Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

Awol follow up


Awol cast iron stomach

Recommended Posts

Awol cast iron stomach Experienced

Hello everyone,

Thank you for the many months of support. I was unable to get through the 14 day gluten challenge. I made it 6 days stopped due to d and all my other symptoms and dehydration issues. Then I had to go gluten-free a few days ate one more day of gluten. So I was unable to do 14 days. They did both colonoscopy and endoscopy. They said no signs of celiac but they said they were shocked to find Barretts and gastritis of stomach. They were shocked to find it since what they found did not match my symptoms. I had reflux at the end of my daughters pregnancy 12 years ago but did not realize I am/was fluxing. It appeared standard pregnancy related and then gone shortly  after delivery .

While I am not celiac I may still visit your forum because my husband, my children, and myself know gluten is bad for me. I bloat 45 minutes after consuming in addition to many symptoms. I tried to search if people with Barretts have an association with NCGS but was unable to find anything.

So thank you for your time and knowledge during my challenge. I am off on my Barretts journey and hoping I remain without dysplasia. I will remain gluten free because despite no damage found -gluten causes symptoms for me.

My best to all- wish me luck.

Awol

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ironictruth Proficient
On 10/20/2016 at 9:29 PM, Awol cast iron stomach said:

Hello everyone,

Thank you for the many months of support. I was unable to get through the 14 day gluten challenge. I made it 6 days stopped due to d and all my other symptoms and dehydration issues. Then I had to go gluten-free a few days ate one more day of gluten. So I was unable to do 14 days. They did both colonoscopy and endoscopy. They said no signs of celiac but they said they were shocked to find Barretts and gastritis of stomach. They were shocked to find it since what they found did not match my symptoms. I had reflux at the end of my daughters pregnancy 12 years ago but did not realize I am/was fluxing. It appeared standard pregnancy related and then gone shortly  after delivery .

While I am not celiac I may still visit your forum because my husband, my children, and myself know gluten is bad for me. I bloat 45 minutes after consuming in addition to many symptoms. I tried to search if people with Barretts have an association with NCGS but was unable to find anything.

So thank you for your time and knowledge during my challenge. I am off on my Barretts journey and hoping I remain without dysplasia. I will remain gluten free because despite no damage found -gluten causes symptoms for me.

My best to all- wish me luck.

Awol

I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms.

Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 

Link to comment
Share on other sites
Awol cast iron stomach Experienced

Hi Ironic Truth,

Thanks for Replying. Wow I get bad joint pain too. So my opinion especially if he is eating gluten is to get him tested. I wish I had been tested when I was eating gluten 8 years ago .  I had tried 8 years ago initially to figure out what the heck was going on with me and my immune system. I started with a GP, went to Allergist/Immunologist etc. I gave up 4 doctors later when nothing seem to be found and you sense they start thinking lady you're a nut job . My cousin a diagnosed Celiac took over 2 years to be diagnosed and she is a nurse.

My husband said for years "I think bread is bad for you" and in a desperate attempt to help myself -I gave up wheat after 2 weeks felt better 2 months later I went total gluten-free and felt very much better that was 4 years ago. So I have suspected NCGS or Celiac for a few years now. However getting someone to test you for it when you were classified IBS 20 years prior-well as is chronically heard on the forums here is perhaps the biggest challenge of all. One then just finally says ok I will just try this gluten-free thing myself.

I was gluten-free for 3 1/2 years and improving. Then  I got gluten-ed in March of 2016 and I had worse symptoms then ever the joint pain arrived. I went to a new allergist who refereed me to another Allergist/Immunologist who deals with Celiacs and Food Intolerances. I did see a Rheumotologist in July 2016 since the muscle and joint pain was still lingering, who tested me and reported no antibodies. Back to the specialist who did more test and suggested the gluten challenge. It's likely me failing to complete 2 weeks caused it but the symptoms got real bad and I thought I'm going to have worse issues if I don't stop this.  Today my fingers are just starting to heal they were peeling during the gluten challenge among all the other symptoms I get, which I attribute to dehydration. The dry peeling fingers did not improve until I got the IV the day of the scope. Bizarrely I was looking forward to the scope hoping I'd get an IV with Meds and fluids becaus eI felt I needed it.

I did see one abstract, I can't get my hands on the full article as you stated their is a link:

Dig Dis Sci. 2005 Jan;50(1):126-9.

Celiac disease and intestinal metaplasia of the esophagus (Barrett's esophagus).

Maieron R1, Elli L, Marino M, Floriani I, Minerva F, Avellini C, Falconieri G, Pizzolitto S, Zilli M

Open Original Shared Link

So I will pursue the path of monitoring the  Barrett's. Despite no official diagnosis for me, you are right Gluten is bad for me, I should avoid it, I will, and I'll stay on the forums.

Good luck with you Boyfriend he is lucky to have you looking out for him.

Link to comment
Share on other sites
GFinDC Veteran

Hi AWOL,

Since you weren't able to complete the 2 weeks gluten challenge for the endoscopy the results are not necessarily reliable.   So to be erring on the side of caution I think you should assume you have celiac disease.  Your doctor should not assume you don't have it either since the challenge was not completed.  He has no proof that you don't have celiac disease.  He does have evidence that you have negative reactions to eating gluten though.

Open Original Shared Link

Link to comment
Share on other sites
Awol cast iron stomach Experienced

Thanks for replying gluten-free in DC. I know I failed to finish and I readily admitted it to them. I also told them initially I wasn't willing to do the challenge that I'd prefer to be gluten-free and wait for technology to catch up with me. I knew however they would not order endoscopy if I did not do a challenge. 

I'll take your sage advice and consider myself Celiac. I considered myself on the spectrum for 3 years.

I was perplexed the GI Dr  said that celiac was the least of my concerns now that Barretts was found. I asked if she was sending the results to the celiac specialist I was seeing, she responded why would I do that? You're not celiac. My sarcastic answer was because she was the referring physician, but I figured the fight was not worth the stress that could aggravate if I have non symptomatic gerd. Surprised as this is a large metropolitan university medical hospital.

She did however tell my husband while I was still out from anesthesia if she really thinks she has a problem with gluten tell her not to eat it. That was my only validation.

My insurance company wont cover the next test/ procedure she suggests for Barretts . So my husband and I realize the trip to the city for specialists hit a dead end. now  I need to find a different local GI for Barretts monitoring. I feel like this was an exercise in futility however I guess I am fortunate the Barretts was discovered as I have children . And the Barretts will require additional positive lifestyle practices that can aid the celiac too.

Thank you

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,154
    • Most Online (within 30 mins)
      7,748

    Ohwowitsgluten
    Newest Member
    Ohwowitsgluten
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • CatherineWang
      I'm pretty sure that in stores, you can find plenty of gluten-free options. But they are usually a bit more expensive.
    • cristiana
      Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated.  That pain was what troubled me most after the operation, far more than the operation site.  It took a few days to really settle down, I was quite badly bruised. It was taking so long I was a bit concerned so asked the question on another forum. A few patients came back to me and said they had suffered the same.  I imagine in my own case possibly the throat got bashed about a bit,  maybe they had difficult inserting the tube?  I've suffered with a painful throat post-endoscopy too, but never as long as the intubation pain.   I hope you will be feeling better very soon.   PS BTW - love the name!  I saw this today in an Easter display in a shop and your name reminded me of it.🙂  
    • cristiana
      This wonderful, Anne. I think you have a point about why people disappear off forums.  I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal).  However, once my antibodies were back within normal range it really has made a big difference to my health.  I've chosen to stick around because I'm a Mod, otherwise I might have been one of those that disappeared, too!      
    • Exchange Students
      Yes absolutely, we work with all public schools and some private schools in all 50 states.
    • Scott Adams
      Just a quick question, can the host live in any state in the USA?
×
×
  • Create New...