Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gluten sensitivity


Maddi

Recommended Posts

Maddi Community Regular

I'm tested negative to celiac but I seem to be really intolerant to it. I've given up 95% processed foods and only eat processed foods with 1-2 ingredients,  in an attempt to get my health back and I have been doing well until last night... my insomnia, hot flashes, and anxiety all came back out of nowhere. All of which are the symptoms I get when I've been glutened. Yesterday I went out  with my bf and he ate pizza...then we held hands and I then ate apple chips without washing my hands. Could that have gotten me glutened? Also, I have been lazy about rewashing plates at his house and having my own seperate plates and silverware. I used a fork which I usually only way with spoons... (forks have more hidden spaces so I stay away from them). Could this really be from cross contamination?  Do any other non celiacs with a gluten sensitivity react to miniscule amounts of gluten? This is very very frustrating. I know it's worth it though bc anxiety sucks but it is all very frustrating bc you don't know where the source is coming from. 

Large amounts of gluten give me insomnia, panic attacks, anxiety, headaches, tingling extremities, hot flashes, nausea and dizziness. So it is mostly neurological. It's just so hard to believe that I'm this sensitive to such small amounts of gluten. /: it seems almost impossible to avoid it. I've recently started vegetable juicing and making my own water kefir, hoping that it will help me digest foods. Any thoughts? 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowerqueen Community Regular
22 minutes ago, Maddi said:

I'm tested negative to celiac but I seem to be really intolerant to it. I've given up 95% processed foods and only eat processed foods with 1-2 ingredients,  in an attempt to get my health back and I have been doing well until last night... my insomnia, hot flashes, and anxiety all came back out of nowhere. All of which are the symptoms I get when I've been glutened. Yesterday I went out  with my bf and he ate pizza...then we held hands and I then ate apple chips without washing my hands. Could that have gotten me glutened? Also, I have been lazy about rewashing plates at his house and having my own seperate plates and silverware. I used a fork which I usually only way with spoons... (forks have more hidden spaces so I stay away from them). Could this really be from cross contamination?  Do any other non celiacs with a gluten sensitivity react to miniscule amounts of gluten? This is very very frustrating. I know it's worth it though bc anxiety sucks but it is all very frustrating bc you don't know where the source is coming from. 

Large amounts of gluten give me insomnia, panic attacks, anxiety, headaches, tingling extremities, hot flashes, nausea and dizziness. So it is mostly neurological. It's just so hard to believe that I'm this sensitive to such small amounts of gluten. /: it seems almost impossible to avoid it. I've recently started vegetable juicing and making my own water kefir, hoping that it will help me digest foods. Any thoughts? 

Hi!  How were you tested for coeliac disease?  If it was a blood test, they are not very reliable (and you may still have coeliac disease - although you need to be eating gluten for at least 6 weeks on a daily basis for you to get a reliable result. The best way of getting checked is by having a biopsy.

Link to comment
Share on other sites
cyclinglady Grand Master

Hi Maddie!

I could be starving and have some apple chips in my purse, but I would never eat them without first washing my hands.  You could have been glutened simply from cross contamination.   I make my kid wash her hands when she comes home from school or anywhere where she has had gluten exposure.  Make me feel better, lowers the risk of cross contamination, and we help to avoid the flu and other nasty bugs (school is germie)!   We all wash our hands when we come home from anywhere.  

Not much is known about non-celiac gluten sensitivity, so who knows?  

 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,220
    • Most Online (within 30 mins)
      7,748

    Random.user556
    Newest Member
    Random.user556
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...