, environmental allergies
allergic to all antibiotics except sulpha
Rheumitoid arthritis,Migraine headaches,TMJ- 1975
fibromyalgia-1995
egg allergy-1997
msg allergy,gall bladder surgery-1972
Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease
gluten-free totally since Nov. 28, 2005
Hashimoto's Hypothyroidism- 2005
Pernicious Anemia 1999 (still anemic on and off.)
Osteoporosis Aug. 2006
Creative people need maids.
#6
cmom
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Posted 20 November 2005 - 12:31 PM
I am also thankful for this forum. I have learned so much more about this disease and how to deal with it than I ever did from any doctor, GI or otherwise. Thanks to everyone who has contributed to my knowledge!
Robin from Indiana
#7
FaithInScienceToo
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Posted 20 November 2005 - 03:07 PM
I am grateful to all of the moderators who volunteer their precious time here.
I, too, learn SO much here and do not know where I'd be right now without having had this forum!
"Happy Turkey-Day to all!" - Scott, too!
oops - and a "Happy Tofu and Veggie day," to any herbivores...
Gina
I, too, learn SO much here and do not know where I'd be right now without having had this forum!
"Happy Turkey-Day to all!" - Scott, too!
oops - and a "Happy Tofu and Veggie day," to any herbivores...
Gina
#8
jenvan
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Lynne took this picture! :)
Posted 21 November 2005 - 07:59 AM
rock on ! i do love this place...my second home
~~~~~~~
Jen
Indianapolis, IN
gluten-free since Feb 2005
dairy-free
Jen
Indianapolis, IN
gluten-free since Feb 2005
dairy-free
#9
debbiewil
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Posted 21 November 2005 - 08:02 AM
Yes, yes, yes!
This board and the people on it have made going gluten-free soooo much easier!
Thank you,
Debbie
This board and the people on it have made going gluten-free soooo much easier!
Thank you,
Debbie
#10
mart
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Posted 21 November 2005 - 02:02 PM
Me too! I love this site and thank God for it. It's helped me to cope at living in a poisonous world full of gluten. I was so confused and depressed prior to finding all you super knowlegable people. I'm fairly new here but want to thank ELONWY for making me laugh everyday, JENVAN for a beautiful, caring spirit and positive attitude, RICHARD for being so unbelievably smart and celiac3270 for being such a mature, courageous kid (you give me hope for my son). I sound like I'm at the Oscar's. Sorry 
Just have to say that I appreciate all of you.
Wish everyone on this site a wonderful, gluten-free holiday!
Mart
Just have to say that I appreciate all of you.Wish everyone on this site a wonderful, gluten-free holiday!
Mart
#11
Lisa
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Posted 21 November 2005 - 03:28 PM
I too, feel the same as Mart. There are so many of you the have guided me through the roller-coaster of Celiacland. Karen for her everpresent suppost, Kaitie for her everpresence, Richard, the word of an expert, Shirley, for thinking that everyone should know how to milk a goat, Tiffany for her knowledge and great research, celiac3270 who will do great things in his life. (esp. "You know You're a Celiac if...)
I don't mean to leave anyone out. You guys are my C-friends and I would like to meet you all some day.
Thank you, all of you for your help, in guiding me through this disease.
Best of Thanksgiving to All.
Lisa B.
I don't mean to leave anyone out. You guys are my C-friends and I would like to meet you all some day.
Thank you, all of you for your help, in guiding me through this disease.
Best of Thanksgiving to All.
Lisa B.
Lisa
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#12
VydorScope
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Posted 21 November 2005 - 03:30 PM
Asa forum admin of a nother major forum, I know what kind of work goes in to this site, and I am thankfull that here at laeast some one else does it! 
Thanks to all that work to make this a great rescource site, its enve RECOMENDED by my son's GI doc.
Thanks to all that work to make this a great rescource site, its enve RECOMENDED by my son's GI doc.
- Vincent -
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
#13
celiac3270
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Posted 21 November 2005 - 05:05 PM
Shirley, for thinking that everyone should know how to milk a goat
I really don't know how to milk a goat--seriously, I'm a New Yorker, lol.
Thank you to everyone--particularly Scott--he does so much more work than us moderators pinning topics--and all the people who post here
#14
Canadian Karen
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That Crazy Canuck!
Posted 21 November 2005 - 05:11 PM
I agree also, without Scott, none of us would be here if you really think about it. His dedication must be amazing to keep this running and all the work that goes along with that. Kudos Scott! You rock! 
Karen
Karen
Karen
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown
#15
KaitiUSA
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Be the change you wish to see in the world!
Posted 21 November 2005 - 06:14 PM
For sure...have to thank Scott. I have to agree he does so much more to keep this site running. I am glad to be a part of the site
Kaiti
Positive bloodwork
Gluten-free since January 2004
Arkansas
Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"
"One Nation, Under God"
Feel free to email me anytime....jkbrodbent@yahoo.com
Positive bloodwork
Gluten-free since January 2004
Arkansas
Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"
"One Nation, Under God"
Feel free to email me anytime....jkbrodbent@yahoo.com
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