Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

New Member: Itchy, Scaly Scalp

3 posts in this topic

A little background: Diagnosed by biopsy with celiac Sept. 18, 2002 (it was so traumatic I remember the exact date - I'd never heard of it). Symptoms included severe combined anemia and IBS.

I've learned how to live a very full gluten-free lifestyle: I'm in a gourmet club and I enjoy coming up with gluten-free alternatives and substitutions. Someday I'll write a book.

My health has improved; I'm positively robust! All previous symptoms are GONE.

However, for the past 4-5 months I've been plagued with an oddly symmetrical rash/itchy scalp/scabs on my head. No where else on my entire body. Has never happened to me before. Fairly sudden onset. I've examined my shampoos, etc. which are mild and gluten-free as far as I can determine. I've gone through 2 bottles of T-

Gel medicated shampoo by Nutrogena. No difference. My local health food store suggested Emu Oil at $16.00 for a tiny bottle; no difference.

The spots are on the back upper left & right parts of my head, and as I said, are very symmetrical.

Question: have I developed DH? I think I'm fairly strict about being gluten-free, and all my digestive symptoms have disappeared. Any suggestions on other treatments?

This is driving me crazy!

Thank you anyone, for your feedback.


Share this post

Link to post
Share on other sites

Ads by Google:

Hi rockosmom,

I was wondering if you have asked your doctor about it? I also have a lot of itching and scaly scalp. For me it is Psoriasis (and DH), and although I am gluten free and the DH is gone I still have the Psoriasis, but it is not as bad. When I have a gluten accident one fo my first symptoms is DH blisters on my scalp and around the hairline of my neck. I have not found any wonderful treatment for my scalp Psoriasis, but a dermatologist might be able to help you out. If you have been gluten-free for over a year and a half, then realistically it shouldn't be DH, unless you are still getting hidden gluten from somewhere. If you do go to a dermatologist, make sure you tell them that you have Celiac and maybe they can biopsy the rash to check if it is DH.

God bless,



Share this post

Link to post
Share on other sites

Thanks; I'm calling my clinic tomorrow and insisting on a referral to a dermatologist. I hope to report back something positive!


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Ok, that was my understanding of it too after some reading, but the fact that the result was under "celiac reflex panel" is what confused me.    I do have some unspecified autoimmune activity going on in my body. My inflammation levels are very high, my complement testing has come back off, and nobody really knows why. A total high Iga isn't a surprise in this case if it doesn't actually hab anything to do with gluten. Going gluten free made my inflammation markers rise rather than go down, so I'm inclined to believe I'm mostly okay with gluten, aside from some digestive issues that I believe are simply from the wheat not being fermented. Sourdough causes me no issue,  but soft white bread destroys me for example. Anyways, It's all very confusing and I wish I knew what the heck was going on with my body. 
    • maybe check exactly which blood tests you had done as well if the dermatologist doesn't know much about celiac its possible they didn't run enough
    • i think chips would vary from place to place depending on the ingredients where you go
    • Hey Everyone! Been celiac for 6 years, and it's my first time on a forum.  I assume my story is the same as most of yours: I was really sick and skinny and bloated, got diagnosed with celiac, went gluten-free and felt amazing, then slowly, but surely, the symptoms and elevated antibodies returned, no matter how OCD I am about avoiding cc. Basically I have what they call Non-Responsive Celiac disease.  I'm wondering, is there something ELSE that I can do? Clearly the gluten-free diet isn't enough anymore. I know I'm not alone in this experience. And I know doctors don't have any advice besides the gluten-free diet (and the new celiac drug that is apparently in phase III)). But do you guys know of any other tricks?  I went on anti-anxiety SSRIs for a bit to help with my anxiety problems, and that really helped my celiac. But now that I've sort of developed a tolerance to my low dose, the symptoms have returned. Anyone else try this? Or low doses or steroids/anti-inflammatory drugs?  I'm really sick of feeling sick. I even tried the Fasano (Gluten Contamination Elimination Diet) for 3 months, but it didn't really work. Any suggestions or tips would be much appreciated! Or even the names of doctors who have helped you!  
    • 60% of celiacs with dh test negative on the celiac blood work. Fact. Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member