Terrified About Testing Kids Tomorrow
Posted 14 April 2004 - 04:57 PM
I can't emphasize enough how important it is to see right dr and have the right tests done.
There is a local support group, that meets once every 2 months in the Denver metro area. I have only been to one meeting so far. I will look for the newsletter I got and post info on the group when I do.
BTW don't appologize, of course you are spent !!! who wouldn't be ?
Posted 14 April 2004 - 06:41 PM
Thank you so much for the info...I will call your doctor's office tomorrow and see what they have to say. I will also call my current GI doc and request the use of the Prometheus labs, and if he refuses to use that lab then I will just cancel the biopsy and get a second opinion from your doc. I may also take my oldest to your doc anyway because I asked for the genetic test to be done on my oldest while they were drawing her blood so she wouldn't have to go thru it again..and he said the test was too expensive and inconclusive. I think I need to ask more questions about the tests....I am so glad I found this forum...I have learned more in the past week....Thanks to all who have helped me. And thanks to the Wilds for setting me on the right course.....I feel better just knowing I can come here and ask questions and not be told I am crazy.....
Posted 22 April 2004 - 12:06 PM
My youngest had her biopsy today and it went well, blood was also drawn for tests on levels...Meanwhile I am sick......figures. Anyway, soon I will have my biopsy and then we can all (including my oldest and my husband -- who don't have celiac disease) be gluten-free..The light at the end of the tunnel is getting brighter....Thanks to everyone in this forum, I feel more and more confident about the healing process..
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