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Anyone Have Their Legs Collapse On Them?


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5 replies to this topic

#1 Nantzie

 
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Posted 22 November 2005 - 11:33 PM

A few months ago, before I found out about celiac, I woke up out of a sound sleep to the phone ringing. I jumped out of bed, and my legs collapsed right out from under me. I just dropped like a sack of potatoes. I thought at first that my legs were just asleep, but once I dragged myself back into bed (using nothing but my arm strength), I felt my legs and I could feel everything, and I could move them, wiggle my toes, etc. I tried to stand up again and I just didn't seem to have any muscle strength whatsoever. It was like standing on cooked spaghetti. It was about five minutes before I could stand up. At the time I wrote it off as being sleep paralysis, where sometimes people wake up and can't move for a few minutes because their bodies still think they're asleep.

It hasn't happened again, but now, knowing about the neurological aspects of gluten, along with already having balance problems, it just makes me wonder.

Has anyone here had problems with something like this?

Nancy
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#2 RiceGuy

 
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Posted 23 November 2005 - 12:21 AM

Well, I have recently been having pain in one leg only. So much so that I could not stand on it. It was also very weak, but since you didn't mention extreme pain, I'd guess it's not exactly the same thing. It would spasm at the slightest change in pressure as I tried to get around. There was noticable numbness too, but not the entire way down - mostly above the knee. That lasted for quite awhile. Almost a month! Ever try walking around on one leg?

Now it is a lot better, but still not very good. There is residual pain in one spot of the knee. Both ankles hurt all the time, but I think that's just because of the way I had to drag myself around for so long.

I still don't know what brought it on, so I'm proceeding cautiously.
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#3 ravenwoodglass

 
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Posted 23 November 2005 - 08:34 AM

A few months ago, before I found out about celiac, I woke up out of a sound sleep to the phone ringing.  I jumped out of bed, and my legs collapsed right out from under me.  I just dropped like a sack of potatoes.  I thought at first that my legs were just asleep, but once I dragged myself back into bed (using nothing but my arm strength), I felt my legs and I could feel everything, and I could move them, wiggle my toes, etc.  I tried to stand up again and I just didn't seem to have any muscle strength whatsoever.  It was like standing on cooked spaghetti.  It was about five minutes before I could stand up.  At the time I wrote it off as being sleep paralysis, where sometimes people wake up and can't move for a few minutes because their bodies still think they're asleep. 

It hasn't happened again, but now, knowing about the neurological aspects of gluten, along with already having balance problems, it just makes me wonder. 

Has anyone here had problems with something like this? 

Nancy

<{POST_SNAPBACK}>



Yes,
Fortunately it was only one leg. Sometimes I used to have to use my hand to move my leg, made it a real pain (and probably dangerous) to drive. I used canadian canes for a few years prediagnosis because of this and the ataxia. It also made them think MS, but they ruled that out. After about 3 months gluten-free my neuro symptoms were pretty much gone, unless glutened. I even have reflexes now, something I hadn't had since childhood when I first started to drag my leg. I don't know if my response was typical, ie. basic full remission, but I hope it'sa the same for others. Celiac can cause some nasty neuro problems, I was very happy when they went away.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 danikali

 
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Posted 23 November 2005 - 08:44 AM

YES! :unsure: And it's scary isn't it????? There have been a couple of times where I get up during the night to go to the bathroom and as soon as I put any weight on my legs when I get up, I FALL! :blink: It probably looks funny :lol: but it is NOT FUNNY AT ALL! :( It's like I'll get paralized for a little bit..........I'm glad to hear I'm not the only one who's had this problem!

And also, with those of you who have pain in only one leg, I GET THAT TOO! (Sporadically)........It's like, it will start out with a little cramp, and before I know it, my whole leg is throbbing! It's usually my left leg, but a couple times I have gotten just the "cramps" -not the whole throbbing thing- in my right leg too. But it's only one leg at a time..... :huh:

Scary stuff! :unsure:
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Danielle (Dani)

Diagnosed with Celiac Disease by Dr. Green (gene HLA DQ8) 1/05/06
Diagnosed: Gluten Sensitive through enterolab 11/17/05
Diagnosed: Casein Sensitive through enterolab 3/7/06

Diagnosed: Interstitial Cystitis (IC) 07/26/06



I finally put my picture on because it doesn't look like I'll be eating ANY cake on my Wedding day..........I'm the one in the middle.

Intolerant to: (besides gluten)

Casein
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Any kind of additives or preservatives

#5 Rusla

 
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Posted 23 November 2005 - 09:01 AM

I had that happen at work, before I found out any of this. I went to stand up and I couldn't and had extreme pain in my hips and legs. Sometimes I will get it in just one leg. But for the very short time I was gluten-free I did not have even the pains in my legs. Now, this week it is back with a vengence because I have to eat gluten this week.
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Rusla

Asthma-1969
wheat/ dairy allergies, lactose/casein intolerance-1980
Multiple food, environmental allergies
allergic to all antibiotics except sulpha
Rheumitoid arthritis,Migraine headaches,TMJ- 1975
fibromyalgia-1995
egg allergy-1997
msg allergy,gall bladder surgery-1972
Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease
gluten-free totally since Nov. 28, 2005
Hashimoto's Hypothyroidism- 2005
Pernicious Anemia 1999 (still anemic on and off.)
Osteoporosis Aug. 2006


Creative people need maids.

#6 jerseyangel

 
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Posted 23 November 2005 - 09:06 AM

I have not had my legs go out, but at times they feel so weak that I've thought maybe they would. Also, I get hip pain on the right side while laying in bed that is so painful that its hard to change position. Thankfully, these things do not happen too often.
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev




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