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Thankful-time To Give
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18 posts in this topic

Thank you for all the work you do for us so we can enjoy this board.

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Yes! Thank you all who work to keep this forum running :P

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Thanks from me, too! I was thinking about this board and how much healthier I've been from all of the things I've learned :) Definitely strength and wisdom in numbers!!!!!

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Thanks to everyone who helps the board run and be there for all of us :) Have a Happy Thanksgiving!

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I would like to thank those who put up this site so that we could all find people like us and share our feelings, laughter and frustration with. I also thank the moderators for helping keep it all together here.

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I am also thankful for this forum. I have learned so much more about this disease and how to deal with it than I ever did from any doctor, GI or otherwise. Thanks to everyone who has contributed to my knowledge! :)

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I am grateful to all of the moderators who volunteer their precious time here.

I, too, learn SO much here and do not know where I'd be right now without having had this forum!

"Happy Turkey-Day to all!" - Scott, too!

oops - and a "Happy Tofu and Veggie day," to any herbivores...

Gina

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rock on ! i do love this place...my second home :)

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Yes, yes, yes!

This board and the people on it have made going gluten-free soooo much easier!

Thank you,

Debbie

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Me too! I love this site and thank God for it. It's helped me to cope at living in a poisonous world full of gluten. I was so confused and depressed prior to finding all you super knowlegable people. I'm fairly new here but want to thank ELONWY for making me laugh everyday, JENVAN for a beautiful, caring spirit and positive attitude, RICHARD for being so unbelievably smart and celiac3270 for being such a mature, courageous kid (you give me hope for my son). I sound like I'm at the Oscar's. Sorry :lol: Just have to say that I appreciate all of you.

Wish everyone on this site a wonderful, gluten-free holiday!

Mart

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I too, feel the same as Mart. There are so many of you the have guided me through the roller-coaster of Celiacland. Karen for her everpresent suppost, Kaitie for her everpresence, Richard, the word of an expert, Shirley, for thinking that everyone should know how to milk a goat, Tiffany for her knowledge and great research, celiac3270 who will do great things in his life. (esp. "You know You're a Celiac if...)

I don't mean to leave anyone out. You guys are my C-friends and I would like to meet you all some day.

Thank you, all of you for your help, in guiding me through this disease. :):)

Best of Thanksgiving to All.

Lisa B.

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Asa forum admin of a nother major forum, I know what kind of work goes in to this site, and I am thankfull that here at laeast some one else does it! :D

Thanks to all that work to make this a great rescource site, its enve RECOMENDED by my son's GI doc. :D

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Shirley, for thinking that everyone should know how to milk a goat

I really don't know how to milk a goat--seriously, I'm a New Yorker, lol.

Thank you to everyone--particularly Scott--he does so much more work than us moderators pinning topics--and all the people who post here :)

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I agree also, without Scott, none of us would be here if you really think about it. His dedication must be amazing to keep this running and all the work that goes along with that. Kudos Scott! You rock! ;)

Karen

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For sure...have to thank Scott. I have to agree he does so much more to keep this site running. I am glad to be a part of the site :)

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Thank you to all of our great moderators, and the great community who come here for a place to spend time. FYI: We just upgraded the board again and have a few bugs--we know about:

1) My Assitant - Loading. Please Wait...

2) Multiple calendar events

but if you see anything else please let me know.

Thanks again and have a great turkey day!

Scott

For sure...have to thank Scott. I have to agree he does so much more to keep this site running. I am glad to be a part of the site :)
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Yes--I had noticed that assistant issue just now when I logged on. Cool updates :) -- the revamped posting options, warnings are back, new general formatting. What's the new icon? The V-thing--just wondering if that had something to do with celiac like the old wheat icon or if it was some default icon that came with the board update?

Thank you for all of your hard work!

-celiac3270

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Thank you to all of our great moderators, and the great community who come here for a place to spend time. FYI: We just upgraded the board again and have a few bugs--we know about:

1) My Assitant - Loading. Please Wait...

2) Multiple calendar events

but if you see anything else please let me know.

Thanks again and have a great turkey day!

Scott

Hey Scott: You're the one to go on Oprah. Can we help get you there?

Lisa B.

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    • Awok, Welcome to the forum.  Have you considered trace gluten?  Here is a study on the topic: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/pdf/1471-230X-13-40.pdf It could explain why you felt good for a while.  I personally was glutened badly last summer.  I have no idea what got me.  I suspect either a prescription medication or one gluten free product (not certified).  I ended up on a whole foods diet and avoided even certified processed gluten-free foods including grains until I was healed (three to six months).  
    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
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